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I Hate Dialysis Message Board
Dialysis Discussion
Dialysis: General Discussion
11% WTF
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Topic: 11% WTF (Read 3057 times)
karen547
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11% WTF
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on:
April 28, 2010, 06:48:00 AM »
I heard on the news the other night that only 11% of people are actually donors. This is a sad number! I assume this is just in America but am not sure
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okarol
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Photo is Jenna - after Disneyland - 1988
Re: 11% WTF
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Reply #1 on:
April 28, 2010, 07:13:55 AM »
Is that how many people have an accidental death that results in donation? Or is it how many people are registered as organ donors? In the US about 11,000 people die under the circumstances where there is brain death and of those about 8,000 go on to be donors.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
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News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
karen547
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Re: 11% WTF
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Reply #2 on:
April 28, 2010, 07:26:51 AM »
I'm pretty sure that it was the number of living people who are registered to donate
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RichardMEL
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Re: 11% WTF
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Reply #3 on:
April 28, 2010, 07:35:49 AM »
It wouldn't surprise me.
In an opt-in system it's common that apathy is the majority. We have the same issue in oz. Many people SAY they agree with organ donation, but actually pulling their finger out and signing up... not so good. Thus we (oz) have one of the lowest organ donation rates in the world.
Sad really.
Personally I am all for an opt-out system, but then again I'm a little biased.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!
BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Rerun
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Going through life tied to a chair!
Re: 11% WTF
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Reply #4 on:
April 28, 2010, 07:45:04 AM »
God Bless those 11% of people who are unselfish. There are people who would no way give up part of them or be cut on for anyone. Sad but true.
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lunadatura
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Fate happens, Destiny is what you do with it.
Re: 11% WTF
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Reply #5 on:
April 28, 2010, 01:15:28 PM »
are there any states in the USA who have an opt out system?? Seems like that would not be a very hard piece of legislature to accomplish...
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Diagnosised FSGS via biopsy 11/2006
Started Dialysis 5/2009
hemo-dialysis except 9.09-6.10 = peritoneal then back to hemo
currently in center hemo 3x per week
Evaluation for transplant July 2010
Almost received transplant 8.13
repeated calls and admissions for transplant since then but no kidney yet
3.1.14 got ideal kidney and having exceptional recovery - creatine went from 8.5 to 1.1 in less than 2 weeks.
monrein
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Might as well smile
Re: 11% WTF
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Reply #6 on:
April 28, 2010, 02:18:00 PM »
Spain has an opt-out system and one of the highest rates of donation as a result. I would support such a reversed onus system for us here in Ontario, Canada where my city, Toronto has a very low donation rate.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
Sunny
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Sunny
Re: 11% WTF
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Reply #7 on:
April 28, 2010, 02:31:52 PM »
California is currently working toward a Living Donor Registry along with a required question on whether a person wants to be an organ donor when applying for a drivers license. Currently the DMV does not ask the question at all. Steve Jobs is working with Governor Swartzineger on this.
http://www.mercurynews.com/breaking-news/ci_14714795?nclick_check=1
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Sunny, 49 year old female
pre-dialysis with GoodPastures
thegrammalady
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Re: 11% WTF
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Reply #8 on:
April 29, 2010, 03:25:20 PM »
the thing you have to remember is just because you sign a donor card, it doesn't mean your organs will be donated, even if they are viable. your family makes the final decision and if they say ugh! no! there will be no donation. colorado has a wonderful thing called 5 wishes. it's a legal document and will stand up. you give a copy to your hospital and all your doctors. it's an alternative to a dnr. it allows you to state your wishes. i want this done, i don't want this. things as simple as i want this kind of music played while i die. mine says i want any usuable organs donated and my family doesn't get to say no!
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