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Author Topic: What do you crave...?  (Read 155310 times)
raina
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Ice
« Reply #50 on: January 09, 2007, 05:48:43 PM »
I never liked it before I got sick, but now I crave the yummy crunch of ice nonstop.  Over half my fluids are taken in ice form.

The nurse had the nerve to tell me that ice counts as water.  Really?

I have managed to keep good potassium despite eating alot of tomatoes/spagetti sauce, I guess I don't absorb it as much.  I also crave nuts, green leafy foilage, and edimame.
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angela515
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« Reply #51 on: January 09, 2007, 07:21:32 PM »
Mmmmmmmm Spaghetti. I could possibly eat spaghetti everynight for supper and never get tired of it... i'm wierd like that, but spaghetti rules. I make sure I take my binders b/c i'm not cutting out spaghetti, wooooooooooooo!
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aharris2
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« Reply #52 on: January 22, 2007, 03:29:44 AM »
i don't crave anything because i eat the shit out of anything i like  :clap;......then i take my load of binders  :beer1;...hmmmmmmm what a way to live, no starving no craving.  :thx;...lots of milk n bad for you food.  :angel; .just my way of life

later

Rolando
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

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Ken Shelmerdine
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« Reply #53 on: January 22, 2007, 05:40:45 AM »
A glass of ice cold semi skimmed milk at bed time. I swear it takes me much longer to get to sleep now that I don't drink it.
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Ken
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« Reply #54 on: January 22, 2007, 01:25:21 PM »
I crave everything I shouldn't and nothing I should!  ;D
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mallory
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« Reply #55 on: January 23, 2007, 09:09:38 AM »
Lately I'm craving Lay's Hot and Spicy Barbecue potato chips.  It's weird because I usually don't like barbecue potato chips, but I tasted this kind at work and now I could eat them by the bagful all day long.

Your taste sure does change on dialysis, all kinds of things that I used to like I don't want anymore, and some things I didn't used to like I crave all the time.
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goofynina
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« Reply #56 on: January 23, 2007, 05:16:53 PM »
Lately i have been craving NUTS, NUTS AND MORE NUTS... I love the Blue Diamond Almonds flavored with chile, omg, i want some NUTS!!!   
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« Reply #57 on: January 23, 2007, 05:31:46 PM »
Lets try chocolate, macadamia nuts, and at Christmastime almond roca.  I've been liking ice cream lately too but I'm really picky about the brand.  I also crave anytime away from work but that can't be eaten.
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« Reply #58 on: January 23, 2007, 10:30:37 PM »
I mentioned that I craved an old fashion Clamatos...I went out with my wife and got one....and I am still alive...so no more craving for that.... :beer1;
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« Reply #59 on: January 24, 2007, 01:27:39 AM »
Quote from: goofynina on January 23, 2007, 05:16:53 PM
Lately i have been craving NUTS, NUTS AND MORE NUTS... I love the Blue Diamond Almonds flavored with chile, omg, i want some NUTS!!!   

 :o

Nevermind... wayyyyyy to easy.
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aharris2
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« Reply #60 on: January 25, 2007, 03:27:06 AM »
are you people still craving???  didn'tyou read my post/?? you can eat anything and everything you want as long as you take your binders...my labs are always good, so get to know yourselves and enjoy a great meal.

pop,

Rolando
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

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angela515
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« Reply #61 on: January 25, 2007, 05:50:04 AM »
That is so NOT true for everyone, Rolando. Me for example, while I was on hemo, I tried doing that, my phosphorus still was uncontrollable. When I switched to PD, I decided to try that again, again it didn't work for me. As it does not work for everyone. Everyone's body is different. So please don't assume everyone can do it just because you can. It's still not good for you, but hey.. enjoy it while you are able to do it.
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BigSky
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« Reply #62 on: January 25, 2007, 06:05:12 AM »
Binders do not always take care of it because all too often people underestimate the amount of phosphorus they are eating or they eat a meal or meals loaded with too much phosphorus for the binders to work effectively for that meal. 
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Zach
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« Reply #63 on: January 25, 2007, 07:45:31 AM »
Rolando, I know you have the zest for life.   Reading "Is your PCP/HMO trying to kill you? Beware! Be aware!!!"  http://ihatedialysis.com/forum/index.php?topic=2339.msg32665#msg32665     tells part of your story.

As you know, relying on binders is not going to help with potassium, regardless of how many pills you take.
But as you stated in a different post, you only eat one meal a day.

In any case, this is an interesting discussion.  Is it a food we crave or is it a gluttonous portion of a food we crave?

If we manage our renal diet correctly, we can indeed eat most foods we crave.  Just not every day, and not always "super-sized."  It's about portion control.
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« Reply #64 on: January 25, 2007, 06:25:04 PM »
i saw my neph today and told him i had been craving for a dr pepper.  i said i had one the other day with my lunch and i took extra phoslo.  he about chewed me out when i said that.  not about drinking the dr pepper but taking an extra phoslo.  he said i shouldn't take extra phoslo because phoslo is basically calcium just like a tums. and too much calcium is bad for you and you can get calcium deposits.  he said if i need to take extra binders he is going to consider switching me over to renagel since my calcium is looking good.

by the way....my phosphorus last week was 10.1.    :o  :o   :o  :-[  :-[  :-[
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« Reply #65 on: January 25, 2007, 06:43:56 PM »
Tubes, I did not know that.  I have both Renagel and Phoslo on hand.  So, the next time I need an extra binder I'll take Renagel.

Good tip.             :cuddle;
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aharris2
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« Reply #66 on: January 26, 2007, 12:42:35 AM »
i take a crapload of renagel and so far i have had no side effects, like martha stewart says... it's a good thing. btw i like this emoticon so i use it a lot: :rofl;
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
aharris2
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« Reply #67 on: January 26, 2007, 04:33:03 AM »
Martha Stewart! dude, you are disowned!!!

Seriously, that comment about PhosLo was very important. We can match binders to what Rolando eats because he uses Renagel. It does not leave the digestive tract. If we miscalculate (guess wrong) either the phosphorus goes too high or too low. On the other hand, with PhosLo which Rolando used to use before calciphylaxis hit) the excess calcium does indeed enter the bloodstream, as can the calcium and the heavy metals in other antacid type binders. Not good!

Renagel gives us some freedom to manage ourselves.
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
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« Reply #68 on: January 26, 2007, 04:58:45 AM »
Renagel gives me diarrhea.  Phoslo plugs me up.  So, I mix the two and it is better.  Not perfect, but better.
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tubes
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« Reply #69 on: January 28, 2007, 06:22:43 PM »
I'm glad that was useful to you all. 

Rerun, I didn't know you could take 2 different binders.  I'll have to ask my neph about that.
 :2thumbsup;
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"To be happy is the choice I wish to make in spite of the circumstances that are strewn in my path."

1996 - started incenter hemo
a few months later, started PD
2005 - started incenter hemo
AGAIN
  - on transplant list as of August 7, 2009.
2011/June - 15 years on "D"
Transplant - Tuesday October 18th 2011
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« Reply #70 on: January 28, 2007, 06:23:52 PM »
I crave dark chocolate!
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Take it one day, one hour, one minute, one second at a time.

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« Reply #71 on: January 28, 2007, 06:50:05 PM »
Quote from: tubes on January 28, 2007, 06:22:43 PM
I'm glad that was useful to you all. 

Rerun, I didn't know you could take 2 different binders.  I'll have to ask my neph about that.
 :2thumbsup;

My husband takes both 1 fosrenol and 2 phosLo per meal-taking just fosrenol wasn't as effective and just phoslo his calcium was too high

he craves watermelon
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« Reply #72 on: January 28, 2007, 07:36:32 PM »
Yesterday every time I passed an apple on someone's counter, I wanted it.   A big, shiny red apple.  So when I got home I sliced one up and ate it with a little Splenda over it. It was yummy!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #73 on: January 28, 2007, 07:41:09 PM »
I've decided I can drink Rice Milk in place of dairy milk.  For the first time in my entire life I have no dairy milk in my refrigerator.

Rice milk comes in Carob flavor.  I heat it up in the microwave and pretend it is Hot Chocolate.  Yumm
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« Reply #74 on: January 30, 2007, 11:29:47 AM »
As I mentioned at the start of this thread, Jenna craved Coke (well, I guess she's
more partial to Pepsi) and she missed having it most of all. Actually, she did have
it occasionally because her labs were always normal while on dialysis.
So at her hospital exit review session after the transplant - what was one thing
they told her NOT to have??? Cola! They said soft drinks have too much phosphorus
for kidney patients! Then they started her on potassium and phosphorus nutritional
supplements because the new kidney was throwing off too much. Crazy huh?
 ???
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