I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
November 23, 2024, 05:58:56 AM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: General Discussion
| | |-+  Relationships and dialysis.
0 Members and 1 Guest are viewing this topic. « previous next »
Pages: 1 2 [3] 4 5 Go Down Print
Author Topic: Relationships and dialysis.  (Read 29946 times)
KarenInWA
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1041


« Reply #50 on: February 09, 2013, 10:57:37 AM »

I agree with jeannea. I am a 39 yr old perpetually single woman who is scratching my head at the thought that men hate the whole "being just friends" thing. In my whole life of dating, that is pretty much the only word any man has used to describe me. I was diagnosed with CKD at age 23, but it didn't really affect my life until shortly before starting dialysis at age 37. So even without the obvious health issue, men never looked at me as anything "more".  I am 5'8" and have always been on the slender side. I just figured it was a lie that men like "skinny" women.

KarenInWA
Logged

1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
cariad
Elite Member
*****
Offline Offline

Gender: Female
Posts: 4208


What's past is prologue

« Reply #51 on: February 09, 2013, 11:05:20 AM »

Geoff, I agree with cdwbrooklyn - she's decided she wants you back. Whether that means that she has thought this through enough and will stick around this time remains to be seen. By the way, I don't mean this critically, but if you invite a woman out on Valentine's Day, you've already declared a romantic interest in her. So, I'm glad you've decided that you want to give her another chance, because darling, she already made that assumption when you said the word 'Valentine'. :)

I really hope it works this time, Geoff. My favourite stories on here have to be the ones that begin "I never thought anyone would ever be interested in dating me again, but then...." Which brings me to you, Ms. Jeannea. I am so glad you have those two beautiful nieces, but I am sad to hear that you think romantic love is out of reach for you. Coming to terms with the possibility that it may never happen can protect your heart (the metaphorical one) but please do not close yourself off to the idea all together. I so want to come on here one day to read your "love conquers kidney failure" story. I hope you don't mind, but I refuse to give up on that for you. I'm annoying that way.
Logged

Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
cariad
Elite Member
*****
Offline Offline

Gender: Female
Posts: 4208


What's past is prologue

« Reply #52 on: February 09, 2013, 11:12:08 AM »

I agree with jeannea. I am a 39 yr old perpetually single woman who is scratching my head at the thought that men hate the whole "being just friends" thing. In my whole life of dating, that is pretty much the only word any man has used to describe me. I was diagnosed with CKD at age 23, but it didn't really affect my life until shortly before starting dialysis at age 37. So even without the obvious health issue, men never looked at me as anything "more".  I am 5'8" and have always been on the slender side. I just figured it was a lie that men like "skinny" women.

KarenInWA
Oh Karen! See, I thought men would never find me attractive because I saw myself as gianormously fat, and also my mother told me at 16 that I would "have a lot of trouble attracting a man". Never in a billion years would I have dreamt that I could find anyone willing to date me, let alone propose. I've met you. I know you're fun and sharp and simply lovely. So, I'm not giving up on you, either. Sorry. (Anyone else want to challenge me?? :rofl;)
Logged

Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
jeannea
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1955

« Reply #53 on: February 09, 2013, 12:40:22 PM »

You're very sweet Cariad.
Logged
geoffcamp
Full Member
***
Offline Offline

Gender: Male
Posts: 431


« Reply #54 on: February 09, 2013, 12:56:33 PM »

HA. And see I felt like I was the ONLY person in the world dealing with these feelings!!  I certainly do not feel happy that there are others, I wouldn't wish this for anyone but it's nice to find an understanding ear!!!  When I speak or post about this it is ONLY from MY point of view or experiences. That's why I specifically said not woman bashing. So please don't think for a moment that we (meaning men) are not just as bad or worse in these situations. I too have an amazing niece and nephew and love them dearly and spoil as much as possible!!  But I want more for myself. Does not and most likely will not ever include having my own children but it is a life's goal/mission to find a loving partner. I'm in agreement that no one should give up. You never ever know what life will bring you especially when your closed off from certain possibilities. Just look at how our lives turned over head over heels!  So in my view absolutely EVERYTHING is possible!!!!  Unless you decide firmly to stand against things and if we all did that we would have been dead years ago. I know down really deep we all (here) know anything is possible something's just take a hell of a lot more WORK?!  That being said maybe we should start an IHD dating site!!  LMAO!  Everyone is just too spread out!!  But if your in Florida I'm around!!  My pic was just updated from a friends wedding so what you see is what you get, just a little dresser than usual!!  LOL!  So good luck and be open I know it sounds weird to me too after my posts, thoughts and feelings on this but just as I hope for a transplant I also reserve hope for that special person. Happy hunting!
Logged

Geoffrey Campbell
Diagnosed with ESRD at 26
Transplanted in 1999 rejected 2001
In center hemodialysis since late 2001 3X a week 4 hours late evening 3rd shift
boswife
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2644


us and fam easter 2013

« Reply #55 on: February 09, 2013, 03:59:20 PM »

interesting read  :grouphug;  Though i m 'just' the wife of the D man,  It seems un real that someones love can just change and run because of something like this.  Ohhhh, it aint easy for sure, but i guess it's just in the makeup of some to take it,,,,, or leave it.. Just gotta find the ones 'who can take it ' i guess.  And,,,,,,,, just asking  :bow;  Is it unemagineable for two dialysis/transplant people to become 'partners' in this??  I mean, who better to understand each other??  Truly, not being the one on D, i dont have that true knowledge of where your at about that.  I was just thinking, or 'just sayin'  ;D
Logged

im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Cynna66
Newbie
*
Offline Offline

Gender: Female
Posts: 47


« Reply #56 on: February 10, 2013, 05:45:28 AM »

Wow. I hate to hear so many people say they give up on love. I definitely have not had the same experiences as you guys, although I have not been without problems here and there. I lost my kidneys to an auto-immune disorder when I was 22. I was single (by choice) for the first three years. Took my time to center myself and to adapt to life on D. In 2003 three I met a man from Indianapolis who I found I had a lot in common with. He never once batted an eye at the fact I was on dialysis and that I would have bad days. He stayed by my side for SEVEN years. I left him. I felt we weren't getting anywhere and he never proposed and I felt it was time for us both to move on and find what we were meant to find. He was extremely upset but he got over it and saw that we did the right thing. We're still friends.

After him, I met someone and ran away to Alaska to be with him. He was 21. I was 30. We were together for 3 years before he decided he couldn't handle being with me. I couldn't hold that against him. I started getting sicker and I felt it was unfair for me to expect him to stay when he was just starting his life. He needed to focus on school and living his life and not be focused on how sick I was and taking care of me. So I left and came back home to Ohio. I cried at the airport, but I haven't really cried since. It's not that I didn't/don't have love in my heart for him. Sometimes life is about not being selfish and knowing how to let go when you need to.

Now I am with a man who knows EVERYTHING about my condition. When he can't be with me in person (he's in school out of state at the moment) he spends as much time with me as he can on Skype. If I am in the hospital, he is with me almost 24/7. He goes out of his way to make me happy and I do the same for him.

In between relationships I have always had a clamoring of men (and even a few women!) wanting to date me or pursue a relationship with me. I think a lot of it is what you put out into the world. I am sickeningly positive, funny, and I don't go into anything with expectations. If they love me, they do. If they hate me, they do. I don't have time in my life to worry about what other people think. It is usually pretty damned visible to see who will be strong enough to handle your heavy load and who is just going to be skittish and selfish. They key is being open and upfront and to look them in the eye and ask "Can your handle my ish?". Then look for clues that they are lying or not. Do they break eye contact? Do they look or sound uncomfortable? If they show signs they aren't down with your stuff, walk away early and save yourself the heart-ache.

Life doesn't stop or change because you're sick. And the RIGHT person will fiercely stand by your side. Heck. Sometimes even the not-so-right but ok person will fiercely stand by your side. Don't give up, you guys.
Logged

Dialysis and I have an understanding
geoffcamp
Full Member
***
Offline Offline

Gender: Male
Posts: 431


« Reply #57 on: February 10, 2013, 07:13:55 AM »

Cynna66:  thanks for sharing. It's nice to know someone with good experiences and a great attitude. I think you correct that is all about attitude. But my problem also stems from lack of opportunity to meet people. Just curious how and where you go about meeting people. Usually like you I have had plenty of opportunity when I was working full time or I was a lot more active then I have been in the last 5 or 6 years. I try to push myself to find new ways to get out and enjoy a festival or hockey games but I've canceled so many plans because I'm just not feeling up to it. I'm not a bar person did that a long time ago and I don't really drink alcohol bottle of wine or a beer from time to time.  I wish I lived in a more metropolitan area. I lived in downtown Columbus OH for a few years and loved it. I could walk everywhere. I'm plenty open to women and I'm not a particularly shy person but I must be going to the wrong places!!  It doesn't help that my big hobbies are very man oriented. But I did meet this last woman at a corvette club meeting. Most of my free time I really enjoy sports cars and I work a lot on mine and also volunteer at the car museum here in town moving cars guided tours help fix and display. And my other passion is hockey. Maybe I need to broaden my range of activities.
Logged

Geoffrey Campbell
Diagnosed with ESRD at 26
Transplanted in 1999 rejected 2001
In center hemodialysis since late 2001 3X a week 4 hours late evening 3rd shift
Cynna66
Newbie
*
Offline Offline

Gender: Female
Posts: 47


« Reply #58 on: February 10, 2013, 08:24:54 AM »

I actually meet A LOT of people via the internet. I met the seven year boyfriend on a horror film website called bloody-disgusting. I meet a lot of people through my interest in gaming, both video and board games. Then, of course, there are also friends of friends I get to know in both real life and via facebook. I am a homebody, partly because dialysis is exhausting but also because I have periodic tendencies to be somewhat of a recluse. My current boyfriend we met playing World of Warcraft. That's a longish story, but I feel meeting people online gives you a chance to get to know them over time, potentially have people to have fun playing games with (real nice way to pass the time when you're feeling bleh). I HATE bars and really think it's a skeezy place to meet skeezy people. Same with clubs. It's hard to find places to meet folks in the real world. I find coffee houses can be a good place for it, but it depends. Some of them are full of hipster kids not out of their teens. Some have nice people to talk with and play a game of chess with though. You might look into going there to people watch and goof off on a laptop. People will eventually talk to you. There is a world of possibility out there. Even this forum is a good start to get to know folks. The most important part is to be aware of how you're projecting yourself to other people. People always hover around happiness. They want to be a part of it. Even if you have to fake it for a while.  :yahoo;
Logged

Dialysis and I have an understanding
lmunchkin
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2471

"There Is No Place Like Home!"

« Reply #59 on: February 10, 2013, 11:07:47 AM »

Its funny you mentioned to ESRD people getting together, cause we as spouses really don't know what it is like.  Since those who have this understand all too well, why not get together and make a go of it.  I think that is a great idea!  Falling in love is wonderful.  I like it, BW!

God Bless,
lmunchkin :kickstart;

P.S. I agree with GWbrooklyn, we must learn to forgive if we want to move forward!!!!
Logged

11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Mr Pink
Full Member
***
Offline Offline

Posts: 139

« Reply #60 on: February 10, 2013, 07:19:04 PM »

In between relationships I have always had a clamoring of men (and even a few women!) wanting to date me or pursue a relationship with me. I think a lot of it is what you put out into the world. I am sickeningly positive, funny, and I don't go into anything with expectations. If they love me, they do. If they hate me, they do. I don't have time in my life to worry about what other people think. It is usually pretty damned visible to see who will be strong enough to handle your heavy load and who is just going to be skittish and selfish. They key is being open and upfront and to look them in the eye and ask "Can your handle my ish?". Then look for clues that they are lying or not. Do they break eye contact? Do they look or sound uncomfortable? If they show signs they aren't down with your stuff, walk away early and save yourself the heart-ache.

Life doesn't stop or change because you're sick. And the RIGHT person will fiercely stand by your side. Heck. Sometimes even the not-so-right but ok person will fiercely stand by your side. Don't give up, you guys.

I'm with Cynna on this, not that I've had too many men clammoring after me, which is probably just as well since I only play for the one team. I agree that what we put into the world makes all the difference. I wouldn't say that I was sickeningly positive, but I do try to keep things light, and I enjoy making people laugh and smile. I'm too lazy to worry about what other people think. I meet lovely people all the time, and I feel enormously grateful for that. The women my age are really just like me, in that they all have a cross to bear in some form or another. We either accept who we are with all the trimmings, or we don't. It's that simple. If we don't, life moves on. All I can say is that once I get this stupid catheter removed from my chest, look out world!
Logged
jeannea
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1955

« Reply #61 on: February 11, 2013, 06:53:49 PM »

In the US we can't afford to date anyone on dialysis. We need someone who can work and get insurance. Even with Medicare you need supplemental. I got my transplant almost a year ago so I only have 2 more years of insurance. I'm moving to Sweden. Well I would but I don't like cold weather.
Logged
KarenInWA
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1041


« Reply #62 on: February 11, 2013, 08:20:03 PM »

I live in the US and I've always had my own insurance through work. I worked FT while on dialysis, and thanks to great union benefits, had STD to cover me while out for tx surgery and an emergency post-biopsy induced hematoma surgery. I pay for Medicare as my secondary coverage. In 2014, it will be primary for a few months, then I will hit the 3-year mark in November and it will end. I plan on keeping my job and going back to my regular work insurance as my coverage.

Even with all of this on my side, dating does not come easy to me. But for me, I don't think it has to do with my health issues. I think it has to do with the fact that the men in my area don't like me. I believe in trying to cast a wide net!

KarenInWA
Logged

1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
jbeany
Member for Life
******
Offline Offline

Gender: Female
Posts: 7536


Cattitude

« Reply #63 on: February 11, 2013, 08:41:46 PM »

I'm a overweight, middle-aged woman with a chronic health problem that's only on temporary hold with a transplant that might fail on a moment's notice.  I've got enough nerve damage to make me flinch whenever my cat so much as brushes against me, enough physical scars to scare a war vet, and enough emotional baggage from a miserable divorce to need my own freight train to ship it all.  I'm increasingly sarcastic the longer you know me, decreasingly interested in sharing my living space with anyone the longer I spend alone, and totally lacking in the ambition required to even look for someone to date.  So hey, yeah, the men are just lining up outside my door....take a number, settle down, and get in line out there, guys.

I figure when the misery of being alone outweighs my dread of re-entering the dating pool, I'll do something about it.  But until then, I'm going to stay out of the water, since I seem to have forgotten how to swim.

Although, I wouldn't mind someone suggesting "just friends" right now.  I'm now living in a fabulous city with all kinds of things to go do, and my usual date is my teenage nephew, which does tend to limit me to the things that interest him.  There's a whole world of gallery openings and jazz clubs out there that just aren't as much fun alone.
Logged

"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

boswife
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2644


us and fam easter 2013

« Reply #64 on: February 11, 2013, 08:50:50 PM »

great read jbeany  :cuddle;  ya gave me some laughs :) 
Logged

im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
geoffcamp
Full Member
***
Offline Offline

Gender: Male
Posts: 431


« Reply #65 on: February 12, 2013, 04:11:11 AM »

For a man (my experience, I'm sure same for women) it is unfortunate how money seems to be a big issue in love and relationships. I'm not immune, the way I was raised by my father is to be a man. Your responsibility is to do everything in your power to give what you can in all aspects to your partner. I was raise in the "south", Charleston, SC and being a southern gentleman was instilled on me at a very early age. As I grow older that barrier of actually needing someone versus taking good care of someone grows larger. It's a sad fact that our condition breaks our ability to lead the life dreamed. And for the same reason it drives away those who are intent on finding a partner to love and enjoy the times of building up a foundation for the future. I'm glad someone mentioned the monetary aspect of this. It's real. It also is perceived inside myself at least that I have nothing to offer a good woman looking (and rightfully so) build a life, love, care, stability and increase the status and living style with a special person. I know if I put myself in the shoes of a woman my age what things on my "list" I would be seeking. It's difficult to reconcile the fact I simply can not compete. No by that matter ever want to hold someone back from their goals and needs. We as a general society say love is blind and emphasize the separation of love and money. But to me that is pipe dreams and unrealistic. We all have our pound of salt a friend told me once. Only I too feel like my "pound of salt" is a freight train that follows behind me. I WORK very hard at not showing it but its always tethered to me holding me back from moving on or into a mutually beneficial relationship. Which is what I want not a care giver.
Logged

Geoffrey Campbell
Diagnosed with ESRD at 26
Transplanted in 1999 rejected 2001
In center hemodialysis since late 2001 3X a week 4 hours late evening 3rd shift
noahvale
Guest
« Reply #66 on: February 12, 2013, 05:45:34 AM »

^
« Last Edit: September 21, 2015, 07:03:58 PM by noahvale » Logged
Sam.maidment2012
Newbie
*
Offline Offline

Gender: Male
Posts: 33


« Reply #67 on: February 12, 2013, 06:27:36 AM »

i believe myself to be VERY lucky, I have been with my wife for 6 years, (married 3 1/2 years) I am only 23 but I was diagnosed with End stage renal failure when i was 21, My wife has been beside me looking after me, been with me to every appointment, dealt with my funny mood when i come away from dialysis (for some reason it makes me moody) and works all day in a very stressful job and still comes home to cook me dinner and look after me (shes not my bitch in case you're wondering) I don't drive so life is very difficult to get about. I really don't know what i would do without her! I just don't get people who walk out on there husband or wife just because of their kidney disease, we didn't ask to get sick! The vow "in sickness & in health" should really come in to play here! You don't take these vows for nothin' you know!!!! :rant;
Logged

Sam Maidment
From UK
2011 Diagnosed with End stage renal Failure (Formal diagnosis Alport's Syndrome) at the age of 21
April 2011 - August 2012 PD dialysis both day exchange and over night machine
September 2012 - In center hemodialysis since late 2012 3X a week 4 hours late evening 3rd shift
I'm still here!!  Alive and kicking ass. :-)
geoffcamp
Full Member
***
Offline Offline

Gender: Male
Posts: 431


« Reply #68 on: February 12, 2013, 06:41:55 AM »

A Healthy Person on Dialysis

© 1997 Andrew Lundin, M.D. All rights reserved. Reproduced with permission.

A healthy person on dialysis should be able to do many or the things
they planned to do before becoming sick. Being an astronaut may not be
in the cards, however. With age and other limiting conditions, more
vigorous activities will have to be curtailed. There is no question that
one's stamina and strength are lessened with renal failure and dialysis
so that a degree of acceptance of these limitations helps. But
conditioning can help and exercise is encouraged. Laying around, feeling
sorry, maybe necessary for a time, but only makes the problem worse if
not overcome.

I finished college at Stanford University in California
and went to medical school as a dialysis patient, dialyzing 14 hours
overnight, three times per week. When an intern and resident I worked in
a city hospital in Brooklyn, NY, and for several nights, dialyzed every
other night when I wasn't oncall for 36 hrs. I write this reluctantly,
not to brag or seem heroic. it was just what I needed to do to reach my
goal of becoming a doctor. We are not heroes, we are survivors and just
need others to help or get out of the way so we can make it.
 
The dialysis world is full of achievers who encourage me by their
successes. Perhaps some of them can tell us what they have done despite
dialysis.

Peter Lundin, MD

[In the mid-1960s, Dr. Lundin was the first dialysis patient to complete medical school and the first nephrologist who was also a dialysis patient.  He was a distinguished nephrologist and tireless patient advocate.]

This is great!!  But there are exceptions in every case. It is motivating and nice to hear but in my head it makes me feel and wonder why I can't seem to do that. I finished school, I worked for several years on dialysis at extremely high pressure jobs even. But maybe it me and that always want to do more and more and I'm feeling more limited as I passes my 40s in age I just can't seem to do both have the high stress every minute career AND relationship even one isn't working out right now. So I happy to read the positive thought and story of that man. I can't help to feel the worse for. Mostly because I demand myself to try to be exceptional at everything I do. Right now not feeling too exceptional.    BTW. Thank you for the post I am not saying anything about what you shared be because I'm happy you did!  Please don't think I'm thinking its wrong, just my personal thoughts. 
Logged

Geoffrey Campbell
Diagnosed with ESRD at 26
Transplanted in 1999 rejected 2001
In center hemodialysis since late 2001 3X a week 4 hours late evening 3rd shift
jbeany
Member for Life
******
Offline Offline

Gender: Female
Posts: 7536


Cattitude

« Reply #69 on: February 12, 2013, 07:54:52 AM »


 It is motivating and nice to hear but in my head it makes me feel and wonder why I can't seem to do that.

And Shad Ireland does Iron Man competitions while on dialysis.  And yet, hearing what other people accomplished never was all that much help when I spent every day puking my guts out and too dizzy to stand up.  Dialysis doesn't work as well for some as it does for others, and we all have individual complications that affect how much we can do.  Don't fall into the trap of comparing yourself, Geoff.  Do what you can, as best you can, and do your best to be content with what works for you.

Of course, there's no mention in that essay of how successful he was at maintaining a relationship while doing dialysis and med school simultaneously, which was the issue at hand.  I think the money/future support/good provider issue is always going to be huge.  Love may be blind, but many people can hear cash register bells ringing from a distance.  If the person in love isn't thinking about how our health is going to affect the future, you can be darn sure their friends and family will bring it up and bring them back down to earth.
Logged

"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

noahvale
Guest
« Reply #70 on: February 12, 2013, 10:43:11 AM »

^

« Last Edit: September 21, 2015, 07:00:53 PM by noahvale » Logged
jbeany
Member for Life
******
Offline Offline

Gender: Female
Posts: 7536


Cattitude

« Reply #71 on: February 12, 2013, 11:15:32 AM »


Of course, there's no mention in that essay of how successful he was at maintaining a relationship while doing dialysis and med school simultaneously, which was the issue at hand.  I think the money/future support/good provider issue is always going to be huge.  Love may be blind, but many people can hear cash register bells ringing from a distance.  If the person in love isn't thinking about how our health is going to affect the future, you can be darn sure their friends and family will bring it up and bring them back down to earth.

Peter and his wife, Maureen, were married for 25+ years until her death from cancer in the late 1990s.  For all the work Maureen did for its magazine, RenaLife, AAKP honored her memory with the "Maureen Lundin AAKP RENALIFE Award."

http://nephron.org/nephsites/lundin/lundinscorner.html 



Thankfully, there are people who stick it out with their spouses, like Mrs. Lundin, and like Sam's wife.  There are a large number of us on here who haven't had that luck. 
Logged

"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

cariad
Elite Member
*****
Offline Offline

Gender: Female
Posts: 4208


What's past is prologue

« Reply #72 on: February 12, 2013, 01:57:11 PM »


 It is motivating and nice to hear but in my head it makes me feel and wonder why I can't seem to do that.

And Shad Ireland does Iron Man competitions while on dialysis.  And yet, hearing what other people accomplished never was all that much help when I spent every day puking my guts out and too dizzy to stand up.  Dialysis doesn't work as well for some as it does for others, and we all have individual complications that affect how much we can do.  Don't fall into the trap of comparing yourself, Geoff.  Do what you can, as best you can, and do your best to be content with what works for you.
Thank you both for mentioning this. I agree completely. I always found myself feeling that these articles were insinuating that if this person can do these things, then I should be able to as well.

I also think in fairness to others that today I would hesitate to get involved in a new relationship with someone with a serious illness, but not because I would resent them holding me back from doing things. Back in my 20s, sure, I would have been swept away on a romantic tide, but today I know I would be too afraid of losing someone. I just wouldn't want to get too attached to someone who could suddenly take a turn for the worse and be gone. Just typing that, it sounds so awful, but I can think of few things harder than losing a loved one and, for me, that would be by far the scariest part of dating a man in ESKF.
Logged

Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Cynna66
Newbie
*
Offline Offline

Gender: Female
Posts: 47


« Reply #73 on: February 12, 2013, 03:26:22 PM »

For the record, I am considered morbidly obese (I'm 100 lbs over what I should be), scarred up and down like a tribal warrior, and I have a grip of health problems on top of dialysis (auto immune crap, heart issues, cortosteroid induced diabetes, etc etc etc.) My milkshake still brings all the boys to the yard because I am fun to be around and I have a good attitude. I can't believe I just said that. I am a dork.

If you don't like things about yourself ya just got to address the issues but don't let it hold ya back if you want to meet new people. Life isn't much fun when you don't have people to do stuff with. And nobody wants to be around Debbie Downer. Healthy or not. Sad people make not sad people feel guilty and awkward and then they will avoid the sad person like the plague. You get what you give. If all you give is a poor outlook and sadness and bitterness... well?

Some people out there are terrible. Selfish. Only want you when you can give them something,. There ARE people out there who love unconditionally and will support you with love and warmth you just have to be willing to find them and let them in. LET THEM IN. We all have to take risks. I have been hurt before in relationships. But you will never know any joy if you don't take the risk.

“And the day came when the risk to remain tight in a bud was more painful than the risk it took to blossom” ~ Anaïs Nin
Logged

Dialysis and I have an understanding
noahvale
Guest
« Reply #74 on: February 12, 2013, 03:44:39 PM »

*
« Last Edit: September 21, 2015, 06:55:54 PM by noahvale » Logged
Pages: 1 2 [3] 4 5 Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!