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Author Topic: Sending good wishes to Epofriend  (Read 15062 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: March 27, 2011, 07:42:37 PM »
Our member and moderator Epofriend has been in the hospital for nearly 3 weeks. He's having circulation problems in his hand and they can't seem to come up with a solution.  It's painful and he's hoping they can save his hand, but right now we don't know what will happen.
Alene is there and helping as much as she can. His daughter was in town for a weeklong vacation but he was still hospitalized and she's now had to go home.
I hope you'll keep him in your minds and hearts. If you'd like to drop him a note or card, please PM me for his address.
 :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MooseMom
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« Reply #1 on: March 27, 2011, 09:00:14 PM »
Oh, I am so sorry to hear that!  Please keep us informed, OK?  It must be pretty serious if he's been hospitalized for that long!  Sending prayers...
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
RichardMEL
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« Reply #2 on: March 27, 2011, 09:09:21 PM »
definitely best wishes to epofriend. Hope they can sort the problems out soon - it sounds very uncomfortable.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Des
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« Reply #3 on: March 28, 2011, 01:28:07 AM »
thinking of him.  :cuddle;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
KICKSTART
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In da House.
« Reply #4 on: March 28, 2011, 04:00:29 AM »
Hope he is soon home .
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Darthvadar
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« Reply #5 on: March 28, 2011, 05:02:43 AM »
All the very best....

Get well soon...

Darth.....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
monrein
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Might as well smile
« Reply #6 on: March 28, 2011, 05:08:45 AM »
Hope he's home soon and that they get things under control.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Sugarlump
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10 years on and off dialysis
« Reply #7 on: March 28, 2011, 05:32:00 AM »
Wishing you all the best and hoping you get out of hospital soon x
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
boswife
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us and fam easter 2013
« Reply #8 on: March 28, 2011, 07:49:13 AM »
any update?? sending my best well wishes for our friend....
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Poppylicious
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« Reply #9 on: March 28, 2011, 10:01:01 AM »
Oh, bless.  Poor thing. *huggles* for epofriend ... wishing him all the best.
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
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sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
kristina
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« Reply #10 on: March 28, 2011, 10:06:05 AM »

Best wishes from Kristina,

hope you get better soon!
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
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« Reply #11 on: March 28, 2011, 10:16:20 AM »
My caring thoughts and prayers are with you all the way, Epofriend! :cuddle;  Wish I could send some of the Vegas girls to cheer you up!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
galvo
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« Reply #12 on: March 28, 2011, 09:19:39 PM »
All the best, mate!
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Galvo
AguynamedKim
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« Reply #13 on: March 29, 2011, 05:22:54 PM »
Wishing you well, Epofriend!
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Pre-dialysis - Intro: http://ihatedialysis.com/forum/index.php?topic=20344.0
aharris2
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Volcan Pacaya, Guatemala
« Reply #14 on: March 29, 2011, 07:29:38 PM »
Quote from: okarol on March 27, 2011, 07:42:37 PM
Our member and moderator Epofriend has been in the hospital for nearly 3 weeks. He's having circulation problems in his hand and they can't seem to come up with a solution.  It's painful and he's hoping they can save his hand, but right now we don't know what will happen.

Thanks to all of you for your prayers and good wishes and to those who sent cards or called. They all made quite a difference for Rolando.

18 days later, yesterday, Rolando finally got out of the hospital. Most of the time was due to inefficiency in doctor coordination and scheduling tests but I am looking at it as additional time on IV heparin and other blood thinners allowing this thing to run its course and IV pain meds to help Rolando through it.

Rolando's forearm and hand have gone from cold, grey, numb and tingly to a warm and healthy looking forearm and a cold, grey and immensely painful hand, to ultimately a warm and healthy looking forearm and a swollen painful but PINK hand. So although we have no idea what happened, things are moving in the right direction. Losing the hand is no longer a done deal. I am anticipating visits with hand and vascular specialists for a second opinion (if it can be called that in the absence of a first opinion).

Rolando is sleeping soundly. I am hopeful.
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
Sluff
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« Reply #15 on: March 29, 2011, 07:37:35 PM »
Sounds a little more hopeful then when I talked to you Alene. Keep up the good care you do for Ro, please know you both are in my thoughts and prayers.
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kellyt
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« Reply #16 on: March 29, 2011, 07:38:17 PM »
 :grouphug;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #17 on: March 29, 2011, 08:33:23 PM »
praying for you!!!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Zach
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« Reply #18 on: March 29, 2011, 09:04:41 PM »
My prayers are with you, good friend!
 :waving;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #19 on: March 29, 2011, 11:56:37 PM »
I have been thinking about you two - thanks so much for the update Alene.
I'll keep praying. I am so glad you're there for him. Love you both!
 :grouphug; :grouphug; :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
onestronglittlelady
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« Reply #20 on: March 31, 2011, 09:54:26 AM »
Sending Epofriend hugs and prayers from Wisconsin.
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kitkatz
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« Reply #21 on: March 31, 2011, 09:33:21 PM »
Prayers and best wishes!   :grouphug; :grouphug;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Darthvadar
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« Reply #22 on: April 02, 2011, 04:18:46 AM »
Certainly sounds a bit more positive....

Get well soon...

May God bless and protect you, and your family.... Will be thinking of, and praying for you all...

Love...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #23 on: April 09, 2011, 12:16:32 AM »
I just heard from Alene. Rolando has gone four for four - he was in the hospital for the birthdays of all three daughters and on his birthday (Thursday) he was forced to head to the emergeny room. He was readmitted. Could be gastro, not sure yet. Many symptoms but too soon to tell what the plan is. Poor guy is in pain and he's had a tough couple of months. Please keep praying for our friend.  :pray; One bit of good news, his new grandbaby is due any time.  :)
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kristina
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« Reply #24 on: April 09, 2011, 01:09:48 AM »

I am so sorry to read about his re-admittance.
 
I do hope his medical troubles will be sorted out soon.

Best wishes from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
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