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Author Topic: Transplant Wait  (Read 1840 times)
murf
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« on: October 09, 2009, 03:23:49 PM »

I am sure this has been asked before but I would like to know how long you have been waiting for your first transplant. I have been on the list for nearly four years and beginning to get a little frustrated. But I understand that 6 years is the normal waiting period in Australia.
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Started Hemodialysis Anzac Day 2005
Patiently waiting for a transplant
Started PD New Year 2010
Taken off transpalnt list, Jan 211
petey
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« Reply #1 on: October 09, 2009, 04:54:24 PM »

Murf --
We're in the US (state of North Carolina).  The first time around, my husband Marvin waited on the "list" for 5 and a half years; then, he didn't even get a kidney from the list (live donor).  That kidney hung in there for a little over three years.  This second time around, he will have been on the list for six years this Oct. 21.  He has O+ blood type (very common -- so more O+s in need) and now he has a very high PRA (98%) because of his transplant.

...and so, we wait some more...  Good luck to you.
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Rerun
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« Reply #2 on: October 09, 2009, 08:01:09 PM »

This should really be in Transplant Stories........ but I'll not move it.

I waited 9 months the first time in 1988.  Boy have times changed.
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RichardMEL
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« Reply #3 on: October 10, 2009, 05:27:06 AM »

I am sure this has been asked before but I would like to know how long you have been waiting for your first transplant. I have been on the list for nearly four years and beginning to get a little frustrated. But I understand that 6 years is the normal waiting period in Australia.

I'd been told it was 4-5 years here, but I'm in Victoria. I've been waiting for nearly four years myself.

I found out today that a guy in my unit who had been on D around a year or so prior to me starting just got a transplant yesterday. They also had another one last night.

I know the waiting is so very frustrating. I feel it too. Specially when all the nurses in my unit declared that I am supposedly "next"

We have a couple of aussies on here who got transplants at between 4 and 5 years of waiting. The most recent was Wattle a couple of months ago.

I think it will be soon for you mate. Hang in there - your time will come!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
rookiegirl
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« Reply #4 on: October 11, 2009, 08:16:11 AM »

I'm also O+ and was told the average wait for my blood type is 5-7 years.  I was on the list May 2008 and received my transplant on March 2009.  Don't loose hope because you never know.  It could happen when you least expect.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
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