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Author Topic: The Good, the Bad & the Fabulous (News, That Is)  (Read 3216 times)
peleroja
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I have 16 hats, all the same style!
« on: May 06, 2011, 06:51:01 AM »
The Good: Yesterday I had my surgery for what I thought would be a fistula, but my veins are garbage, so they gave me a graft instead.

The Bad: Duh, I got a graft instead of a fistula.  Have heard not so good things about grafts.  Also, it looks like the entire cast of DWTS have tap danced their way all over my left arm!

The Fabulous: My back/spine doc finally found something to work on my back/sciatica pain.  Apparently Methadone in high doses helps narcotics addicts, and in small doses (like my 5 mg) is great for pain.  Not only did it help with my back pain, it seems to be doing wonders for my knee pain as well.  Who knew?  Once the mini pain from the arm heals, I will be the happiest of campers!!!!!
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boswife
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us and fam easter 2013
« Reply #1 on: May 06, 2011, 04:09:04 PM »
Well POOP on that bad part of the news!!!  Im glad it's done already, but sorry it isnt how you would have prefered!!  BOO!  But!!!!!!!!!! i am glad for the Pain reliefe.  It's wonderful when they find an answer to a need!!  I'll be so glad when your 'back on the road' so to speak, and   ;D on with life  :flower;  all the best to you and hurried healing   :cuddle;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Jean
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« Reply #2 on: May 07, 2011, 12:45:14 AM »
Wow, methadone for sciatica, what a relief to be out of pain again. That is Fabulous!!! However, the graft, I guess that is maybe not bad, but not so fabulous either. Best wishes to you. How long can you take the methadone??
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One day at a time, thats all I can do.
galvo
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« Reply #3 on: May 07, 2011, 01:12:33 AM »
Good luck with all of the above!
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Galvo
peleroja
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I have 16 hats, all the same style!
« Reply #4 on: May 07, 2011, 09:31:39 AM »
Quote from: Jean on May 07, 2011, 12:45:14 AM
How long can you take the methadone??

Don't know about the Methadone.  Doc also gave me Nortriptyline and said to start taking it a week after the Methadone. The Nortriptyline is actually the one for the sciatica, but the Methadone also helped.
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Kay
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« Reply #5 on: May 07, 2011, 10:17:02 AM »
Hi Peleroja,
After all you have been through time to treat yourself   -  maybe a new hat!
Hope you find your way through all the pain and that the graft does its job well.
Enjoying  a beautiful evening by the sea - just off to help my husband with his CAPD.
All the best,
Kay ;)
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jbeany
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Cattitude
« Reply #6 on: May 07, 2011, 11:05:40 AM »
Well, I think the good news outweighs the bad!  Pain relief now is much better news than possible graft issues in the future.   I've got a graft, and it lasted the entire time I was on D - 2006 to 2009 - even when the docs said I'd be lucky to get a year or two out of it.  Kitkat had hers for about 8 years, I think.  Hopefully yours holds up for far longer than expected, too.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
kristina
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« Reply #7 on: May 07, 2011, 01:22:51 PM »

Hello, peleroja,

I do hope your graft will last a long time.

Good luck and best wishes from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
kitkatz
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« Reply #8 on: May 08, 2011, 11:58:58 AM »
My graft lasted ten years, I hope yours goes as long.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
sullidog
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« Reply #9 on: May 08, 2011, 08:28:19 PM »
I have a graft. It is a year old, I just recently got a new surgeon that fixed it all up and runs like a champ now!
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
AguynamedKim
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« Reply #10 on: May 08, 2011, 10:11:44 PM »
I hope the graft goes well and very happy the methadone helps.  One of the supplements I'm taking to be renal protective is actually used more often to treat neuropathy, particularly sciatica pain. It's benfotiamine and there's some information here about it: http://www.benfotiamine.org/index.htm if you're interested in researching it. It's basically a potent form of the vitamin B1 so it's nothing crazy like tiger blood or unicorn horn. RightSide is the one that tipped us off to it.  I've personally cleared taking it with my GP.
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Pre-dialysis - Intro: http://ihatedialysis.com/forum/index.php?topic=20344.0
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #11 on: May 13, 2011, 04:45:10 PM »
hugs!  :cuddle;


xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
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