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Nirvat
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« on: June 19, 2011, 07:06:24 PM »

I have been told that, due to HIV & Hep C infection, dialysis will not be effective for me for very long.  A surgeon in Sydney (Dr David Gracey) said that studies have shown that HIV+ patients can expect to get 2 - 5 years benefit from dialysis before that started to fail.

This makes the need for a replacement kidney even more imperative.

Has anyone else ever heard of such a thing and/or can anyone think why dialysis would cease to work after so short a time.
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rsudock
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will of the healthy makes up the fate of the sick.

« Reply #1 on: June 19, 2011, 07:30:12 PM »

Hhhhmmmm I have never heard of this. I hope someone can shed some light on this. I met a mom Tuesday who was explaining to me her daughter was on dialysis for 5 years. I asked about gettting a kidney and mom said, "No we will never get a kidney. She has other major health issues." and I said, "Well what are her other health issues?" She said, "They are to horrible to talk about." The only thing I could really think of is that she may have HIV. I tried to talk to the mom that it wasn't the end but she just didn't want to hear it....but her daughter has been on dialysis for 5 years and seems to be doing well.

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Des
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« Reply #2 on: June 21, 2011, 05:11:55 AM »

I can't see why dialysis won't work for him for longer.

Maybe they are referring to the general health or maybe dialysis removes the HIV meds from the blood.

In South Africa (Cape Town) they transplant HIV kidneys into HIV recipients. We are the first to try that and as far as I can tell from info on google it works.

Hope you can find a better answer.
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Des
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« Reply #3 on: June 27, 2011, 04:28:51 AM »

 :bump;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
texasstyle
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« Reply #4 on: October 23, 2011, 07:52:17 AM »

Not knowing much about how HIV infection would play into it, but there are possible reasons from the Hep C  infection I can think of.  As you know, Hep C damages the liver often resulting in cirrohis. That alone can have complications including low platelet issues, blood pressure issues, etc IF, you have even advanced  that far. About 10 of 100 will get cirrhosis.  My husband has Hep C also. He's been on Dialysis about 4 years now.
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caregiver to husband using in-center dialysis 4 years
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