Question for Kidneydoc Re: Bi-Lateral Nephrectomy and CAPD...

[Darthvadar]

Hi to all....

Kidneydoc....

Can a person who has a Bi-Lateral Nephrectomy remain on CAPD???....

Mum's fighting a losing battle with UTIs, and the hospital has suggested that the only way forward is to remove both kidneys....

Mum was on haemo for a year, and she was totally miserable... She's on CAPD now, and despite two bad bouts of peritionitis, she has been doing well dialysis wise for the past year...

She doesn't want to go back on to haemo, and I fully understand her position...

If she has the operation to remove her kidneys, can she stay on CAPD???...

Would appreciate your advice...

Would also appreciate it if anybody with any experience could advise us, please!...

Thank you very much...

Darth....

[del]

Darth,
I think she would have to go on hemo until she heals but not sure after that. I'm sure some other people would have more advice than me.  Take care.

[Darthvadar]

Yes Del...

Thanks for the advice...

She realises she'll need haemo for a while after the op.... She just doesn't want to stay on it!...


Darth....

[billybags]

Darthvadar, Have you sent kidney doc a pm to tell him you have posted, I always find this a good idea because I suspect he gets busy.

[Darthvadar]

Darthvadar, Have you sent kidney doc a pm to tell him you have posted, I always find this a good idea because I suspect he gets busy.

Thanks Billybags...

I didn't do that.... I'll send Kidneydoc a PM right now!...

You're thinking, Girl....

God bless...

Darth....

[cariad]

Darth, I don't know the answer to your question, but I think it would depend on how much damage is done to the peritoneum. I was told I cannot try PD because of the gianormous midline scare I have from transplant, that I would have too many adhesions (scarring and the like) to make PD effective. I would think your mother's best hope of staying on PD would be to seek out laproscopic, and let the surgeon know that the hope is to be able to keep on with that type of dialysis.

Good luck to you both. 

[Darthvadar]

Good idea, Cariad....

That thought crossed my mind, too!...

Much appreciate your advice, and you taking the time to chip in with your support....

Oh Gawd, this bloody disease is such a roller coaster!!!...

Darth...

[okarol]

This is from 2006 but may be helpful to read
Perioperative Management of Peritoneal Dialysis Patients: Review of Abdominal Surgery
http://www.advancesinpd.com/adv06/309-Kleinpeter%20final%20119.pdf

[Darthvadar]

Thanks a million, Karol...

That's reassuring....

Mum does NOT want to go onto haemo...

I'm going to keep that on file...

Hope all's well with you!...

Darth....

[looneytunes]

Darth, I can't offer much other than to tell you that you and your mum will be in my prayers.   

[Darthvadar]

Darth, I can't offer much other than to tell you that you and your mum will be in my prayers.   

Thanks Looneytunes...

Much appreciate the prayers...

No sleep last night... Mum's just too distressed!...

God bless, and thanks again....

Darth...

[whiskeyfrank]

Darth

I had a billateral nephrectomy in October 2009, (bear in mind i am in the uk so may be different elseware) they never gave me the option of CAPD and i was told that after the op hemo was my only option. I did consider CAPD before having them out, but never got chance. I had a lot of pain post op in my stomach and personally i would not of considered capd. I was lucky that i had a planned transplant so only stayed on hemo for a few months, maybe mum can go back to CAPD once recovered. It took me 2 months to clear the pain, but back at work after 4 weeks, I just wont be doing sit ups for the immediate future!!

I guess i just believed the docs and never questioned it hemo. I am not a doctor and can offer no educated medical opinion on this option though.

If CAPD is an option (and the paper seems to confirm this)  its certainly something i will be asking my neph about.

Sorry if this sounds negative I really dont mean to be, its just my experience. By the way my kidneys were over 25lbs and the damage and scar size i got was due to the size of them, and the difficult in removal so thats maybe why i had more pain.

But i was out of hospital after 7 days post nephrectomy and felt miles better with them removed.

I truley hope things are going to get better for your mum.

[Zach]

I don't think KidneyDoc comes to this site anymore.

Perhaps he got what he wanted --more traffic to his website.

[Darthvadar]

Thanks Folks...

I realise that if a transplant's an option, going on haemo's easier... You can see an end to it.... A transplant's not an option for Mum, so haemo's certain to be forever.... She's STILL saying that she's not going to go back on haemo...

Oh Gawd... We're climbing the walls...

God bless you all, and thanks again!...

Darth...

[fc2821]

      for you and your Mom Darth.  I'm stuck on hemo unless I can get a transplant.   

[kidneydoc]

Nephrectomy may be done extraperitoneally which will not damage the peritoneum hence preserving it for PD.

The absence of residual renal function will mean that her PD prescription will have to be optimized and she may need to have a cycler during the night in order to gain adequate clearance. But I would be optimistic that if everything goes according to plan she would be able to remain on PD.

[Hanify]

That sounds good - thanks Kidneydoc.  Now your mum will just be worried about having to go on the machine again Caro.  But even kif she does, they might find out why it didn't drain properly the last time and sort it out.  The macine would be better for her as then she only has one cap change....let us know when you knw anything.

[Darthvadar]

Kidneydoc....

Thank you so much for your help.... People such as yourself who are willing to give freely of their time, and their professional expertise are very few and far between, and I for one very much appreciate it!...

The cycler was tried before, but she actually gained fluid overnight (looked like the Michelin Man)... But if she has the nephrectomy, would that possibly change???... Would it be worthwhile to give the cycler another go???... I just want to be armed with as much information and advice as possibe before we go back to the hospital in April...  I feel it's easier to be assertive when I can show that I know what I'm talking about... Mum's consultant Neph. is great, but we don't always see him, and of course, registrars are reluctant to be as flexible as he can be..... We'd really love to have Mum on the cycler... We know it'd give her better dialysis, and it would give her a better day too... Be nice to be able to go out without worrying about being home for dialysis...

You're right, Hanify... That gives us both more hope.... And yes, of course, I realise that one connection per day is far less likely to give her paretionitis than several....

Thank you both!....

Again, Roger, You're a gem... I really appreciate your help!...

God bless...

Darth....