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I Hate Dialysis Message Board
Dialysis Discussion
Dialysis: Diet and Recipes
diet rant
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Topic: diet rant (Read 5917 times)
sullidog
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diet rant
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on:
August 18, 2011, 07:52:44 PM »
Ok, my dietition thinks I need to make everything I eat from scratch, so that way my phos and calc won't be as hi as they are. I know frozen foods and pre-cooked foods have a lot of that stuff in them and it's not that I don't wanna follow the diet with not eating as much with that stuff it's just that with my limited vision it's hard for me to cook from scratch, now some blind people are good at it, but this one is not and so it's just easier for me just to pop that precooked meal in the microwave or oven. She said I need to hier someone to cook for me, I'd love that but is my dialysis center gonna pay for it? I think not! I mean I really have no choice I can only work with what I got. I know how to do chicken and hamburgers and stuff like that but having that every day would get old too.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
MooseMom
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Re: diet rant
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Reply #1 on:
August 18, 2011, 08:00:54 PM »
Frozen veg isn't high in phos and K. There's nothing wrong with relying on bags of frozen peas or corn or green beans.
Suddenly we're getting posts about dieticians who lay down the rules but don't help in giving you practical advice on how to incorporate the diet into the lives of very busy people. That's not very helpful of them.
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
mcclane
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Re: diet rant
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Reply #2 on:
August 19, 2011, 10:37:32 AM »
when i was on pd, my dietician would say similiar things.
try to cook from scratch, use fresh items. I'm not arguing that they are healthier, but when you're saddled with dialysis, your time becomes immensely precious. So I wound up resorting to processed foods when I was doing manual pd. It was easier to pop it in the microwave than to cook from scratch.
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monrein
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Re: diet rant
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Reply #3 on:
August 19, 2011, 10:59:06 AM »
Maybe what we really need to be doing is advocating for companies to start making more healthy, less salty, less preserved frozen foods so that convenience doesn't come saddled with so many detriments...My bias btw is that this true for all of us, renal or not. Unfortunately, as a society we're a bit addicted to the unhealthy things (salt and fat) that can add flavour to food that isn't top-notch to start off with...industrially raised chickens and eggs being two examples.
On the other hand, frozen veggies (not the ones smothered in highly processed "sauces", just flash frozen veggies) are perfectly good, much better than canned and the dietitian ought to know this. Nutritionally they can be excellent because they're frozen at the peak of freshness unlike some "fresh" stuff that been sitting around and/or shipped long distances.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
sullidog
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Re: diet rant
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Reply #4 on:
August 19, 2011, 07:04:52 PM »
that's a good idea!
My dietition makes me tell her what I've been eating before she'll tell me if it's not good for my diet, why just not make up a full list of what in her oppinion is bad for me then give it to me because some of the things she says is bad for me I can't find on any dialysis list, and what she doesn't understand, sometimes a patient does have to give in to timtation.
yes, also when you are tired from dialysis who wants to come home and make a meal from scratch?
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
sullidog
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Re: diet rant
«
Reply #5 on:
August 19, 2011, 07:06:46 PM »
also I did try that magic kitchen, not only is it expensive, but in my oppinion it tastes horrible!
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
mcclane
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Re: diet rant
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Reply #6 on:
August 20, 2011, 07:09:55 AM »
I'll admit, now that i'm on home hemo, I do have more time to cook from scratch, I've been searching on the internet for easy basic recipes (ie. basic beef stroganoff) which takes no time to make. I also make cream of mushroom soup from scratch, using fresh mushrooms.
But still, I know what it is like doing manual PD, and it was tough cooking meals without using processed items (as a time saver, ie. 90 seconds for rice to nuke in the microwave, vs. 40+ min cooking rice from scratch).
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sullidog
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Re: diet rant
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Reply #7 on:
August 20, 2011, 05:56:20 PM »
she says that mushrooms are high in phos, is this true?
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
willowtreewren
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My two beautifull granddaughters
Re: diet rant
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Reply #8 on:
August 20, 2011, 06:44:44 PM »
This is from Wikipedia
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
mcclane
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Re: diet rant
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Reply #9 on:
August 21, 2011, 03:52:22 PM »
Quote from: sullidog on August 20, 2011, 05:56:20 PM
she says that mushrooms are high in phos, is this true?
i thought they were high in potassium, but i could be way out in left field too.
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Zach
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"Still crazy after all these years."
Re: diet rant
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Reply #10 on:
August 21, 2011, 04:40:33 PM »
USDA National Nutrient Database for Standard Reference
http://www.nal.usda.gov/fnic/foodcomp/search/
Mushrooms, white, raw
1 medium, 18 grams*:
Phosphorus, P 15 mg
Potassium, K 57 mg
*18 grams = 0.6 ounces
1 ounce = 28 grams
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment.
I make films.
Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600; Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day.
"Living a life, not an apology."
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