Tell me about Number One

[Bajanne]

I haven't measured it, but 2½ years into dialysis, I'm still peeing, maybe just about 250ml per day.

[KICKSTART]

Nearly 4 years on dialysis and i still 'go' mostly at night tho' 

[oleboy]

Although I have decreased greatly I still have to go to the boys room,but not like I use too.

[flip]

I still drink my special diuretic and it keeps me going strong.

[twirl]

I still drink my special diuretic and it keeps me going strong.

   


what is your special diuretic drink and can anyone drink it

[flip]

I drink bottled spring water. To each bottle I add a good squirt of lemon juice and about a teaspoon of frozen cranberry juice concentrate. It works for me.

[MyssAnne]

mmmm.. Flip, that sounds good!!!  I will have to try that concoction!

I piddle. I don't pee.  If you like, you can use the word dribble.  That's all i do, even when I have a cuppa coffee.

Kinda nice in one way. Makes for better long trips.

[flip]

It makes me pee like crazy. I don't mind because I don't gain between treatments.

[Bajanne]

I will definitely be trying that one.

[Deanne]

I'm nosy / curious. If you don't pee very much, do you do it daily, just in smaller amounts, or do you pee in closer to normal amounts further apart? If you just pee every day or two, then is it ok for it to just be sitting in your bladder for so long?

[angela515]

when I was on dialysis in 1999, I pee'd a few drops every morning. When I say a few drops, I literally mean a few drops.

[007]

I have learned that one thing you can do to preserve whatever renal function you do have is to avoid dehydration.  For new patients (especially those who may not be on dialysis permanently), it is extremely important to avoid dehydration.  You are at a greater risk for dehydration on hemo.  I have been told that CAPD is a little more "preserving" of whatever kidney function you have, because it is a much more gentle process-meaning less risk of dehydration.

[G]

In most patients, urine output rapidly decreases once they start dialysis-- within the first year, most people stop urinating completely.

The pros:  Not needing bathroom breaks as much as everyone else, and dehydration risk is greatly decreased.

Except for those with no kidneys. You may forget to drink and then run the risk of dehydration. Not fun.

[cambonesegirl]

I stop producing urine about a year after I started dialysis. Road trips were the best, while everyone had to stop and pee, I just stayed in the car and napped. Also I have a bit of "Verminophobia" (fear of germs) so I hate using public restrooms.

[Jess21]

They've tried three times in the last 6 months to measure my output, but I don't do enough to measure.

[donnia]

I was on dialysis from September 2007 to June 4, 2008.  When I first started, I had to pee right before I got on, had to stop about 1/2 way through to go potty, then pee again right after. My output declined rapidly.  Within the first two weeks I didn't have to stop in the middle anymore.  Then about a month later I didn't really have to pee after (but I did just to try to get my scale to read a little lower  ). 

I also noticed that my bladder seemed like it shrank. I would have to go potty, but only pee a little bitty bit. 

Now that I have my transplant, I am averaging between 3000  -  3500 ml output!  I am 3 weeks and 4 days post tx and am still peeing between 500 - 1200 a day more than I take in.  My TC asked me if I was still taking lasix (I took lasix for 5 days because I had SOOOO much fluids on me after tx).  He is surprised that I am still peeing so much more than I take in.

[keith]

I was on dialysis for almost 6.5 years before i stopped urinating, but about 7-8 months after i got a transplant

[G-Ma]

My sons love taking me on trips......no potty breaks for me......only up side that I can think of today...

[twirl]

this was so thrilling
I was at Walmart with my youngest daughter and we were about to checkout
I had to pee-pee so badly that I could not wait
I left the line and quickly walked to the restroom
it was such a thrill to feel that again
my daughter and I were so happy for me
we were laughing and the other people in the line looked at us like we were crazy
who cares
I enjoyed every second of peeing

[flip]

When Cujo and I go for a walk, he has to stop and pee on every tree. I get so jealous I can't stand it.

[twirl]

Cujo is showing off

[G-Ma]

cujo rocks.....

[petey]

The first time Marvin started dialysis (1995), he still urinated for about two years -- though the volume decreased, decreased, decreased to nothingness.  After his transplant, he urinated every hour or so (bladder had shrunk) for the first six months.  Then, it was about every two-three hours.  The second time he went on dialysis (2003), he stopped urinating completely after being on D for only a month!  I've always wondered why the difference from the first round of dialysis to the second.

[ReneeP]

I just plain think it's different for everybody.  I take in about 1.5 L a day of liquids and get out around 1 L every night.  I only pee in the morning and usually once in the afternoon but it's a total of under 300 ml all together. (Averages of course)  I've been in renal failure for years but only Stage 5 and dialysis since May 2008.

Apples and Oranges, right.  Why is your K this when we eat the same but mine is this....         (I just love that banana dude, lol)

Renee

[boxman55]

You definitely do not want me driving on a long trip. Oh ya, I haven't even tried driving since I lost my right foot. So now I just wait in the car as they all run in. Ohh but I do hear, Hey Mark. you want something to drink. Good grief...Boxman