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Author Topic: Tomorrow is the day!  (Read 23683 times)
woodsman
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« Reply #75 on: June 30, 2011, 01:18:28 PM »
Today's session went without a hitch!!!!!!!!!!  I was so happy when she said i was all set and running well, I did not even feel the first needle stick this time, the second i felt but was not bad. I am feeling wide awake and i only slept 2 hrs.... I feel there is hope............... I feel good!  :beer1;
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MooseMom
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« Reply #76 on: June 30, 2011, 01:40:39 PM »
Woodsman, I swear to all that's holy that this is the best news I've had all day.  I've been thinking about you today, seeing as it is Thursday, and I am so glad you took the time to come tell us that today was a good day for you!  I'm thrilled to bits for you!! :yahoo;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
woodsman
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« Reply #77 on: June 30, 2011, 03:24:37 PM »
Quote from: MooseMom on June 30, 2011, 01:40:39 PM
Woodsman, I swear to all that's holy that this is the best news I've had all day.  I've been thinking about you today, seeing as it is Thursday, and I am so glad you took the time to come tell us that today was a good day for you!  I'm thrilled to bits for you!! :yahoo;

Thanks for caring MM, Yep today was the best day yet. I hope every one will be this good. Right now i am celebrating with 4 chicken wings made right here in Buffalo ,NY.  !!!!YUMMY!!!
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lmunchkin
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« Reply #78 on: June 30, 2011, 06:48:56 PM »
Oh wow, "Hot" ones I suppose!  I haven't had chicken wings in years!  We use to go to "Hooters" which is a sports bar, and just go to town on really hot wings.  They were sooooo good!

Great to hear your days are getting better!  lets hope it continues!


lmunchkin       :flower;    :cheer:
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
boswife
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us and fam easter 2013
« Reply #79 on: June 30, 2011, 09:12:21 PM »
 :2thumbsup;  So great to hear.. What a feeling when things are right!!  This will soon be your norm,  Glad your on your way
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
AguynamedKim
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« Reply #80 on: July 01, 2011, 12:30:08 AM »
Fantastic to hear it went well, Woodsman!  May they all be this good or better.
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Pre-dialysis - Intro: http://ihatedialysis.com/forum/index.php?topic=20344.0
woodsman
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« Reply #81 on: July 02, 2011, 03:28:14 PM »
Today 4 needles and plenty of pain but they got in in just under 10 minutes.. it's just got to get better  right??
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boswife
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us and fam easter 2013
« Reply #82 on: July 02, 2011, 04:36:04 PM »
 :2thumbsup; on under 10 min  ;D And YES it will get better!  Treatment went well?
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
woodsman
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« Reply #83 on: July 06, 2011, 02:58:50 PM »
Had a angiogram today to clear vein in my arm, hopefully this will make dialysis better in the am.....
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okarol
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« Reply #84 on: July 06, 2011, 05:34:45 PM »
 :grouphug;
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MooseMom
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« Reply #85 on: July 06, 2011, 10:39:22 PM »
I didn't realize you were having this sort of problem.  Well, let's see...it is just now turned Thursday, so I'm assuming you'll be dialyzing today.  Let us know how it goes.  I'll be thinking of you.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
woodsman
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« Reply #86 on: July 10, 2011, 11:58:35 AM »
all went well no issues and just a bit of pain... :bandance;
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MooseMom
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« Reply #87 on: July 10, 2011, 03:39:09 PM »
Quote from: woodsman on July 10, 2011, 11:58:35 AM
all went well no issues and just a bit of pain... :bandance;

Ok, it's about damn time that you have a session that's uneventful.  Keep it up, OK?  Have you thought about self-cannulation?  I've probably asked you that before, and if I have, my apologies for being redundant.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
AguynamedKim
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« Reply #88 on: July 10, 2011, 08:03:57 PM »
I'll dance to that, Woodsman!  :bandance;
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Pre-dialysis - Intro: http://ihatedialysis.com/forum/index.php?topic=20344.0
woodsman
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« Reply #89 on: July 12, 2011, 02:49:44 PM »
Hold off on the dancing.... Today i was once again infiltrated and 5 needles later they had me hooked up. I am at the end of my rope here and i think it may be time to make a decision as to what i want to continue to do here. IF they could only get the needles placed the 1 st try i would be fine with this but i just don't know how much more i can take with all the poking and digging around to get me hooked up. My quality of life is fading fast i feel and just the thought of thinking about the next day and will it go okay or not is wearing thin. One needle stick lifted me completely out of the chair like they hit a bone or something, i have not felt pain like this ever in my life.......................... decisions decisions...........    :Kit n Stik;
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monrein
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« Reply #90 on: July 12, 2011, 02:50:47 PM »
 :grouphug;   
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
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MooseMom
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« Reply #91 on: July 12, 2011, 05:04:32 PM »
Oh Woodsman, this is terrible news.  I had really hoped you'd be past this type of problem by now.  I know infiltrations are sorta part of it all, but your experience seems way out of the norm.

When you speak of making decisions, what are the options that you are considering?  Are you talking about incenter vs home hemo, or are you talking about staying incenter but learning to self-cannulate?

Do the nurses have any explanation for why this is happening so often?  This really is not acceptable, and it cannot continue.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
woodsman
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« Reply #92 on: July 12, 2011, 07:14:19 PM »
Quote from: MooseMom on July 12, 2011, 05:04:32 PM
Oh Woodsman, this is terrible news.  I had really hoped you'd be past this type of problem by now.  I know infiltrations are sorta part of it all, but your experience seems way out of the norm.

When you speak of making decisions, what are the options that you are considering?  Are you talking about incenter vs home hemo, or are you talking about staying incenter but learning to self-cannulate?

Do the nurses have any explanation for why this is happening so often?  This really is not acceptable, and it cannot continue.

MM i'm thinking of all options including stopping and allow the cards to fall where they may. At this point i am really thinking this may be the way to go..........  IJDK
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rsudock
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« Reply #93 on: July 12, 2011, 07:53:18 PM »
NO Woodsman don't stop please! I know you are in a really dark place right now and getting stuck multiple times is hell, but it will get better. If worse comes to worse put a catheter in so you can get relief from the needles and let the fistula heal a bit more. Please don't go to that dark place...I've been there and done that....you are going to make it through I know it!! Sending you a hug!  :cuddle;

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
cariad
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« Reply #94 on: July 12, 2011, 08:45:08 PM »
Quote from: woodsman on July 12, 2011, 07:14:19 PM
MM i'm thinking of all options including stopping and allow the cards to fall where they may. At this point i am really thinking this may be the way to go..........  IJDK

Oh, this makes me so sad to read. From what I've seen of your story and your family, there would just be too many people who would miss you for you to contemplate quitting now. Please exhaust all other options first. There have to be answers out there for you. Thinking of you.  :grouphug;
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MooseMom
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« Reply #95 on: July 12, 2011, 09:24:53 PM »
Quote from: woodsman on July 12, 2011, 07:14:19 PM
MM i'm thinking of all options including stopping and allow the cards to fall where they may. At this point i am really thinking this may be the way to go..........  IJDK

I think you DO know that it really is just waaaaaay to early to be thinking along those lines.  I know that it must be really frustrating to say the least, but there are plenty of options you can explore first.  This is despair talking, and despair can sometimes just scream.

Is there anything wrong with your fistula?  I mean, is it really weird and unaccessible or something?  Or are the nurses just that incompetent?  If a specific problem can be identified, then it can surely be rectified.  Maybe you should think hard about learning to stick yourself as I have heard that this is the single best way to prevent infiltrations.

Thinking of your situation really makes me sick...I mean that quite literally; it makes me queasy to imagine the dread you must feel when a dialysis day comes around.  I'll be very interested to hear what kind of options are open to you and which decisions you make, and why, but I don't think you are anywhere close to giving up.   :cuddle;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
boswife
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us and fam easter 2013
« Reply #96 on: July 12, 2011, 09:48:18 PM »
I cant just ignore this but i dont know what to say  :'(  Im horrified that your going through this and wonder too if it's incompitance or you need more work on your fistula, or even a cath for a while would be better than what your going through.  It sickens me.  Really sickens me.  It's just not right and something needs to be done to fix it.  Im so sorry you have to go through it and dont deserve to and i  :pray; for comfort and resolve to this for you.  Please hang in here with us.  Cant they give you the 'shot' before they stick?  Hubby did that a few times and felt NOTHING!  I do hope deeply that this is going to be a thing of the past real quick. Im sorry woodsman :(
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Pam
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« Reply #97 on: July 13, 2011, 08:36:47 AM »
Woodsman.........Does the happen with all of the techs? If it is happening with just a couple you have the right to refuse care from a bad tech. Pick the best one and demand that they are the one to hook you up. As a dialysis patient you have more rights than they will tell you.
Pam
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woodsman
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« Reply #98 on: July 13, 2011, 11:33:55 AM »
Hi all and first let me apologize for yesterdays rant, i was working on 1/2 hour sleep in 28 hrs and i have a cold to boot... I am not giving up. I was so tired and frustrated with all this i was overwhelmed... My nurse is good my fistula seems to be the issue, she does everything possible to lessen the pain but the 2nd needle is the one giving all the problems. The 1st needle i hardly feel anymore. I think as it matures it will get better if no then maybe PD or a cath in in my future... again i apologize for my moment of weakness yesterday. I am going to remain strong and beat this thing one day at a time...................... :beer1;   Thanks to you all for the support..
« Last Edit: July 13, 2011, 11:39:00 AM by woodsman » Logged
MooseMom
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« Reply #99 on: July 13, 2011, 01:24:58 PM »
Being overwhelmed and having a rant is hardly "weakness".  It's just common.

But I think you may well be right when you say that things should get easier as your fistula matures and gets stronger with use.  But there is no doubt that the transition onto D is extremely difficult even at the best of time.

Sure, you will be strong and take things one day at a time, but for the times you falter, well, that's what we are here for.  Don't beat yourself up over it. :cuddle;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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