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Author Topic: Sending good wishes to Epofriend  (Read 15060 times)
phyl1215
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« Reply #25 on: April 09, 2011, 06:35:54 AM »

Sending prayers his way.  Hope he gets things corrected and feeling better very soon. :grouphug;
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PD 3 yrs.
TX list 4 yrs.
Deceased donor PERFECT MATCH Kidney transplant July 8, 2012


Learning To Dance In The Rain
AguynamedKim
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« Reply #26 on: April 10, 2011, 05:27:53 AM »

Sorry about the 4 for 4 record but I hope he feels better and gets well soon. 
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Sluff
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« Reply #27 on: April 10, 2011, 04:37:52 PM »

Poor Ro has been through hell lately. I don't know how much more the guy can take. Love ya Ro.. hang in there Buddy.  :grouphug; :grouphug; :grouphug;
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aharris2
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Volcan Pacaya, Guatemala

« Reply #28 on: April 11, 2011, 08:21:08 PM »

Thank you all once again for your prayers and good wishes. The cards keep coming, one had pics from the Chicago meet and there was also a card from "down under". They brighten Rolando's day and his room.

Two admissions into the hospital in the space of a month, that is tremendously hard on Rolando. As okarol said, he has gone four for four on special events. The biggest is imminent - the birth of his second grandchild. I hope everything is resolved before she is born and Rolando can be a part of it.

Rolando is more stable than he was last week and over the weekend. This appears to be an infected gall bladder that needs to come out. But, as I am sure that many of you have experienced, the doctors are afraid to touch dialysis patients. We've hung family pictures and set up the slide show screen saver with the same to illustrate to the docs that they are not looking at a "hot gall bladder and a variety of comorbidities", but rather a very courageous man with many reasons to live. He is a husband, a father, a grandfather, a brother, and a best friend - an alive and vital person.

Hopefully they will come around before things get more serious. Again, thank you everybody.
 :grouphug;

 
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
Rerun
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Going through life tied to a chair!

« Reply #29 on: April 11, 2011, 09:12:05 PM »

Best wishes and I hope he can get back to work soon!

                           :stressed;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #30 on: April 11, 2011, 09:24:09 PM »

 :grouphug; :grouphug; :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
charee
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« Reply #31 on: April 12, 2011, 12:22:17 AM »

 :grouphug;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
AguynamedKim
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« Reply #32 on: April 12, 2011, 05:27:36 AM »

 :grouphug;
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aharris2
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Volcan Pacaya, Guatemala

« Reply #33 on: April 12, 2011, 07:35:24 PM »

Surgery is scheduled for tomorrow (Wednesday) in the early afternoon.
Rolando has an inner strength and a strong faith. I am hoping for an excellent outcome.
 :pray;
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #34 on: April 12, 2011, 08:59:30 PM »

Please give him a BIG HUG from me and tell him I love him! Hope all goes well.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
boswife
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us and fam easter 2013

« Reply #35 on: April 12, 2011, 09:31:21 PM »

Im hoping for an excellent outcome too  :pray;  God bless that man, and bring him health..   :pray;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
AguynamedKim
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« Reply #36 on: April 12, 2011, 09:41:44 PM »

Hoping for good results!
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Jean
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« Reply #37 on: April 13, 2011, 12:01:51 AM »

Oh, the poor guy, life is raining on him now. I hope that tomorrow, after the rain leaves, the sun shines on him again. He is always in our thoughts and prayers.  Best wishes for a quick recovery.
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One day at a time, thats all I can do.
Darthvadar
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« Reply #38 on: April 13, 2011, 11:41:09 AM »

Wishing him a very speedy recovery!...

Hope the surgery goes really well...

Love3...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
aharris2
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Volcan Pacaya, Guatemala

« Reply #39 on: April 15, 2011, 02:27:06 PM »

Sorry for the delayed update. Rolando did have his gall bladder removed Wednesday evening and all went well. He is still in pain, but it is different and diminishing.

Today, a big bunch of balloons and some flowers arrived in Rolando's room from his "IHD family". That was so nice!!! Thank you.

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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #40 on: April 15, 2011, 04:36:06 PM »

 :flower; Thanks Alene!  :bestwishes; Love to Rolando!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #41 on: April 15, 2011, 06:21:28 PM »

Sorry for late posting, this is the first time I had seen it listed in my unread post.
 
Sorry to hear of al the troubles Rolando has had and I hope this surgery will help so he can feel a lot better. I'm glad he received the card with pictures. I should have included more from the Chicago meet that had more of the members in them. Not use to having the idea of having a pc in the room.
 
Get Well Rolando.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
CHeatherS
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« Reply #42 on: April 16, 2011, 01:05:17 PM »

Blessings and prayers for Rolando and the family!  My heart goes out...... I am new to the forum, and just yesterday listened to Epo's podcast.  I am so thankful for all he has done for so many as we go through these times together.  Prayers for a new beginning, fresh hope, and health and vitality.  Fresh breezes from Alaska sent your way.

Love
Heather
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jbeany
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Cattitude

« Reply #43 on: April 16, 2011, 05:55:36 PM »

 :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

Jean
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« Reply #44 on: April 16, 2011, 07:52:33 PM »

Hopefully he is feeling better by now?
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One day at a time, thats all I can do.
boswife
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us and fam easter 2013

« Reply #45 on: April 16, 2011, 08:31:01 PM »

So hopping to hear some good news soon  :pray;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
aharris2
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Volcan Pacaya, Guatemala

« Reply #46 on: April 17, 2011, 09:03:52 AM »

Thanks everyone. Happy Palm Sunday!

We are STILL here in the hospital and will be probably for another week and please pray that that is all! Rolando is resting comfortably and is healing well after his surgery.

The saga:
March 11-28 - hospitalised for the loss of circulation in his forearm and hand - It is looking good, his hand remains weak and painful.
March 29 - April 6 - HOME!!!
April 7 - today (Apr 17) - ER for possible heart attack or sepsis - Infected gall bladder removed on Wednesday Apr 13

We would be going home today except they will be draining an old pleural effusion which had become symptomatic but couldn't be drained in March because of the blood thinners. It seems to have gotten worse since March and has to be drained via chest tube - an inpatient only procedure!

Rolando was taken off of the blood thinners for surgery, yet the chest doctors want his clotting factors still higher before they place the tube. So, here we wait. The decision was made on Friday, tube to be put in on Saturday... not happy with clotting numbers, then Sunday... STILL not happy with clotting numbers (didn't he just have surgery???), now Monday... please!!!

And then, it takes the time it takes - a day, a week, maybe more??? Meanwhile, Rolando's second grandchild is due any day now. I so hope that he will get out in time to be a part of it.
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
Chris
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« Reply #47 on: April 17, 2011, 12:34:13 PM »

Sorry to hear Alene about the troubles with the idiot doctors are putting Rolando through. I agree, he had surgery and now they want to wait for clotting numbers to improve, grrrr. I hope they will do it Monday so he can get out ASAP and not miss the birth of his grandchild.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sluff
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Posts: 43869


« Reply #48 on: April 19, 2011, 03:18:30 PM »

Definately praying for Rolando, Thank God he has you in his corner Alene. You are truly a saint. (Saintress)
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AguynamedKim
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« Reply #49 on: April 19, 2011, 08:41:10 PM »

Sending more good wishes your way, Alene and Rolando!  :grouphug;
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