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Author Topic: Hoping this might help someone in the future  (Read 3090 times)
Lucinda
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« on: November 11, 2009, 08:59:58 PM »
Hi everyone.  I decided to post my recent experience in the hope it may help someone. I have had huge issues with my blood pressure.  I have been admitted to hospital a number of times with readings around 290/180.  No amount of blood pressure medication helped.  It has to do with my own kidneys producing too much renin and when I take fluid off, they get dehydrated and my blood pressure rises to ridiculous levels.  I am only able to do a few hours every day on the machine but I have now found through experimenting, that if I take off fluid at the start of dialysis and then put half of it back on in the last hour of dialysis then my blood pressure doesn't rise.  My neph said she hasn't seen the problem before but seems my residual function was quite good when I started and my kidneys are still kicking up a stink about me being on the machine.

It has taken well over three months to find a solution but I was determined to find another way to their suggestion of taking out my kidneys altogether.  I still have good residual function and I didn't want to lose it that dramatically.  After eight months on dialysis, I still don't need to take any fluid off.  My own kidneys are still get rid of all the fluid, just not the toxins.

Residual fuction is generally an asset so taking out your kidneys should be a last resort. Just wanted to let you know there are other ways of reducung your blood pressure when you are new to dialysis and your own kidneys are still producing renin.  Short daily is working well for me. 
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galvo
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« Reply #1 on: November 11, 2009, 10:29:58 PM »
Thanks for that, Lucinda. To-day my BP fluctuated from 153/91 to 180/90 to 147/94. I'll keep watching my readings.
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Galvo
RichardMEL
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« Reply #2 on: November 12, 2009, 03:08:20 AM »
WOOHOO!! A post fron Lucinda!!!!!

not such good news about the BP rises... that is scary high!!! yikes...

definitely something to keep in mind. I hope you can keep going without needing your kidneys removed!!!

good to hear from you!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
monrein
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« Reply #3 on: November 12, 2009, 04:51:34 AM »
Sorry to hear you've been having such a tough time with your BP Lucinda.  I'm really glad you've found a solution though and I was also glad to see a post from you.  Keep well girl.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willowtreewren
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« Reply #4 on: November 12, 2009, 04:53:34 AM »
It is good to hear from you, Lucinda!

The short daily treatments more closely mimic natural kidney function. I hope this solution continues to solve your problem!

Aleta
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Wife to Carl, who has PKD.
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Goofy
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« Reply #5 on: November 12, 2009, 05:43:14 AM »
Persistence pays!!  See, the doc's don't always know what's best!
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jbeany
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« Reply #6 on: November 12, 2009, 12:09:08 PM »
Hi Lu!

Glad you worked it out without resorting to surgery!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
paris
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« Reply #7 on: November 12, 2009, 12:30:17 PM »
Glad things are getting better.  Thank you for sharing what you have gone through.  Nice to see your post!
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thegrammalady
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« Reply #8 on: November 12, 2009, 03:23:26 PM »
good to hear from you, you are missed. sorry to hear of the problems you have been having, glad you found a solution.
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Chris
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« Reply #9 on: November 12, 2009, 09:31:24 PM »
Hi Lucinda,
Sorry to hear what you have gone through, but glad you have found a solution bfore taking that big step of having your kidney's removed.

Hope the rest goes well for you Lucinda.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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