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KICKSTART
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« on: August 26, 2010, 01:21:06 PM »

I dont know how to write this because it feels like a betrayal, so im finding very difficult ,but at the same time my stress levels are through the roof. A person very close to me (no point in stating the obvious) seems to actually be developing my symptoms , not quite kidney failure yet, but everything else. So why is this a betrayal? because im not sure if its genuine and if its not then why? It also seems im the only family member that gets all this info. If caught off guard (phoning when not expected) its like speaking to a different person ..for the first 10 seconds. Last week i came home after a horrendous dialysis session, then the phone rang like 10 seconds after i got in ..gasp,gasp,gasp on the other end. I just couldnt deal with it , refusal to get the doctor out, no ambulance. So i rang another relative( because i was just too drained to deal with it) who had only spoken to this person the day before and all was fine ? I feel awful writing this ..what if something is wrong? They never act on my advice. But i cant do as some will suggest and either ignore it or avoid them , because i will be totally dependant on this person if im ill. Im so stressed out right now.
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Poppylicious
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« Reply #1 on: August 26, 2010, 02:24:26 PM »

Could you visit this very close person with another relative/friend by your side and see if the very close person discloses symptoms in front of them, and if the symptoms aren't disclosed perhaps YOU could bring them up and appraise the response?  Or, perhaps you could request a home visit from your GP (are you based at the same surgery?).  Or, if you live in the area where they've just rolled out the 111 number, perhaps you could try them (or maybe NHS Direct).

The confusion and stress is not going to help you, and this very close person must be aware of that?  Perhaps you could try being blunt (although not aggressively overly-so) the next time and explain how it's making you feel and would they please visit the GP for YOUR peace of mind, if not their own.  Although maybe you've already done that.  *sigh*

Sorry, I'm really bad at giving advice, but many *huggles* for a horrid situation.
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
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RightSide
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« Reply #2 on: September 02, 2010, 06:00:34 PM »

I would say something about it, even if the person wasn't someone I needed to depend on--even if the person was a total stranger.

Because no one should have to get ESRD, if there's a chance that early intervention could stop the kidneys from deteriorating.

But you don't want to suggest it's kidney failure specifically--it could be any number of things, or nothing at all.

You can do it in a non-threatening way, like this:

"You know, some of your symptoms sound to me like they should be checked out by a doctor.  In my case, my own symptoms turned out to be kidney failure, and that's a serious matter.  Why don't you tell your own doctor what you've been feeling, and let him (or her) decide what to do?"
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okarol
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« Reply #3 on: September 02, 2010, 09:45:49 PM »

 :banghead; It's just too bizarre and frustrating Kickstart.
Change your phone number?  :rofl;
Sorry, sometimes all you can do is shake your head.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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