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Author Topic: OOOUUUCCCHHH!!! Leg Cramps...  (Read 6171 times)
miket
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« on: June 13, 2011, 10:32:35 AM »
Do you guys ever wake up in the middle of the night because it feels like a knife was driven into your calve? Well this happened to me like 5-6 times in the same leg. I could barely walk for the rest of the day it hurt so bad. I guess it's a muscle spasm or something, please help me jedi PD'ers or even you hemos. THANKS!
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tyefly
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This will be me...... Next spring.... I earned it.
« Reply #1 on: June 13, 2011, 11:27:53 AM »
I hate those....  I only got calf cramps a few times... mine were in the big thigh muscle....  and seems like it would last for 10 min.....  I dont miss those....  I use to get those when I went in center and then at night....  I believe it was because I was too dehydrated....   When I use to take lasix  ( water pill ) I would get them nightly ....  I learned to lay completely straight and never   never been my knees...   I dont get cramps any more..  now that I am doing my own dialysis I am carefull not to take too much off.... no point in having those or low BP....  I have not had a cramp in well about two years now....  maybe try not to take too much water off... and keep those legs straight....LOL
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Cordelia
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« Reply #2 on: June 13, 2011, 11:58:58 AM »
Oh yes, veeeeeery painful! They don't happen as much now that I'm on dialysis but just recently I had one after dialysis and it came on super suddenly, OMG, they hurt so bad! It literally felt like someone was twisting my leg!
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
sullidog
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« Reply #3 on: June 14, 2011, 08:23:19 PM »
I know what you mean! got them pre dialysis, but don't anymore.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
Ang
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« Reply #4 on: June 15, 2011, 01:00:54 AM »
got them semi regularly,not anymore though :clap;

i guess transplant is a cure
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live  life  to  the  full  and you won't  die  wondering
Stoday
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« Reply #5 on: June 15, 2011, 09:07:38 PM »
I sometimes get them during the night following hemodialysis (I'm on twilight). It happens when they take too much fluid off so I'm down below my "dry" weight.

(I've got my dry weight set to the level which just avoids cramps).

I also tend to cramp during dialysis if I have more than 3.3 liters to take off. It rather depends on the profile. The profile that suits me best is one that fluctuates up & down, with an overall trend down to the end of the session.
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
Rerun
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Going through life tied to a chair!
« Reply #6 on: June 15, 2011, 09:13:08 PM »
Buy a liter of Tonic Water at the Grocery store.  It is about 88 cents.  It contains Quinine which is a muscle relaxer.  Just drink a cup every night and see if that helps.  It does me. It does not taste very good, but who cares if it works for you.

They use to give dialysis people Quinine Tablets but they won't give them to us anymore.  They never said why, just that the FDA said it was only for malaria.

     :waving;
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