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babycake
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« on: April 08, 2011, 09:12:39 PM »

not sure if anyone has ever noticed this or has experienced this

i have had problems with my hearing for a number of yrs
 and i finally got my 2nd hearing aid and boy that blows my mind
i was sitting in the ear doc office waiting on my ride and my daughter text me
 and i heard that so loud geeze did anyone else hear that........LOL

any how i have a book  called chinese healing secerts
where it states that if you have issue with your kidneys
you will most likey have issue with your hearing
that i found very much interesting



Edited: Moved to proper section - okarol/admin
« Last Edit: April 08, 2011, 11:08:40 PM by okarol » Logged
jbeany
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« Reply #1 on: April 08, 2011, 09:18:05 PM »

Huh, that's not one I've heard or seen mentioned.  I don't find it very surprising, though - after all, the kidneys control so much, when they screw up, it's a domino effect to things you wouldn't consider at all.  If my neuropathy can make me throw up on a regular basis, there's no reason to suppose nerve damage couldn't effect my hearing.

Of course, it could just be the crappy headphones they provide for the tv's at the Dialysis center.... ;D
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« Reply #2 on: April 08, 2011, 11:23:55 PM »

A friend of mine - a long term CKD patient - has lost hearing in one ear, and was told it's related to her kidney disease.
I found this online:

Impaired kidney function linked to hearing loss
by Jyoti Pal - October 3, 2010             

Hitherto an impaired kidney function signaled an impending risk for stroke or heart disease. But according to the findings of a new study, older adults with sluggish kidneys may require a screening for hearing loss too.
 
The study, published in the American Journal of Kidney Disease, reveals that older individuals suffering from moderate chronic kidney disease (CKD) are more likely to suffer from hearing problems vis-ŕ-vis healthy counterparts.

Details of the study
For the study, researchers from the Universities of Sydney, Melbourne and Macquarie assessed medical records of 2,564 people, aged 50 and above.

Nearly 513 participants were diagnosed for moderate CKD.

The problem of hearing loss was predominantly higher among patients with CKD, the researchers found.

Around 54.4 percent of the patients with CKD reported suffering from some degree of hearing loss, as against 28.3 percent patients with no kidney problems, researchers revealed.

Moreover, severe hearing loss condition was found to affect 30 percent of the CKD patients as against 10 percent of patients with healthy kidneys.

"Hearing loss is commonly linked to syndromal kidney disease. However, this study suggests a strong tie to CKD in general," Professor David Harris, study’s co-author from Sydney Medical School in Australia, said.

What causes the link-up
"The link can be explained by structural and functional similarities between tissues in the inner ear and in the kidney," Harris explained.

"Additionally, toxins that accumulate in kidney failure can damage nerves, including those in the inner ear. Another reason for this connection is that kidney disease and hearing loss share common risk factors, including diabetes, high blood pressure and advanced age," he added.

Moreover, some treatments for kidney function can affect hearing, researchers noted.

"Some medications used to treat kidney issues include information on how much they contribute to hearing loss," Dr. Robert Hopkin, researcher of genetic disorders at Cincinnati Children's Hospital Medical Center, said. "People need to pay attention to that."

"These findings could lead to a modification of the usual care of people with CKD," Dr. Kerry Willis, Senior Vice President of Scientific Activities at the National Kidney Foundation, averred.

"If you have kidney disease, you should consult your doctor about testing for hearing," Harris recommended. "It's a simple test, but will help you to take special care if you do have a hearing impairment."

"Earlier clinical hearing assessments and fitting of hearing aids in CKD patients can improve quality of life and lead to better management of underlying conditions which could, in turn, potentially preserve hearing function," he added.

http://www.themedguru.com/20101003/newsfeature/impaired-kidney-function-linked-hearing-loss-86140697.html
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Darthvadar
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« Reply #3 on: April 09, 2011, 12:13:47 AM »

Yes!...

Mum's hearing's dreadful since CKD... On the plus side, she doesn't hear me swear so often!!!!.... :rofl;

Love to all...

Darth...
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Sugarlump
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« Reply #4 on: April 09, 2011, 03:25:25 AM »

Thats very interesting because I've been struggling to hear quietly spoken people on the phone lately and when in a noisy environment...
Another bit of me failing to work properly !! If I were a car, I'd have been took to the scrapyard by now!  ;D  ;D  ;D
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Stoday
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« Reply #5 on: April 09, 2011, 04:02:16 AM »

I have to wear a hearing aid except for 1 to 1 conversations.

I had a hearing loss before CKD. Now I have noticed that my hearing has deteriorated somewhat since starting dialysis. Or maybe it's because I'm a year older...
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
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Sugarlump
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« Reply #6 on: April 09, 2011, 04:14:10 AM »

When I reached 39 I started deducting a year each year rather than adding them on may soon be 21 again  ;D
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
kristina
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« Reply #7 on: April 09, 2011, 05:15:25 AM »


I have also noticed that my hearing deteriorated a little, but I am not in any trouble with it yet.

But I have certainly have noticed that my eye-sight has deteriorated very badly.

Of course, this might be age-related, or partly age-related,
or it might be entirely due to my pre-Dialysis kidneys functioning only 10-12%.
 
If I am lucky to re-gain some of my kidney-function it will be interesting to see if my eye-sight improves,
because when my kidneys first failed in 1971 I needed glasses straight away as a result
and my eye-sight only recovered fully, as soon as my kidneys started to function a little better again.

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Sugarlump
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10 years on and off dialysis

« Reply #8 on: April 09, 2011, 05:47:35 AM »

My eyesight has also deteriorated the last 7 years for me, particularly in dim light and being able to read small print (esp in the computer)...
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Stoday
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« Reply #9 on: April 09, 2011, 04:42:44 PM »

My eyesight has also deteriorated the last 7 years

EVERYONE who's over 50 starts to lose ahe ability for their eyesight to accommodate. Small muscles in your eye automatically adjust the shape of a structure called the lens and that allows you to focus anywhere from infinity to ten inches or less. With age, the lens becomes less flexible and you gradually lose your ability to focus. This is called presbyopia. The nearest point at which you can focus gradually moves further out, and when it gets so far away that you can't read or even look at things at arms length, you need corrective lenses.

Sugarlump says she's near to 21 when she subtracts a year from 39. We can now confirm Sugar's true age as 50 + 7 = 57, which is 21 in her subtracting from 39 age method.  :rofl;
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Diagnosed stage 3 CKD May 2003
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Sugarlump
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« Reply #10 on: April 10, 2011, 12:13:22 AM »

Stoday that wasn't very kind!!! and I haven't made 21 yet knock off another say 12 years and you might be about right. Honest!
Listen if you saw my picture you'd know I was a lot closer to to 39 than 49!!!!!
Might have to post my pic to disprove your theory now  :'(  :'(  :'(

And anyway they say you're as young as the man you feel, so last night I was only about 39..,  >:D
Oh **** someone rescue me again ,,,help!

 :sos;  :sos;  :sos;




 
« Last Edit: April 10, 2011, 12:20:45 AM by Sugarlump » Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Jean
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« Reply #11 on: April 10, 2011, 12:51:33 AM »

 The good news just keep coming, doesn't it?
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Sugarlump
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10 years on and off dialysis

« Reply #12 on: April 10, 2011, 02:00:27 AM »

All downhill from here  :clap;  :clap;  :clap;
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
kristina
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« Reply #13 on: April 10, 2011, 03:46:06 AM »


Reading all this I have been wondering
if the eyesight improves after a transplant
in spite of one’s age?

Thanks from Kristina.

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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Sugarlump
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10 years on and off dialysis

« Reply #14 on: April 10, 2011, 03:50:44 AM »

No.
And they tell you not to get eyes tested in first 6 months either. Some of drugs, inparticular the "nice" steroids can affect eyesight too.
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
kristina
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« Reply #15 on: April 10, 2011, 03:56:06 AM »


Thanks for the information, Sugarlump,

keeps me on my toes...

Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Sugarlump
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10 years on and off dialysis

« Reply #16 on: April 10, 2011, 04:25:19 AM »

I'm a mine of useless information and occasionally some useful ::)
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Sax-O-Trix
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« Reply #17 on: April 10, 2011, 05:21:04 AM »


I am entirely deaf in my left ear, can never remember hearing out of it, even though that was not confirmed until I was in the third grade.  I have since lost about half of my hearing in my right ear...

« Last Edit: July 20, 2011, 10:47:14 AM by Sax-O-Trix » Logged

Preemptive transplant recipient, living donor (brother)- March 2011
Stoday
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« Reply #18 on: April 10, 2011, 07:30:18 AM »

Stoday that wasn't very kind!!!
You are 100% right Sugar.  A gentleman would never guess a lady's age.


Quote
I haven't made 21 yet knock off another say 12 years and you might be about right. Honest!

I believe you. The correct theory age is 40. I'd used 50 to be provoative.

I'll give you a hug to make you feel better  :grouphug;
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
Sugarlump
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10 years on and off dialysis

« Reply #19 on: April 10, 2011, 07:47:13 AM »

Thank you I accept gratefully  :cuddle;

Not having the best of days today
Think I shall get drunk !  :'(
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
kristina
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« Reply #20 on: April 10, 2011, 01:06:46 PM »

My kidney disease and my bad hearing are directly related.  I was born with a genetic mutation/defect called "Branchio-Oto-Renal" Syndrome.  Your kidneys and your ears are all made from the same embryonic tissue, so it is not surprising that CKD patients can also have hearing problems.  I was also born with a dislocated hip and that has also been associated with ear problems.

I am entirely deaf in my left ear, can never remember hearing out of it, even though that was not confirmed until I was in the third grade.  I have since lost about half of my hearing in my right ear.  I have had access to hearing aids since I was in 8th grade, but have resisted them until about four years ago when I finally figured out I was being perceived as "rude" in various social/work places because I didn't realize people where talking to me and of course, I wasn't answering them, lol.  I now realize I have done this to people my entire adult life...  Sad.

Mind you, through all of this I have managed to earn graduate degrees in Music from one of the top rated music schools in the United States (I practiced a lot!).  I am a professional saxophonist and teach full-time as a living.  I cannot play wind instruments and wear the hearing aid, it distorts the sound too much.  I do have to wear the aid while teaching so I can hear the student's voice and every other situation.  I worry daily that my hearing will end my career...

I only found out about BOR Syndrome a few years ago through my daughter's audiologist.  The audiologist did a thorough history and asked if I had been diagnosed.  Uhh, no...  Then I researched it, got in touch with a hospital in Utah that is doing the research and they confirmed the diagnosis for both myself and my daughter through blood work.  My own Nephrologist had never heard of it and every Neph who was on my case with my transplant last week commented that they had never heard of it either.  Now they have :thx;

I am so sorry to read your story, Sax-O-Trix, and the fact that you were born with a genetic mutation/defect called “Branchi-Oto-Renal” Syndrome
and a dislocated hip.

You must have been working very hard to earn your graduate degrees in Music and I take my hat off to you !

I do hope you can continue to enjoy your music and teaching students
for a very long time and I wish you all the best,

Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Sax-O-Trix
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« Reply #21 on: April 10, 2011, 05:33:25 PM »

Kristina, no need to be sorry...  We all have face challanges.  In spite of the hearing/kidney/hip problems, I consider myself blessed with a decent life.   
« Last Edit: July 20, 2011, 10:48:01 AM by Sax-O-Trix » Logged

Preemptive transplant recipient, living donor (brother)- March 2011
kristina
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« Reply #22 on: April 11, 2011, 03:53:07 AM »

Hello, Sax-O-Trix,
 
you seem to have a well-balanced view of your life,
long may it continue.

Best wishes from Kristina.  :waving;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
babycake
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« Reply #23 on: April 17, 2011, 11:35:44 PM »

My kidney disease and my bad hearing are directly related.  I was born with a genetic mutation/defect called "Branchio-Oto-Renal" Syndrome.  Your kidneys and your ears are all made from the same embryonic tissue, so it is not surprising that CKD patients can also have hearing problems.  I was also born with a dislocated hip and that has also been associated with ear problems.

I am entirely deaf in my left ear, can never remember hearing out of it, even though that was not confirmed until I was in the third grade.  I have since lost about half of my hearing in my right ear.  I have had access to hearing aids since I was in 8th grade, but have resisted them until about four years ago when I finally figured out I was being perceived as "rude" in various social/work places because I didn't realize people where talking to me and of course, I wasn't answering them, lol.  I now realize I have done this to people my entire adult life...  Sad.

Mind you, through all of this I have managed to earn graduate degrees in Music from one of the top rated music schools in the United States (I practiced a lot!).  I am a professional saxophonist and teach full-time as a living.  I cannot play wind instruments and wear the hearing aid, it distorts the sound too much.  I do have to wear the aid while teaching so I can hear the student's voice and every other situation.  I worry daily that my hearing will end my career...

I only found out about BOR Syndrome a few years ago through my daughter's audiologist.  The audiologist did a thorough history and asked if I had been diagnosed.  Uhh, no...  Then I researched it, got in touch with a hospital in Utah that is doing the research and they confirmed the diagnosis for both myself and my daughter through blood work.  My own Nephrologist had never heard of it and every Neph who was on my case with my transplant last week commented that they had never heard of it either.  Now they have :thx;

your just one of the rare people to have this birthdefect

it was like with me and my son i had no clue i had a birthdefect called lawerence moon beild syndrome
untill i was going in to have my heart valve replacement and when the surgeon mention the name (SAY WHAT)
sense there were studies done on my son when he was little as where they had sent his studies to london you figure they should had said something but yet they didnt....(and yea im just one of those rare people to share the same birthdefect with my son but not my daughter who is the oldest
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« Reply #24 on: April 18, 2011, 05:22:13 AM »

My brother and I both have ESRD and severe hearing loss.  The kidneys started to worsen in our 30's, the hearing got bad in our early 40's and the kidneys failed in out mid 40's.  We are both nearly 50 now, both on PD and both wearing hearing aids we'd be LOST without.

My hearing loss has caused me to loose my job (teaching), but my brother's job ended when he was too sick to work due to kidney failure.  He was in sales.  We've been told we have Alport's Syndrome, but have never had the genetic testing done and there is no history of it in the family.  This hearing loss/kidney correlation is very interesting to me!

Things that make you go hmmmmmm.
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