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Dialysis: General Discussion
Help ! Help! Help!
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Topic: Help ! Help! Help! (Read 5703 times)
KICKSTART
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In da House.
Help ! Help! Help!
«
on:
March 15, 2010, 04:42:56 AM »
OMG after 3 years of waiting ive finally got my move !!! Over here we have housing assoc who we can rent houses from (after long wait lists and fitting the criteria) After moving back from Scotland when my husband left me (and stopped paying the mortgage on our farm) I moved into one of these houses ,but its in a really bad area , druggies, louts and loads of horrible vandals and as you know, it was no where near my mum. So for 3 years ive been on the waiting list for a transfer to near my mum. Well today it has come up ..4 doors down from my mum !!!
Now im in a blind panic ..how am i going to sort this house out? and organise moving and dialysis ? I only have 2 weeks to do everything , thats all they allow you. Help ..any tips would be most welcome please ! Especially if you are in the UK and can think of anything that might help?
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
RichardMEL
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Re: Help ! Help! Help!
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Reply #1 on:
March 15, 2010, 05:05:00 AM »
Sorry KS - I don't have any helpful tips other than that this is a great time to do a general clean up as part of your move and think seriously about stuff you just don't need and chuck it before you move......
I just really wanted to say how great it is you FINALLY got what you have waited for for so long.. kind of like getting THE CALL hey?!!
This is great news because you've wanted, and needed, this move for so long! 4 doors down - that's awesome!
I guess good things DO happen to those that wait....
hmm I've been waiting too......
Logged
3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!
BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Darthvadar
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Re: Help ! Help! Help!
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Reply #2 on:
March 15, 2010, 05:11:51 AM »
BRILLIANT news, KS!!!!!....
So glad to hear that the move's finally happening!!!!....
We moved into our bungalow four and a half years ago, and it was exhausting!... Thank God it's over!!!.. And that was BEFORE Mum went into KF....
The only advice I can offer is to look at everything you're packing... If you haven't used it in the past year... LEAVE it!.... Put it in a bag for the charity shop.... You don't need clutter...
Ask at your kidney assoc., or your local hospital if there's any financial help available to help meet the extra costs... If you're involved in a local church or community group... Have a packing party... Get a few people around... Feed and water them, and watch them do all of the work!... Your local shop will be delighted to give you boxes for packing... They have to pay to get rid of them...
When you pack a bag, or box, mark it with the room it's to go into on arrival at your new place... Pack a 'Now' box.... This has all the things you need as soon as you get there.. Meds, teabags, soap, food, pet food, etc.... Put some chocolate, or sweets into it... You'll be amazed how often your energy levels are in your boots!....
Talk to the Housing assoc. about the short timescale they've given to you.... They can't insist on you moving as quickly as a healthy person... They have to make reasonable allowances for the fact that you have this significant disability... It's the law... Remind them of the Disability Discrimmination Act, and their obligations under it!.... Be a B with an itch if you have to!....
The VERY best of luck with it all.... I'm SO pleased it's worked out for you....
Oh, have a chat with the RSPCA... They may be able to get your hounds looked after for a few days around the time of the move... You'll need all the help you can get!....
Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
monrein
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Re: Help ! Help! Help!
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Reply #3 on:
March 15, 2010, 05:28:58 AM »
Kickstart, I don't have any extra suggestions about help for the move (except perhaps to be sure and label your boxes as you go along with the packing) BUT I did want to say how glad I am for you that the move is finally happening. I know you've wanted this for quite some time and it will be nice to live closer to your Mum and hopefully that will mean extra support for you. You really deserve to catch a break from the struggles of the past while and I'm happy that something good has come along for you. I wish you had a month at least and I like Darth's suggestion about seeing if you could get a little extension, even another week would help, due to being on D.
I also agree about being ruthless with stuff you don't really use.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
KICKSTART
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Re: Help ! Help! Help!
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Reply #4 on:
March 15, 2010, 09:07:02 AM »
Thanks everyone , some great ideas there ! My head is in a spin ! where to start? that and keep up with D ! At the move time i may have to miss a session , i can just imagine how that will go down !! But surely just this once ? This is when i wish i was still on PD , at least i could do my exchange and then crack on , im so worried about having crap days at hemo now , then coming home and not being fit for anything.
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Rerun
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Re: Help ! Help! Help!
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Reply #5 on:
March 15, 2010, 09:09:29 AM »
Throw all your shit on a truck and move. You have the rest of your life to sort.
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Deanne
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Re: Help ! Help! Help!
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Reply #6 on:
March 15, 2010, 09:37:20 AM »
Congratulations!!!!! You can do it. Moving is exhausting, but remember, it's just for a couple of weeks. Once everything is in your new home, you can take your time unpacking. Do an hour or two at a time. Set a timer, throw stuff in boxes until the timer goes off. Reset the timer for a half hour or an hour later. Stop and rest. When the timer goes off, reset it for another hour or two and get back to work.
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Deanne
1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
-Lady Noir-
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Re: Help ! Help! Help!
«
Reply #7 on:
March 15, 2010, 11:46:53 AM »
Quote from: Rerun on March 15, 2010, 09:09:29 AM
Throw all your shit on a truck and move. You have the rest of your life to sort.
Congrats Kickstart!
If you can afford a removal truck i reakon that's the way to go. Maybe leave all your D gear till the very last, as i guess most of that stuff is boxed anyway
Logged
Expose yourself to your deepest fear. After that, fear has no power, and the fear of freedom shrinks and vanishes. You are free
..Nik..
Fiancee to Mike
Mikes 'history'....
Born September 12 1983
Seizure July 2003 [Unrelated to kidney]
Diagnosed with 'Polycystic Kidney Disease' July 2003 (Wrong diagnosis)
Diagnosed with IgA Glomerulonephritis April 2004
On active transplant waiting list 2006
Hyperparathyroidism developed gradually
Parathyroidectomy May 2009 (Affected kidney function)
Hospitalized for hyperkalemia June 2009
Catheter inserted June 2009
Started CAPD June 2009
Stared APD September 2009
ABO Incompatible transplant 01 December 2010
Donor = Mikes father Greg
texasstyle
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Re: Help ! Help! Help!
«
Reply #8 on:
March 15, 2010, 11:58:56 AM »
yeah on the moving! It is good to be out of that area. I lives in a beautiful apt. complex for years until new owners took over. "Slum Lord" was an understatement. Everyone that had been there 10-20-even 30 years ended up moving out. I now live in a wonderful condo and I love it. That is excellent to be near family. We moved kinda quickly too so for us the main thing was not taking ANY junk without. We simply threw out a lot of stuff. The less you have to move the better. You can pack a house quicker than you think. Once you move you have all the time in the world to unbox. I checked the new house out & looked for what I might need right away & too a close look at where all outlets and fixtures were so I could "set 'up" ahead of time in my mind. You're gonna make out ok. Go at a pace that is safe for you. When you need rest, sit and take it. Don't push yourself especially on dialysis days. This will all work out and you'll surprised in the end. Movings always a big pain, but seems like you'll be better off in the long run. Your new home will come together quicker than you think too. Congrats on your new flat! (Isn't that the term you guys use? lol I'm a US girl lol) Good luck!
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caregiver to husband using in-center dialysis 4 years
billybags
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Re: Help ! Help! Help!
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Reply #9 on:
March 15, 2010, 11:59:59 AM »
Hi KS that is really good news, you will feel so much better knowing your mum is only a stones throw away. As people have said have a good clear out and only take what you will use, you have got no excuse now to do that. So ,pleased for you. Can you arrange to move on your 2days off from D, saves you missing one.
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KICKSTART
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Re: Help ! Help! Help!
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Reply #10 on:
March 15, 2010, 12:09:31 PM »
Hi bb , loved the emails by the way
Sadly my 2 days are sunday/monday and no one moves on sundays! . I wanted a day to move and the next day to recover , maybe unpack some stuff !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
billybags
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Re: Help ! Help! Help!
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Reply #11 on:
March 15, 2010, 12:20:28 PM »
You will work some thing out. You sound dead excited. Is your unit going to be nearer your new place or further away?
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Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
Re: Help ! Help! Help!
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Reply #12 on:
March 15, 2010, 12:23:57 PM »
Hi Kickstart that's great news. Could you get social services to help with the costs on the grounds that you have kidney failure?
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Ken
Jean
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Re: Help ! Help! Help!
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Reply #13 on:
March 15, 2010, 12:32:48 PM »
Lots of good advice Kickstart. altho I do like Reruns the best. Yes,it will be tiring, yes, you will be exhausted, but in the end, it will be all worthwhile. So happy you get to move and are closer to your Mom, what a deal. Good luck and dont miss any dialysis sessions .Not good for you.
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One day at a time, thats all I can do.
paris
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Re: Help ! Help! Help!
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Reply #14 on:
March 15, 2010, 12:55:14 PM »
This is marvelous news! I am very excited for you. You will be totally exhausted, but it will be so nice when it is all over. And how good to be near your Mum. It all sounds just marvelous. Wish I could pop over and help pack. I am great at throwing things out and giving things away. Keep us updated so we can all celebrate when you are in your new place.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Romona
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Re: Help ! Help! Help!
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Reply #15 on:
March 15, 2010, 01:18:42 PM »
Best of luck on your move. I know you have waited a long time.
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st789
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Re: Help ! Help! Help!
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Reply #16 on:
March 15, 2010, 01:27:31 PM »
Congratulation.
Let go of stuff you no longer use. Pack light and little to your new place. Good luck.
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jbeany
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Re: Help ! Help! Help!
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Reply #17 on:
March 15, 2010, 03:07:37 PM »
On that short of notice, I'd go with Rerun's advice - sort from the boxes as you unpack, and see if you can get help with the packing. Moving is the best way to unclutter your stuff!
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.
galvo
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Re: Help ! Help! Help!
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Reply #18 on:
March 15, 2010, 03:56:43 PM »
"When in doubt, throw it out!". Have fun!!
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Galvo
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Re: Help ! Help! Help!
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Reply #19 on:
March 15, 2010, 05:44:51 PM »
My only advice is take it easy. Research says that shifting house is as stressful as losing a spouse. When I last shifted. I paid someone to pack and unpack my gear - absolutely everything. But still a nightmare. Never again. If I won lotto and was in a position to buy a mansion, I still would not move. Best of luck, and repeat, take your time.
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Started Hemodialysis Anzac Day 2005
Patiently waiting for a transplant
Started PD New Year 2010
Taken off transpalnt list, Jan 211
Sunny
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Sunny
Re: Help ! Help! Help!
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Reply #20 on:
March 15, 2010, 10:28:48 PM »
You finally got your wish, and so close to your mum too. This is good news.
As you pack, just try to unclutter the house of things you don't use anywmore. Each day work on a little bit more. Good luck.
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Sunny, 49 year old female
pre-dialysis with GoodPastures
Slywalker
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Re: Help ! Help! Help!
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Reply #21 on:
March 16, 2010, 05:10:16 AM »
WOW Kickstart - finally - good news. I know everything will "sort" out in the end. Have fun getting settled.
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Poppylicious
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Re: Help ! Help! Help!
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Reply #22 on:
March 16, 2010, 09:11:54 AM »
That's fabulous Kickstart! You must be very excited/relieved that you're finally moving.
Now, write a list of *everything* you need to do and tick it off as you do it (and I can guarantee you'll still be adding to it the day before you move). Also, hire a skip for a couple of days and dump all your tat into it (or borrow someone else's skip in the middle of the night). Unless it's good tat and that can go to charity.
Once you've done that, please come to my house and get rid of all my clutter too. Cheers duck.
(I like Rerun's advice best ... pack everything and sort it out at the other end when you've a) got the time, b) can find a home for things, and c) your mum can pop in and out to help you at leisure.)
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- wife of kidney recepient (10/2011) -
venting myself online since 2003
(personal blog)
grumbles of a dialysis wife-y
(kidney blog)
sometimes i take pictures
(me, on flickr)
Everything was beautiful, and nothing hurt.
RichardMEL
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Re: Help ! Help! Help!
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Reply #23 on:
March 17, 2010, 03:08:29 AM »
KS!!! Please do your level best to NOT miss a session - for two reasons:
1. You don't want to give "them" more ammuntion to claim you're being non compliant or something.
2. It's prior to a weekend - you really can't go between Thurs and Tuesday - it's too long!
I know it's not much time, but *I* would call the unit (I know that prospect is about as thrilling as a root canal) and explain the situation and ask if there is some way you can either move your session to Sat morning earliest, or say Friday afternoon/evening, perhaps going Thurs, Friday PM, Monday PM, Thurs normal(so your "weekend" is thus Tues and Wed).
I think you do what 3 hours? If you can even get that on a Sat morning shift, that should still give you the late morning/afternoon to move. Perhaps your mum could also help in this respect while you are at D and oversee stuff?
There must be a way for you to organise this and NOT miss D - I really do not like that idea.
Logged
3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!
BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
cdwbrooklyn
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Re: Help ! Help! Help!
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Reply #24 on:
March 17, 2010, 07:59:15 AM »
This is wonderful news and I hope everything for you go as planned.
Logged
Dailysis patient for since 1999 and still kicking it strong. I was called for a transplant but could not get it due to damage veins from extremely high blood pressure. Have it under control now, on NxStage System but will receive dailysis for the rest of my life. Does life sucks because of this. ABOLUTELY NOT! Life is what you make it good, bad, sick, or healthy. Praise God I'm still functioning as a normal person just have to take extra steps.
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