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Author Topic: So far so good...  (Read 1541 times)
Phil
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What doesnt kill you, makes you stronger

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« on: October 15, 2010, 08:46:32 PM »

I havent posted in a while....but here's a update which might help someone who is about to start HD... I've been on in center HD now for 5 months...and all in all I'm getting used to it. I've got into a sort of rythm, and have managed to squeeze as much of my life around dialysis as possible. I feel great on my off day, and after a nap after my morning session I feel ok. My fistula has matured enough now, and over the past month I have had absolutely no problems regarding needles or infiltration etc etc and that on its own reduces the stress of a session by at least 50% for me!!! About a month ago for 3 straight sessions I had pressure drops (the worst feeling ever)...not sure what they were caused by....either too much weight being taken off, or not enough sleep. I go through periods of insomnia..and have a REAL problem getting to sleep....but it seems to happen for a couple of weeks every few months.
So there it is....I'm officially on the transplant list now...and HD is what is keeping me alive....so I hate it, but I'm gratefull I have this option....its not easy, but if I've learnt anything in hospital its that unfortunatley there is ALWAYS someone alot worse off...so I keep that in mind and go to my HD session smiling :D
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1993 - Diagnosed with Alport Sindrome
April 2010 - Fistula surgery on right forearm
May 2010 - Started HD
Still waiting for the call!!!!!
galvo
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« Reply #1 on: October 15, 2010, 09:25:05 PM »

Good onya, Phil!
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Galvo
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« Reply #2 on: October 15, 2010, 09:41:46 PM »

I'll probably be starting HD soon, so I am particularly glad that you posted this!  Thank you for thinking of us pre-dialysis people.  I have really struggled with the idea that D is the end, that there is just no future on D.  Everytime I hear of someone going on D and surviving the experience, it gives me a little bit more confidence that there is really a future worth fighting for.  Thank you, again.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Jean
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« Reply #3 on: October 16, 2010, 01:24:25 AM »

Good to hear from you Phil. Glad things seem to be moving along for you. I wish you speed on your transplant.
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One day at a time, thats all I can do.
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