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Author Topic: I started a website and to help raise awareness about dialysis. PLEASE READ!  (Read 5062 times)
Neo
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Dont let dialysis stop you...

« on: October 09, 2009, 07:57:36 AM »

Hey my fellow dialysis buddies! Ive been sick of the lack of awareness about dialysis so I started a site to raise awareness about it and to help try and find a donor to donate to me. Please, Please join in because I know you all will really contribute to the site and make it really come to life with information and links and comments. So many times ive gone to the Doc and told them stuff like I have no energy or any number of side effects form dialysis. And you know what they say? Well when you get your transplant you'll be fine. SO what about while im on dialysis?!?!? We need to get people talking about dialysis and how it can be improved, and  I NEED YOU! MY site is: WWW.CAUSES.COM/MATTSKIDNEY...Please join and participate! YOU all have helped me through so much, so lets do this!!...Thanks everyone!...Neo(Matt) Please let me know about any questions you have..




EDITED: Fixed error in subject line - okarol/admin
« Last Edit: October 14, 2009, 11:59:21 AM by okarol » Logged
KICKSTART
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In da House.

« Reply #1 on: October 09, 2009, 07:59:41 AM »

Im confused  ??? isnt that what we do here ? What do you feel is missing ?
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Neo
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Dont let dialysis stop you...

« Reply #2 on: October 09, 2009, 08:23:49 AM »

 Just check it out. I don't think there can be enough sites devoted to this. And mine is part of the Facebook network where a lot of people don't normally get exposure to this type of thing. Most of us on here are on dialysis or know someone on it. I just want my friends who have helped me through so much on here to be a part of that.
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KICKSTART
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In da House.

« Reply #3 on: October 09, 2009, 08:34:51 AM »

 :2thumbsup;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
kitkatz
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« Reply #4 on: October 09, 2009, 03:19:15 PM »

We are on Facebook, too.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #5 on: October 09, 2009, 10:10:35 PM »

Hey good on you.  Haven't seen you for a while Matt.  How's things.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Rerun
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Going through life tied to a chair!

« Reply #6 on: October 09, 2009, 10:42:26 PM »

Matt can you make a link on your site for IHD?

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Jean
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« Reply #7 on: October 10, 2009, 01:58:12 AM »

I tried to go on it and it wouldnt show up. Maybe a link would be helpful.
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One day at a time, thats all I can do.
Neo
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Dont let dialysis stop you...

« Reply #8 on: October 13, 2009, 11:30:25 PM »

Matt can you make a link on your site for IHD?
Of course !! Ill do it right awaY!! :2thumbsup;
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Neo
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Dont let dialysis stop you...

« Reply #9 on: October 13, 2009, 11:30:58 PM »

Hey good on you.  Haven't seen you for a while Matt.  How's things.
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Neo
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Dont let dialysis stop you...

« Reply #10 on: October 13, 2009, 11:32:16 PM »

Hey good on you.  Haven't seen you for a while Matt.  How's things.
Hi good to hear from you.. I miss my IHD friends..IM doing alright, as good as can be expected you?
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Sluff
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« Reply #11 on: October 14, 2009, 09:29:55 AM »

Good for you Matt.  We can link eachother.I could have hosted you for free. Let me know you can always switch to our server.
« Last Edit: October 14, 2009, 09:31:00 AM by Sluff » Logged
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