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Author Topic: My Graftula  (Read 2027 times)
mogee
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« on: January 31, 2011, 11:03:08 PM »

After seven years and more than twenty angioplasties my fistula failed.  It was de-clotted and ballooned, but re-clotted immediately.  To keep the site usable a very expensive covered stent was inserted into the fistula, creating what is essentially a graft.  It is four days since the stent was placed, and it seems to be working well.  I'm getting flow rates of 1400-1500 ml/min.  The only problem is that it is extremely difficult to cannulate.  Between the heavily scarred vessel and the thickness of the stent, it is very difficult to know when my needle is in the right place.  I fear that I will accidentally destroy the stent while trying to get to the lumen.  Hopefully, the stent will work until I get a kidney.
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PKD and IgA Glomerularnephritis
Nocturnal Home Hemo since 2004
Deceased Donor Transplant November 6, 2012
noahvale
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« Reply #1 on: January 31, 2011, 11:41:27 PM »

^^^
« Last Edit: September 16, 2015, 04:43:38 AM by noahvale » Logged
sullidog
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« Reply #2 on: February 05, 2011, 04:08:25 PM »

I hope it does too! I have a graft that has had 3 of those covered stents and it's still crap.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
kitkatz
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« Reply #3 on: February 06, 2011, 06:30:44 PM »

I had three stents put into a graft. They are hard to stick, like chicken wire or screen.
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mogee
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« Reply #4 on: February 08, 2011, 11:33:30 PM »

Update.  The stent clotted and could not be saved.  I had a central line put in today.
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PKD and IgA Glomerularnephritis
Nocturnal Home Hemo since 2004
Deceased Donor Transplant November 6, 2012
jbeany
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« Reply #5 on: February 09, 2011, 09:06:48 PM »

Ah, that stinks, mogee.  Hope you can get a new one soon, and get rid of the hardware.
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mogee
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« Reply #6 on: February 09, 2011, 10:44:34 PM »

Today I was offered a graft because the surgeon was available to perform the procedure.  I declined.  I want to give the line a decent chance of success.  If it works well for me I may need nothing else before a transplant becomes available for me, and I've preserved an access site for the future.
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PKD and IgA Glomerularnephritis
Nocturnal Home Hemo since 2004
Deceased Donor Transplant November 6, 2012
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