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Author Topic: I'm Going to Camp Dorset!  (Read 4371 times)
Cordelia
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« on: August 08, 2011, 04:31:27 PM »
I am SO EXCITED! I'm going to Camp Dorset this month in Dorset,  Ontario, Canada :2thumbsup;    I'm so pumped to go and I just can't wait!     :yahoo;    LOL! I am looking very much forward to a week away up North!    :clap;     This is a very special camp that has dialysis machines at a clinic there.     :thumbup;    I wouldn't be able to enjoy a vacation without this very special place in Ontario! I'm just so very thankful for it!     :)     :bandance;
« Last Edit: August 08, 2011, 04:34:04 PM by Cordelia » Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Ang
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« Reply #1 on: August 08, 2011, 05:30:40 PM »
have fun and tell us what you get up to and a photo or three would be nice :thumbup; :clap;
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live  life  to  the  full  and you won't  die  wondering
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« Reply #2 on: August 08, 2011, 06:31:19 PM »
I've heard of that - how nice!
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« Reply #3 on: August 08, 2011, 06:32:35 PM »
That sounds wonderful!  Do let us know how everything goes!
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Cordelia
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« Reply #4 on: August 08, 2011, 08:24:23 PM »
Thanks, everyone! I've never been before so this will be my first time.    :bandance;    :bandance;     :bandance;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Bill Peckham
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« Reply #5 on: August 08, 2011, 08:31:36 PM »

 :thumbup; Pictures please
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
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lmunchkin
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« Reply #6 on: August 08, 2011, 08:33:01 PM »
I hear Ontario is "Gorgeous" this time of year!  Oh please send pix's   :pics;  !  Hope you have a Great time!

lmunchkin     :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
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« Reply #7 on: August 09, 2011, 03:49:46 AM »
Oooh, lovely!  Hope you have an amazing time!

 ;D
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billybags
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« Reply #8 on: August 09, 2011, 05:50:45 AM »
That sounds so good. I hope you have a great time. its good that they have dialysis machines on the camp. have fun.
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Cordelia
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« Reply #9 on: August 09, 2011, 09:46:19 AM »
Thank you so very much everyone! Thank you for your kind words and best wishes.    :grouphug;

I had never heard of it before I started dialysis and I was so happy to hear that they offer this to patients in our Region.    :bandance;     :bandance;     :bandance;

I think it's just awesome that they have dialysis machines there.  They offer it to people doing home hemo, those on PD and also to kidney transplant recipients!     :clap;  :2thumbsup;  :yahoo;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
monrein
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« Reply #10 on: August 09, 2011, 09:53:35 AM »
Camp Dorset is a fantastic resource for Ontario patients and families.  They also just won $100,000 in the Pepsi Challenge (phosphorus aside) for new machines.  Northern Ontario is really beautiful and it's such a tradition with all our lakes to get way to the cottage if one is lucky enough to have one to go to.  Camp Dorset means so much to folks who otherwise might never get away and being able to get treatments there means real relaxation.

Hope you have a great time Cordelia....way back, I used to know a couple of nurses who volunteered up there and they loved it too.  Remember the pics.  :flower;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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« Reply #11 on: August 09, 2011, 12:00:06 PM »
How wonderful for you!!  Have a fantastic week.     Years ago, my Mother was Executive  Director of a camp that was for all disababled children, underpriveleged, etc.  She was decades ahead of her time. It was a wonderful place to grow up. I wish more camps were available for everyone who needs to get away from their every day routine.

We all want to see pictures!   Have fun.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Cordelia
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« Reply #12 on: August 10, 2011, 04:19:39 AM »
I had heard that about them winning the Pepsi Challenge LOL on the phosphorus aside, Monrein    ;D   It is so fantastic they got the new machines!     :thumbup;

Thank you everyone for your best wishes! I'll be counting down the days to go!   :yahoo;    :thumbup;    :clap;
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Cordelia
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« Reply #13 on: August 18, 2011, 05:50:51 PM »
I'm leaving soon and I'm so pumped and excited and so are my kids!

Just seems like one thing after another has been happening around here lately (today my air/conditioning broke down)      ::)   Cost me a hundred bucks just for the stupid service call, I was so unimpressed, but what can you do?      I'm so anxious just to get away from everything!!!!     :)


 :bandance;     :bandance;     :bandance;     :bandance;     :bandance;     :bandance;      :bandance;
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #14 on: August 18, 2011, 06:26:21 PM »
 :yahoo;
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Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
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She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
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News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Cordelia
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« Reply #15 on: August 19, 2011, 04:50:59 AM »
 ;D
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
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« Reply #16 on: August 24, 2011, 12:34:17 PM »
 :cheer: :cheer: :cheer:

 :2thumbsup;

Congrats! I wish the Ohio Renaissance Festival had dialysis machines.
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Dining on Dialysis - www.diningondialysis.com
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Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
Cordelia
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« Reply #17 on: August 31, 2011, 09:36:11 AM »
Thanks, Pagandialysis, it was absolutely wonderful!  I hope I can go back again next summer!    :2thumbsup;     :thumbup;      :clap;       :bandance;

My family and I totally enjoyed ourselves!      :beer1;

The nurses were just fantastic and I loved the camp!     :clap;
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
billybags
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« Reply #18 on: August 31, 2011, 11:05:45 AM »
So pleased you all enjoyed it. Back to normal now.
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Cordelia
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« Reply #19 on: August 31, 2011, 01:33:40 PM »
Thank you, Billybags     :cuddle;

Yup, its back to the grind now and back to normail. We sure didn't want to come back home we were having such a great time! LOL LMAO!       :rofl;
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Cordelia
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Posts: 2012
« Reply #20 on: September 05, 2011, 02:02:05 PM »
Here are a few pics of the camp    :)     :bandance;
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Cordelia
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Posts: 2012
« Reply #21 on: September 05, 2011, 02:03:00 PM »
And more    ;D
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Cordelia
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Posts: 2012
« Reply #22 on: September 05, 2011, 02:03:44 PM »
Dorset Tower    :yahoo;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Cordelia
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Posts: 2012
« Reply #23 on: September 05, 2011, 02:04:32 PM »
Fog on the lake at our camp    :2thumbsup;
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Cordelia
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Posts: 2012
« Reply #24 on: September 05, 2011, 02:05:31 PM »
The Wolf Center in Haliburton     :clap;    :bandance;
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
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