I hate this diet!!...... yes this is a HUGE RANT!!!!

[rsudock]

My step monster had my father convinced that I had somehow caused my own kidney failure.
That's why I have completely shut them out of my life.... they are dead to me.

aw I am sorry...        

thank goodness I never had to deal with any step monsters!

xo,
R

[Brightsky69]

Speak of the devil and she shall appear.   

I spoke to my mother earlier today and she said the step monster is in the hospital “ailing”
Karma is a b*tch.

[MooseMom]

My step monster had my father convinced that I had somehow caused my own kidney failure.
That's why I have completely shut them out of my life.... they are dead to me.

OMG, I'm a stepmother myself, and yours just feeds into the stereotype of "stepmonster".  That's just horrible.  But shame on your father for believing her.

[Brightsky69]

MooseMom....I could tell you some serious messed up things this woman has done to me...she is just an evil person. period.

[Brightsky69]

No offense to the good step moms out there

[MooseMom]

MooseMom....I could tell you some serious messed up things this woman has done to me...she is just an evil person. period.

Ooooh, do tell!

[Brightsky69]

One of many that comes to mind is.....

My father was all set to get tested to be my 1st kidney donor....19 or so years ago. He had appointment's set up and all.. Over dinner one night my stepmonster said to him (in front of me)  "Why are you gonna waste your kidney on her? If it were my daughter I wouldn't do it!" "Your crazy!"
By the end of dinner my father said to me "Yeah...maybe you should just go on the list."  No kidney donor for me.

My mom ended up being my donor. She said to me "This is no different than if you had the flu and I had to stay up with you all night." "I am just gonna do what i need to to get you better."   

Oh and after I came home to my own apartment to recover from my 1st transplant she never called me or came over to check on me nor did my father. She was PISSED at me because I didn't CALL HER to come over and take care of me.
She would have been the LAST person I called for help.

[MooseMom]

OMG, BrightSky, THAT'S OUTRAGEOUS!!!!!  Really, something is wrong with that woman.  And what's up with your dad agreeing with her?  That's even worse, IMHO.  I mean, you're his daughter!  This is just a shocking story.

[Brightsky69]

I hear ya Moosemom - told ya she was evil. That's why I don't talk to them.

And I am sorry./...I didn't mean to take over here.  Yes!! The renal diet sucks!  Especially the no drinking....I was addicted to ice chips when I was on dialysis.

[Lillupie]

Yes,
 for me righ now it is a struggle. THis horrible diet! I have been on this for four years and this is a nightmare. I cant believe how much food is out there that we are technically not allowed to have. IT is horrible! IT is now to the point that I am hardly eating one meal a day. THe last month I have lost 10lbs, now i only weigh less then 110lbs altogther, and that is with the PD fluid in.! I am not motivated to eat anymore. I mean what is the point there isnt anything that I like I am allowed to have. Im just sick of it all. There is no way I would ever do hemo, if i feel I cant eat anything on PD, there is a lot less food I can have on hemo.
 Sick of the diet, sick of taking the damn pills everytime I eat something. So, I just dont eat. Im not hungry.
Oh well.

Lisa

[KarenInWA]

I have been doing hemo since Apr 22nd, and I haven't really changed too much in my diet. I still need to eat more protein, which I don't mind at all, it's just getting in the habit of it that I'm trying to get used to.  I don't watch my sodium like I should, and that does reflect in my BP and edema, although it appears that the edema is getting better.  As for my K and phos, I've been "playing" with that.  My June lab results for that were wonderful!  My July results crept up on both, but thankfully not to alarming levels.  So now I just need to come to a happy medium.  I admit I was "pushing the boundaries" so to speak to see what would happen.  Now I know.  I get K and phos checked again on Tuesday.

I am a big believer in moderation.  For example, I like trail mix.  I don't eat it all the time, but it is a nice treat.  Costco sells their trail mix in individual servings.  That way, I don't have a big bag to keep eating from.  Once I'm done with the single serving, I'm done.  Heck, I brought Pringles to D last week.  Even asked a nurse if she could get it from my bag for me, since I couldn't reach it.  I didn't eat all of them!  I even shared a few with one of the nurses!

Eating is a joy in life, and one I refuse to give up.  I also happily bring in a bowl of clam chowder most days I do D.  If I didn't, I'd starve and would be shaking at the end of my session.  That's no good!

KarenInWA

[MooseMom]

Yes, I think the diet can definitely be modified to fit your particular needs.  The best thing (and, really, the easiest thing) is to keep an eye on your labs because they will let you know how much you can and cannot eat.

I feel that moderation is the key because it is easier to be better nourished when you consume a wider variety of foods.  I miss a lot of fruits, but I happen to love all berries and actually grow my own strawberries, raspberries and blueberries.  I don't miss the oranges and bananas.

My husband loves his pasta, and that's a bit of a problem with all of the tomato sauces involved.  And of course cheese is a problem.  But if I'm going to allow myself a cheesy treat, I'm going to get myself the most extravagant, smelly cheese possible and not waste PO on cheese that isn't phosphorus-worthy.

I haven't had cola in years and I don't miss it.

I personally think that I will have the biggest problem with fluid restrictions, which is why I am going to do home hemo/nocturnal.  I don't mind the diet, but the idea that one cannot do such a simple thing as drink a glass of ice water goes against all that is human.  That's my personal line in the sand.