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I Hate Dialysis Message Board
Dialysis Discussion
Dialysis: Pre-Dialysis
Tomorrow is the day!
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Topic: Tomorrow is the day! (Read 23671 times)
woodsman
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Tomorrow is the day!
«
on:
June 13, 2011, 01:46:44 PM »
Well folks after decades of fighting off this kidney failure i begin dialysis at 6am tomorrow morning. I am so not looking forward to this day but i have little choice. I always thought it would hold off another year then another but now the time has come for me to man up and get this thing done. The thought of sitting in that chair for 3+ hrs drives me nuts when i could be doing thinsg around the house. I fear these things will not get done as i will have limited time with working/driving 120 miles to and from work/ sleeping, it really limits my time working my 11 acres.... I don't even know what i should wear? something comfy? dress pants and shirt so i don't look like a bum... do i take my pills and potassium binder no one has said. What did you do the first time???
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MooseMom
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Re: Tomorrow is the day!
«
Reply #1 on:
June 13, 2011, 02:14:46 PM »
I don't have any practical advice, but I wanted to tell you that I...well, I don't know what to say. I'm pretty much in the same boat as you are in, and I guess that soon I will be where you are tomorrow, so I have all the sympathy in the world for you.
Many people have told me that the reality of D is not nearly as bad as the anticipation of it, so I will pass that on to you in an effort to say something of value.
Good luck. If you have the time and the inclination, please do report back to us about how it all went.
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
willowtreewren
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My two beautifull granddaughters
Re: Tomorrow is the day!
«
Reply #2 on:
June 13, 2011, 02:34:43 PM »
Wear comfy clothes that allow access to your access!
Take a blanket, too. Dialysis cools you down and they keep the temps in the centers comfortable for the workers, not the patients!
Take a book to read or your iPod for music. In fact take anything you think you might need to occupy your time so you won't be sitting just thinking about having to sit there.
Carl found all sorts of ways to keep himself busy during dialysis.
Also, they will probably have you sign all sorts of papers. Make sure you know what you are signing and make them slow down if they are going too fast. In fact, I would ask for copies of everything you sign! They may not like that, but it really is your right to have copies.
I hope you start feeling better once your blood is getting cleaned of toxins.
I'll be thinking of you!
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
kristina
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Re: Tomorrow is the day!
«
Reply #3 on:
June 13, 2011, 04:10:00 PM »
Good luck, woodsman !
I'll be thinking of you and keep my fingers crossed.
Best wishes from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
He was completion and fulfillment in itself, like a meteor which follows its own path.
- Robert Schumann -
... Oportet Vivere ...
boswife
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us and fam easter 2013
Re: Tomorrow is the day!
«
Reply #4 on:
June 13, 2011, 06:07:51 PM »
Well woodsman, i wish no one had to do it but........... you'll be ok. REally, hubby's only issue was being away from me
so we finally brought him home and that solved that! Now, we miss the friendlyness of the center and our friends there so ya cant win for loosen. Make it the best ya can because it* is what it is*, and alot of it is attitude. I know my hardest part would be that same thing as you. My mind would be on all that needs/wants doing at home, but ya may just enjoy the 'time off' once you get used to the have to's of it. I wish you well, and am hoping to hear good feelings from you tomorow. Give yourself the liberty to settle with it and hopfully, it'll just make ya feel better, and thats a good thing
All my best wishes and
for a good/great start..
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
natnnnat
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Re: Tomorrow is the day!
«
Reply #5 on:
June 13, 2011, 06:21:10 PM »
Good luck woodsman!
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient:
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.
Over the years: skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.
2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.
http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Rerun
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Going through life tied to a chair!
Re: Tomorrow is the day!
«
Reply #6 on:
June 13, 2011, 08:34:50 PM »
It will be cold so take a blanket or 2. If you have a catheter wear a button down shirt so they can get to it. If it is a fistula wear short sleeves. Take a book or a movie if you have a protable DVD player. Some places let you eat a snack and some don't. Take a small bottle of water. Take your cell phone.
Best of luck. I'm sorry you have to give in to this, but we want you around.
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kellyt
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Re: Tomorrow is the day!
«
Reply #7 on:
June 13, 2011, 08:44:45 PM »
Good Luck, Woodsman. We're with you in spirit. I've only visited in two dialysis units and I thought they were cold. I know that those machines can really heat up a room, so they keep the temp very low.
Also, as mentioned above, I'm sure dialysis can mess with your body temp, as well. Once your body and mind adjusts to the time you'll get back in the swing of things. That is my prayer for you.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!
tyefly
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This will be me...... Next spring.... I earned it.
Re: Tomorrow is the day!
«
Reply #8 on:
June 13, 2011, 09:42:55 PM »
I was scared my first time in ....I have never seen the inside of a D clinic.... take a blanket and something to read... Ipod.... but I know you will spend alot of time looking around and watching.... watch everything... relax.. and most of all try to sleep tonight........Good luck to you ...
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IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir
The clearest way into the Universe is through a forest wilderness.
- John Muir
Des
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Re: Tomorrow is the day!
«
Reply #9 on:
June 14, 2011, 12:25:33 AM »
All I can say is Good luck my friend.
I had my IHD team as well looking after me and assisting me every step of the way. (just over 'n year ago)
We are here for you so hurry up and come and share your experience with us.
Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
rsudock
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will of the healthy makes up the fate of the sick.
Re: Tomorrow is the day!
«
Reply #10 on:
June 14, 2011, 03:13:46 AM »
thinking of you....
xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
looneytunes
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Wishin' I was Fishin'
Re: Tomorrow is the day!
«
Reply #11 on:
June 14, 2011, 05:43:23 AM »
Hope all went well, Woodsman. I'm thinking of you.
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"The key to being patient is having something to do in the meantime" AU
texasstyle
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Re: Tomorrow is the day!
«
Reply #12 on:
June 14, 2011, 06:16:26 AM »
I thnk you wil be suprised how smoothlyit will go. It's always the fear of the unknown. After today, you wil lknow! Let us know how you made out.
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caregiver to husband using in-center dialysis 4 years
billybags
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Re: Tomorrow is the day!
«
Reply #13 on:
June 14, 2011, 06:45:32 AM »
I hope you got on OK, it is scary stuff to start with but you will be fine, trust me.
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carol1987
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Re: Tomorrow is the day!
«
Reply #14 on:
June 14, 2011, 06:59:39 AM »
thinking of you woodsman!!!
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Diagnosed with PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
woodsman
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Re: Tomorrow is the day!
«
Reply #15 on:
June 14, 2011, 01:39:00 PM »
I made it through without a hitch. I must say that i was overwhelmed at first but all in all it was not as bad as i thought it would be. People were very nice both patients and staff place was spotless and COLD i will bring a blanket on thursday. I am at work now until midnight and i am so tired.......... OH i don't like them needles one bit!!!.. Thanks to you all for the support it's been a lifeline for me...
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willowtreewren
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My two beautifull granddaughters
Re: Tomorrow is the day!
«
Reply #16 on:
June 14, 2011, 02:06:46 PM »
We TOLD you to take a blanket!
Glad it went all right. Did you use cream to help with the needle sticks? And I hate to tell ya, but they started you out with the SMALL needles!
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
woodsman
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Re: Tomorrow is the day!
«
Reply #17 on:
June 14, 2011, 02:15:17 PM »
I did not take a blanket but you can bet i will on thursday... I know they told me the needles were smaller to start but they sure don't look it... I do have some of that cream now and i will try that and see if it works.
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boswife
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us and fam easter 2013
Re: Tomorrow is the day!
«
Reply #18 on:
June 14, 2011, 02:41:43 PM »
Im so glad that first one is over with. Still may be scarry for a bit, but at least you know whats commen. For hubbys start up, they did the lidocane shots to help out with the 'big' ones.. Was that not offered to you? He only used for a while as his 'new' friend (fello D guy) teased him about it so they laughed and challanged him and he found it to not be needed. We did use again when i started 'sticking' him for home hemo as i was soooooo scarred myself and so we figgured if i didnt have to watch him mabie hurt because i didnt know what i was doing, it may make me calmer. It did,,, sooooooo what im saying is, mabie you would want to give that a try for a bit till your more used to it??? Im so glad you have this place to talk too. Wish i had ben so blessed
will be looking forward to hearing your next 'run', and the tiredness at work will hopfully subside as well!! Im surprised ya didnt take it off at least the first time.. Geesh!!
Heres to the worst one down, and easier ones to come
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
MooseMom
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Re: Tomorrow is the day!
«
Reply #19 on:
June 14, 2011, 02:44:16 PM »
Oh, I've been waiting all day to see you back on the board with a full report. I am so glad that things went well in spite of the fact that, well, needles were involved. I knew you'd be terrific, so congratulations on getting through a very, very difficult day. I'm hoping that each time will get easier as you work out what your specific comfort needs are.
Thanks so much for coming on and telling us about your day. When will the needles get bigger?
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
Cordelia
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Re: Tomorrow is the day!
«
Reply #20 on:
June 14, 2011, 03:03:23 PM »
Definitely, wear something comfy, it ain't a fashion show! LOL!
I watch a little TV, read a book, llisten to my mp3 player, have a visitor once in awhile, ---visitors, IF and I say I
F
family/ friends will come in and visit while youre on the machine (some people don't want to because its bothersome seeinga loved one like this) it
definitely
passes the time a heck of a lot quicker, at least that's been my experience.
Try to think of the positive-I used the time to read, listen to music/ to listen/talk to people that before I took for granted. Sitting for 4 hours has made me look on the positive side of things and to help me to think not so negatively.
The biggest hurdle is accepting. Once you get past that, it's so much easier. After being on dialysis almost a whole year, I kind of enjoy going in and talking to the nurses and staff, I get along with them pretty good and I enjoy them, I wouldn't have it any other way!
I wish you all the best!
«
Last Edit: June 14, 2011, 03:05:57 PM by Cordelia
»
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs, Mom to 3 kids to twin daughters (One that has PKD) and a high-functioning Autistic son
AguynamedKim
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Re: Tomorrow is the day!
«
Reply #21 on:
June 14, 2011, 05:46:07 PM »
Really glad things went relatively well, Woodsman. Keep us posted.
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Pre-dialysis - Intro:
http://ihatedialysis.com/forum/index.php?topic=20344.0
willowtreewren
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My two beautifull granddaughters
Re: Tomorrow is the day!
«
Reply #22 on:
June 14, 2011, 06:31:49 PM »
Boswife,
When Carl forgot the cream it FREAKED ME OUT! Eventually he just stopped using it (tough old bird
)
Moosemom, with Carl they used one size needle for a week before moving up to the next size. I imagine the protocols are a bit different in different clinics.
Cordelia, our clinic did not allow visitors in the dialysis area.
That would sure have been nice. Of course, as soon as possible we took the whole process home with NxStage.
Aleta
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
Cordelia
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Re: Tomorrow is the day!
«
Reply #23 on:
June 14, 2011, 08:24:37 PM »
Oh, no, I'm so sorry to hear that visitors weren't allowed in your unit, Willow, friends and family support is vital, it's very much encouraged in my unit, it's a satellite unit and the atmosphere is just lovely. My Mom comes to visit me every Thursday, I look forward to it, it really helps to pass the last 1.5 hrs quicker. The social worker in the unit also likes to chat and I really enjoy her company too, sometimes we chat for over an hour. So if my Mom and the social worker come on the same day I know I'll sail through the morning much quicker!
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs, Mom to 3 kids to twin daughters (One that has PKD) and a high-functioning Autistic son
Des
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Re: Tomorrow is the day!
«
Reply #24 on:
June 15, 2011, 12:49:41 AM »
Welcome to the "club"
I am glad it went ok.
Just ask away. We (IHD) are here for you - as always.
SO PROUD OF YOU !!!!!
Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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