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KICKSTART
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« on: January 10, 2010, 01:21:59 PM »
Ive not been around much cause i feel like crap. I had my brain scan on friday , no results yet! The pain in my eye is getting really bad and lasting longer , so its wearing me down. Still having issues with the sister on the unit (shes a total b****) There is a pattern developing when shes on . For weeks now i have not been in that little room and out of the light , in fact no one gives a shit, so if i cant stand the pain im just doing 3 hours and demanding they take me off, not good i know, but the pain is unbearable and now lasts for days. This sister is very sneaky so i dont know know what i can do anymore ? She has started to make me wait half an hour or so to put me on when i get there, NO shes not busy , shes walking round laughing and talking. She even commented on my clothes the other day !!!! Its been minus 11 here! and i went in wearing a t shirt and a fleece and she said 'you've got enough clothes on havent you ? ' What the hell has it to do with her? She seems to have singled me out for bed allocation and for putting me on (shes the unit boss) That coupled with the pain in my  eye is making me totally miserable , thats why i havent been on for a while .
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
thegrammalady
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« Reply #1 on: January 10, 2010, 02:04:57 PM »
oh kickstart, i feel so bad for you. doesn't that woman have a boss, she can't possibly be in charge of everything. i hope they find out what's wrong soon, and get you some help. know that we are thinking about you and wishing the best for you.
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Sunny
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Sunny
« Reply #2 on: January 10, 2010, 02:20:19 PM »
Your time at dialysis does not sound very pleasant at all. This must be very hard on you. I am so sorry things aren't better for you.
I am hoping your brain scan turns out o.k. I get migraines and sometimes take migraine meds which helps. Hopefully your head-ache will be just as simple. Good luck.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
paris
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« Reply #3 on: January 10, 2010, 03:02:26 PM »
This is awful, Kickstart.   You have been through too much.  I am so sorry that the pain is unbearable.  Please let us know when you get the results of the scan.  I am worried about you.  We love you.  Take care   :grouphug;
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monrein
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« Reply #4 on: January 10, 2010, 03:05:02 PM »
 :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
KICKSTART
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« Reply #5 on: January 10, 2010, 03:10:02 PM »
Quote from: Sunny on January 10, 2010, 02:20:19 PM
Your time at dialysis does not sound very pleasant at all. This must be very hard on you. I am so sorry things aren't better for you.
I am hoping your brain scan turns out o.k. I get migraines and sometimes take migraine meds which helps. Hopefully your head-ache will be just as simple. Good luck.

I wouldnt be worried if it was migraine ! But this is a pain in my eye and just above my eyebrow , it feels like someone is drilling through it ! In fact even when i dont have the pain i have a very tender area just above my left eye all the time . Ps my right eye and right side of my head are fine !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Darthvadar
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« Reply #6 on: January 10, 2010, 03:19:48 PM »
Hi KS...

Good to see you again...

Hope they can get on top of those headaches...

Best of luck with everything...

Love...

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
kitkatz
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« Reply #7 on: January 10, 2010, 09:08:56 PM »
I hope things get better for you.  :grouphug;
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Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

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galvo
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« Reply #8 on: January 10, 2010, 09:20:38 PM »
Likewise. Dialysis, itself, is bad enough, without all the rotten comlplications.
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Galvo
Jean
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« Reply #9 on: January 10, 2010, 10:57:59 PM »
hope it gets better for you soon KS, geez, enough is enough already.   :beer1;
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One day at a time, thats all I can do.
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