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Author Topic: I'm still alive  (Read 3869 times)
Adam_W
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Me with Baron von Fresenius
« on: April 25, 2010, 06:46:54 PM »
I'm finally back after quite awhile away from IHD, so I thought I'd see how things are going. I've been sick off and on for the last few months, and very sick for the last month, including almost two weeks in the hospital with a nasty infection and severe GI problems, malnutrition and dehydration. I'm just now starting to get better. I'm going to try to stop in here a little bit more often to see how the IHD family is doing.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Rerun
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Going through life tied to a chair!
« Reply #1 on: April 25, 2010, 06:48:22 PM »
 :bandance;  Adam!  Glad to hear from you.  Sorry you have been so sick.  Get better   :bow;
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Sluff
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« Reply #2 on: April 25, 2010, 06:53:44 PM »
Glad to see you Adam. Hope you feel better.
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monrein
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Might as well smile
« Reply #3 on: April 25, 2010, 08:04:28 PM »
 :waving;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
galvo
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« Reply #4 on: April 25, 2010, 08:19:27 PM »
Adam good to hear you're on the improve!
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Galvo
okarol
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« Reply #5 on: April 25, 2010, 08:50:44 PM »
Hey Adam,
Good to know you're still with us - come back more often! I hope you feel better soon and can stay away from hospitals for awhile. Take care!
 :waving; :cuddle; :)
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Mimi
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For any who do not like me I use - prayer.
« Reply #6 on: April 25, 2010, 09:30:46 PM »
Welcome back , Adam.  I have been wondering where you were.  So sorry to hear you have been so ill.  I will  praying that you will rapidly return to good health.  Take care of yourself.
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
Chris
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« Reply #7 on: April 25, 2010, 09:44:50 PM »
Hey Adam hope you feel better soon.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kitkatz
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« Reply #8 on: April 28, 2010, 09:15:19 AM »
I had an infection in my graft and spent 2 weeks in the hospital- 10 days having surgery and antibiotics. MRSA is a pain in the the butt. I hope you are feeling better.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
paris
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« Reply #9 on: April 28, 2010, 09:18:47 AM »
Good to see you back with us Adam!   But, sorry to hear how sick you have been. Hope you keep improving.  I guess you haven't been working on any models lately, have you?   Take care.  Don't stay away so long now.   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Darthvadar
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« Reply #10 on: April 28, 2010, 09:23:39 AM »
Good to see you again, Adam....

Don't be a stranger!...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
kellyt
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« Reply #11 on: April 28, 2010, 02:39:58 PM »
 :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
jbeany
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Cattitude
« Reply #12 on: April 28, 2010, 02:43:23 PM »
 :cuddle;

Good to hear from you again!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
MooseMom
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« Reply #13 on: April 28, 2010, 02:51:30 PM »
I'm so glad you're still alive as the alternative would be dull...
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Adam_W
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Me with Baron von Fresenius
« Reply #14 on: April 28, 2010, 06:32:58 PM »
Thanks everyone. I feel kind of bad that I haven't been checking in, because I know we all try to look out for each other here. But I haven't felt so sick since I first started dialysis. It all hit its climax about two and a half weeks ago when I collapsed at church from what turned out to be dangerous malnutrition and dehydration. With the GI problems I had been having, I had hardly been able to eat for a month. About half way to the hospital, I completely crashed in the ambulance. The last thing I heard was the medic say "Oh sh*t! we have an emergency!" (not something you want to hear when you're in an ambulance) I regained full consciousness about a half hour later in the ER, and they admitted me for about a week. And that was just two days after I got out of the hospital after my graft became infected. I got so depressed, I was actually having DAILY anxiety attacks to the point where they sent a mental health doctor to talk to me. He had to end up ordering daily doses of Ativan to relax me. I had never felt so bad. But it's good to be feeling better, and to be back here.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Zach
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"Still crazy after all these years."
« Reply #15 on: April 28, 2010, 06:40:16 PM »
Good to have you back!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
cloud393
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« Reply #16 on: April 28, 2010, 07:50:34 PM »
 :clap;  Good to hear your feeling better.  Look forward to hearing from you.
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May you live as long as you want and never want as long as you live.
galvo
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« Reply #17 on: April 28, 2010, 08:46:47 PM »
Onwards and upwards, mate!
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Galvo
billybags
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« Reply #18 on: April 29, 2010, 05:32:00 AM »
One day at a time Adam, stay positive.
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Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #19 on: April 29, 2010, 05:42:38 AM »
Glad to have you back Adam . hope you're feeling better. :cuddle;
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Ken
Stoday
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« Reply #20 on: May 01, 2010, 07:02:25 PM »
Good to see you've found your cloud's silver lining at last.  :2thumbsup;
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
Bub
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« Reply #21 on: May 03, 2010, 01:07:54 PM »
It is encouraging for all of us to see someone who is fighting and winning. Thats you my friend!
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kitkatz
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« Reply #22 on: May 08, 2010, 10:05:54 PM »
Hospital visits and sickness can sure take it out of you mentally.  I hope you are on the way out of the Pit of Despair you found yourself in.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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