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Des
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« Reply #25 on: June 17, 2010, 06:06:55 AM »

I have always wondered myself what is the right thing to say. I sometimes feel guilty that people at church have me on the prayer list, because I feel good most of the time. It does not mean that I am cured it just means that the Dialysis is working the way it should. I still need a kidney though and I spend 12 hours a week attached to a machine.

so..... what do I tell them when they ask?

I feel fine now... but keep on praying that I get a transplant soon or don't let the smile fool you? 

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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
natnnnat
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« Reply #26 on: June 17, 2010, 11:12:33 PM »

Say you feel great, obviously the prayers are working...   :thumbup;
 [I guess it wont work if they are specifically praying for a kidney for you... but might be okay if they have you in their prayers, which is more general?]
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
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