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Author Topic: What a day!!!  (Read 2043 times)
jmhoxsie1979
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My Dune Buggy!!
« on: December 14, 2010, 09:06:10 PM »
Holy Cow! these last two days have been a on an emotional roller coaster! My doctor finally said it is time to get a access put in. OK no problem can handle that, but I did not want to do PD. But I understand why he wanted me to start with that because we can use that sooner. But there is a bonus, i get a fistula at the same time!!! wooooo hooooo! So after my fistula is healed and then I can use that instead. then it is back to swimming. I can not wait to start feeling better!!!! I am so tired and my body is stiff and sore. in the last two days i have slept at lest 14 hours each day. I sleep at night too. i kind of don't mind the sleeping because it is a wonderful thing but i am wasting the day i could be doing something productive, that is the only thing that bugs me. the one thing that worries me about all this is: I am going to have a somewhat more normal life or is it going to be crappy like this for the rest of it? I read other peoples post and have high hopes! so on December 16th i will be getting my pd Catheter and my fistula done in Reno NV!!!!!! will update when I am able to!!!!!!!!!!! Later daze, Jolene :bandance; :yahoo; :clap; :clap;
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Some days I just want to be a missing person! Don't get to close to me the voices in my head are looking for a new home! What's this NORMAL you speak of? Is it contagious?! OMG Don't touch me I might catch your NORMAL!!!
Be a FruitLoop in a world of Cheerios!!
YLGuy
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« Reply #1 on: December 14, 2010, 10:15:39 PM »
Good luck on the 16th and please, please keep us posted.
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galvo
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« Reply #2 on: December 15, 2010, 03:38:48 AM »
The crappiness will lessen and your life will definitely improve. Good luck.
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Galvo
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« Reply #3 on: December 15, 2010, 08:25:19 AM »
jmhoxsie1979, speaking for myself, I feel better than I have felt in YEARS. I don't necessarily wish I'd started sooner, but now that I have I'm glad of it.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
Henry P Snicklesnorter
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« Reply #4 on: December 15, 2010, 11:03:24 AM »
.
« Last Edit: October 23, 2013, 06:46:34 AM by Henry P Snicklesnorter » Logged
paul.karen
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« Reply #5 on: December 15, 2010, 11:30:54 AM »
Well i am glad you will be starting D soon. (cant get use to saying that)  But i am sure you will feel much better shortly after starting.  At least it helps the majority of us.
Like your dune buggy :thumbup;  I have a 73 Baja that i take to alot of aircooled shows.  Fun to do and gets my mind of everything else if not at least for a few hours.

I hope all goes well...
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #6 on: December 15, 2010, 06:15:51 PM »
praying that all goes well! you will feel better!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Stoday
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« Reply #7 on: December 16, 2010, 09:07:31 PM »
Consider it an investment that pays off in the future when you feel so much better.

I didn't realise how ill I had been for the previous two years until I started the big D.
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
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