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MooseMom
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« on: July 19, 2011, 09:56:02 PM »
Just for laughs, I googled "MooseMom", and this is what came up...

http://ihatedialysis.com/forum/index.php?topic=2505.0

It's my "introduction" post...from 2007!  It made me realize that there are a lot of long term members here whose entire stories are unknown to me (and to lots of other IHD members).  I just thought it might be kind of interesting to have a list of "introduction posts";  there's a lot of personal history here on IHD for us to read.  And those who go and find their first post might like to see how far their "trudgery" has taken them.

I wish I still had 30% function left!  That sounds like a lifetime ago.

(Yes, I suppose we could just do a search, but I thought it might be nice if IHD members themselves offered to post their first post; searches sometimes feel intrusive.)
« Last Edit: July 19, 2011, 10:10:15 PM by MooseMom » Logged
"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
YLGuy
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« Reply #1 on: July 19, 2011, 10:37:04 PM »
Here is mine from May 2009.  In it I thank Epoman.  I do not remember how long it was after this post that I came to find that he was no longer with us when I made that post.  I do remember sitting at the computer with tears pouring out for someone I had never met but somehow, through his forum had given me so much.

 http://ihatedialysis.com/forum/index.php?topic=14182.msg247138#msg247138
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MooseMom
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« Reply #2 on: July 19, 2011, 11:23:18 PM »
That was a really interesting read.  I did not realize that it all happened soquickly for you.  It is also fun to read all of the replies you got.  It serves to remind us of how welcoming and comforting everyone has been.  Makes you feel like someone has your back.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #3 on: July 20, 2011, 05:29:15 AM »
Great thread!
Here is my first post - September 2005.   I spoke of my 'fistula' - didn't know at that time it was really a 'graft'!

http://ihatedialysis.com/forum/index.php?topic=115.msg391#msg391
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
willowtreewren
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My two beautifull granddaughters

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« Reply #4 on: July 20, 2011, 07:26:34 AM »
Here is my intro:

http://ihatedialysis.com/forum/index.php?topic=11336.msg192993#msg192993

Oh, my. It brought back memories.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #5 on: July 20, 2011, 09:59:57 AM »
Here's mine http://ihatedialysis.com/forum/index.php?topic=1536.0
Makes me laugh that Rerun gave me a chill pill hahahah!!  :rofl;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MooseMom
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« Reply #6 on: July 20, 2011, 11:52:32 AM »
Karol, I see there were several chill pills on that thread! :rofl;

It is just SO interesting to see how much has changed in the lives of our members over the years.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #7 on: July 20, 2011, 02:19:25 PM »
http://ihatedialysis.com/forum/index.php?topic=20784.msg345937#msg345937


I know I am a baby IHDer but for the new members who want the backstory!

Oh I love the chill pills!!! lol

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
monrein
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Might as well smile
« Reply #8 on: July 20, 2011, 03:46:33 PM »
http://ihatedialysis.com/forum/index.php?topic=7864.msg115650#msg115650    This was my 8th post but is a more detailed version of my intro....OMG I talk/type a lot!


This is a great idea for a thread MM.  I'm enjoying the refresher on various people.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
woodsman
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« Reply #9 on: July 20, 2011, 04:03:24 PM »
http://ihatedialysis.com/forum/index.php?topic=19256.msg327791#msg327791

What a difference a year makes!!!
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MooseMom
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« Reply #10 on: July 20, 2011, 04:24:28 PM »
Woodsman, I thought I had seen your first post, but I guess I didn't because I see that I didn't reply and welcome you to IHD.  I feel bad about that.  I guess I just missed it.  And yes, what a difference a year makes.

Monrein, for all of these years, I had just put together some bits and pieces of your story scattered throughout various posts, so this was the first time I've read the whole tale in a coherent fashion.  I see now why your recent trip to France was so special.

Rsudock, I remember how hard dialysis was for you, and I am so glad that your first post is very different from your most recent ones!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
AguynamedKim
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« Reply #11 on: July 20, 2011, 08:59:56 PM »
I think it's a great idea to let people know your story - whether it's the intro post or your 8th one. I've personally kept the link to my intro post in my auto signature for this reason, so if people read something I say, they can look at where I'm coming from and then decide if I'm full of crap or not. I've thought about where I would post any significant changes to my condition - whether I would go back to the intro thread and post it there or if that would be weird. I'm leaning towards that would be weird...
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Pre-dialysis - Intro: http://ihatedialysis.com/forum/index.php?topic=20344.0
Rerun
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Going through life tied to a chair!
« Reply #12 on: July 20, 2011, 09:15:08 PM »
Great post idea MM and good signature idea Kim.

Here is mine.  I'd say I was a "little" depressed!   :rofl;

http://ihatedialysis.com/forum/index.php?topic=85.msg234#msg234

Rerun
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MooseMom
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« Reply #13 on: July 20, 2011, 09:27:44 PM »
Oh wow, Rerun.   :cuddle;  I know this may sound odd, but it pleases me to hear someone voice their rage, their disappointment and their fear.  I'm not happy that people have these feelings, but I'm glad when they feel confident enough to express them.  I think that's healthy because denying your feelings only adds to an already hefty burden.

I feel great sympathy for all those who have had a transplant eventually fail, leading them back to dialysis.  That must be one of life's greatest disappointments. 
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Rerun
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Going through life tied to a chair!
« Reply #14 on: July 20, 2011, 09:32:43 PM »
Thank you MM.  I love this site.  It really did save my life to not be the only one out there who hated dialysis.  I was so tired of people telling me to be positive.  I didn't want to be positive for a while. 

I feel different now.  I hate to admit that I got use to it?  I don't know.  I'm just in a better spot than I was then.  The site was so small when I first signed in.  Epoman and Darlene are both gone.  Those two helped me tons.       
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Desert Dancer
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« Reply #15 on: July 21, 2011, 09:04:57 AM »
It hasn't even been a year for mine, but: http://ihatedialysis.com/forum/index.php?topic=19947.msg335615#msg335615

Everything turned out so much better than I'd hoped, and in going back and reading some of my other posts from the last year I can definitely say that IHD had a whole lot to do with that! Thank goodness I found you guys; I have a feeling things might have gone differently if I hadn't.  :bow; :thx;
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
Riki
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« Reply #16 on: July 21, 2011, 09:36:04 AM »
I don't think my first post was my intro post... I wrote one when I came back to the site, but that was after I started HD.. I was here years before, and left, but I don't remember why.. I was still on PD then... I'm going to have to look now...
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #17 on: July 21, 2011, 09:38:26 AM »
@Rerun, Your post really touched me because of the memories of Epoman and LifeOnHold.  Reading that thread made them come back alive for me.
I am really enjoying this thread.  Come on, IHD members, give us the link to your first post!!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Riki
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« Reply #18 on: July 21, 2011, 09:53:48 AM »
Is there a way to search specifically for posts?  When I search my name on this site, I'm getting a lot of posts with words that have my name in them, but not specifically posts by me
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Desert Dancer
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« Reply #19 on: July 21, 2011, 09:57:42 AM »
Quote from: Riki on July 21, 2011, 09:53:48 AM
Is there a way to search specifically for posts?  When I search my name on this site, I'm getting a lot of posts with words that have my name in them, but not specifically posts by me

Riki, click on the 'Profile' button, then on 'Profile Info', then on 'Show Posts', then on 'Topics'. This will bring up all the posts you've started.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
Riki
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« Reply #20 on: July 21, 2011, 10:08:39 AM »
Quote from: Desert Dancer on July 21, 2011, 09:57:42 AM
Quote from: Riki on July 21, 2011, 09:53:48 AM
Is there a way to search specifically for posts?  When I search my name on this site, I'm getting a lot of posts with words that have my name in them, but not specifically posts by me

Riki, click on the 'Profile' button, then on 'Profile Info', then on 'Show Posts', then on 'Topics'. This will bring up all the posts you've started.

Thanks..

This thread holds my first post ever, back when I was still on PD.. There's a lot of names in the thread we don't see anymore.....  http://ihatedialysis.com/forum/index.php?topic=770.msg6828#msg6828

This is my Intro post from back then...  http://ihatedialysis.com/forum/index.php?topic=797.msg6829#msg6829

And this is my Intro from when I came back last year.. http://ihatedialysis.com/forum/index.php?topic=19534.msg331009#msg331009
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
jbeany
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Cattitude
« Reply #21 on: July 21, 2011, 06:39:25 PM »
http://ihatedialysis.com/forum/index.php?topic=1529.msg19502#msg19502

Well, stubborn and sarcastic haven't changed.

When I posted this, I wasn't mentioning on here yet that my husband had already told me he wanted out of the marriage so he could be with his girlfriend.  I wanted to do NxStage, figured I could get set up with it with him as a partner, and then figure out how to manage on my own.  I was afraid to say that we weren't still happily married on any kind of a public forum, for fear my clinic staff would see it and put a halt to my plans.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
MooseMom
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« Reply #22 on: July 21, 2011, 07:20:06 PM »
jbeany, somehow it had escaped my attention you were near Petosky; we vacation up that way most summers.

Gosh, that post was 5 years ago!  I read it with sadness knowing now what was happening between you and your husband. 
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
kitkatz
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« Reply #23 on: July 23, 2011, 03:07:51 PM »
Here is my first post: March 14, 2006.
http://ihatedialysis.com/forum/index.php?topic=392.msg2228#msg2228
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
MooseMom
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« Reply #24 on: July 23, 2011, 09:40:06 PM »
Oh man, kitkatz, it's time for the annual bump of your intro!  I never knew all of those things about you and your story.  Amazing how safe we feel on this site.  You're right...the anonymity can be a real plus at first. 

I can't help but wondering where so many of the past IHD members who responded to all of these first posts have gone.  There are a lot of names that I don't recognize at all.  I know one or two have lost their struggle with ESRD, but maybe others have moved on to happier times.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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