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Author Topic: Giving up! Hopeless!  (Read 5744 times)
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #25 on: April 26, 2011, 08:53:12 PM »
Des,
 How are things going? Any news? I am thinking about you...

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Des
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« Reply #26 on: May 03, 2011, 05:50:33 AM »
The donor is trying to phone the doc, because she hasn't actually spoken to him (just the transplant co-ordinator)

She remains hopefull (I am not)  :'(
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
monrein
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Might as well smile
« Reply #27 on: May 03, 2011, 06:02:49 AM »
Hope can be contagious Des.  I hope you catch it from her but either way, I'm sending you hugs and I'm staying hopeful.   :cuddle; :cuddle; :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Des
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« Reply #28 on: May 03, 2011, 06:06:41 AM »
Thanks,

I know that this hopelessness (hope there is such a word) won't last long. (it better not as I am driving myself mad)

 :thx;
Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Brightsky69
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« Reply #29 on: May 03, 2011, 06:10:40 AM »
Don't give up hope.   They told me it would be a 5 to 7 year wait for a kidney.....I got one after 2 years. Never mind what they say...they don't know.

http://youtu.be/2yMpCZG019w 
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
HouseOfDialysis
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Search me on Facebook ronaldhouse@gmail.com

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« Reply #30 on: May 03, 2011, 06:21:08 AM »
Keep hoping for the best. Stay strong!
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Diagnosed with Alport Syndrome in 2004.
AV fistula surgery June 9th, 2010.
PD Catheter surgery February 7th, 2011.
Began CAPD on February 21st, 2011.
Began CCPD on April 29th, 2011.
On Transplant List since June 2010.
thegrammalady
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« Reply #31 on: May 03, 2011, 06:33:06 PM »
i've been avoiding the computer along with almost everything else so this is the first i've heard of this. keep your head up (well hold it for you) know you are loved and the only way to go from here is up!!!!!!!!!!!!!!!!
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s
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Des
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« Reply #32 on: May 03, 2011, 11:48:02 PM »
I found this in a book:

"In this life you are either
Busy living or busy dying.
The difference is hope  ."
-The Shawshank

Now I know why my hope is gone - because I feel like I'm dying.  :flower;
 
Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Jean
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« Reply #33 on: May 04, 2011, 12:00:49 AM »
Ahhhh, Des, honey, so sorry to hear this news. Have not seen you in FB in forever. Please keep your chin up and get back in to the swing of things. Know that you are loved by many people, and dont give up!!
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One day at a time, thats all I can do.
Chris
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« Reply #34 on: May 04, 2011, 11:28:42 AM »
Quote from: Des on May 03, 2011, 11:48:02 PM
I found this in a book:

"In this life you are either
Busy living or busy dying.
The difference is hope  ."
-The Shawshank

Now I know why my hope is gone - because I feel like I'm dying.  :flower;

Great Movie!
Morgan Freeman does that quote in his great voice.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
willowtreewren
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My two beautifull granddaughters

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« Reply #35 on: May 04, 2011, 01:58:22 PM »
Des,

We are all dying. The important thing is to LIVE until the time comes to slip away.

LIVE,  :flower; live,  :flower; live.

 :grouphug; :grouphug;

Sending all sorts of loving vibes.

 :bestwishes;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Chris
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« Reply #36 on: May 04, 2011, 04:37:27 PM »
I wish the surgeon would call back your donor, that just seems rude after many day's. I can expect a day or two due to their busy scheadule, but comeon, have some decency to call someone back to answer an important question.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
texasstyle
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« Reply #37 on: May 05, 2011, 05:10:46 AM »
Miracles do happen ya know!
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caregiver to husband using in-center dialysis 4 years
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #38 on: May 13, 2011, 03:09:50 PM »
Quote from: Des on May 03, 2011, 11:48:02 PM
I found this in a book:

"In this life you are either
Busy living or busy dying.
The difference is hope  ."
-The Shawshank

Now I know why my hope is gone - because I feel like I'm dying.  :flower;
 


Des I am thinking about you often and how sad you must feel to be so close to having a second chance. I know I would be a hot mess right now too! But sometimes when I lose faith and hope, and feel like the machine is draining my life away, I remind myself of a couple of things....

1. No one is promised a tomorrow.

2. Some people live a whole lifetime and never really live. Instead of asking "why me" think "why not me." Without suffering there would be no compassion.

I know this is hard to remember and it is difficult to keep your chin up, when you are low in a valley, but I believe in you, in your donor, and in miracles. Hang tough friend!

xo,
R
Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
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