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Author Topic: Going to Disney for my 40th birthday and have a dilemma you'd all understand.  (Read 9644 times)
*kana*
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« Reply #25 on: October 10, 2009, 08:29:41 PM »

I found my scooter....It's called the dream!   Looks like I might need to wear my Joe Rocket motorcycle riding gear for this one! LOL
http://www.scootorlando.com/clip/dream/action.html
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PD started 09/08
PKD kidneys removed 06/17/09

Failed donor transplant-donor kidney removed,
suspected cancer so not used 06/17/09

Hemo 06/2009-08/2009

Liberty Cycler-11/09-5/13
Nx Stage-current tx
Diagnosed with SEP 2014
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #26 on: October 17, 2009, 02:19:47 PM »

I found my scooter....It's called the dream!   Looks like I might need to wear my Joe Rocket motorcycle riding gear for this one! LOL
http://www.scootorlando.com/clip/dream/action.html

OMG that's so cute with Mickey on the front!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Savemeimdtba
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« Reply #27 on: October 19, 2009, 10:12:14 AM »

Heh, that is the cutest scooter ever :)

I have a question for people on PD who have been to theme parks - do you ride?  I've been scared to go on any rides or haunted houses and the like because of the catheter and it maybe getting hit.  What do you guys do about that?
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-Kristi-
12/2008 - Began Hemodialysis
03/2009 - Began P.D.

"You gotta swim, swim for your life, swim for the music that saves you when you're not so sure you'll survive"
Restorer
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« Reply #28 on: October 19, 2009, 02:10:55 PM »

Considering my answer to this question, I realized I haven't been to a theme park since I started PD, but I think if I went to one now, I wouldn't hesitate to go on any ride. Yeah, the lap bar for most roller coasters comes down right around the level of my exit site, but the decent roller coasters won't bang you hard against the bar. I don't ride on the especially bumpy roller coasters anway, because they're just uncomfortable and usually give me a headache (if you've ever been on Viper at Six Flags Magic Mountain, you know what I'm talking about ;D).
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- Matt - wasabiflux.org
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3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
Neo
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Dont let dialysis stop you...

« Reply #29 on: October 20, 2009, 07:05:49 AM »

Hello,

I have been on dialysis for a year now and planning a trip to disneyworld to celebrate my birthday.  I have a small issue that is really upsetting me and I need confirmation that it is ok.  I am on PD and work full time, however, I don't think I will be able to manage walking the parks for 5 days!   My husband keeps telling me that it is ok for me to rent a scooter, but I don't feel that I am that disabled.  I guess I just can't face the fact that I am to a small degree.  I am a little over weight, look much younger then my true age and I don't want people to judge me and think I am just fat and lazy.  If you all ever going to Disney would you feel bad about using a scooter?  I also like to blend in with the crowd and know I will get more attention.  I just need reassurance that I do have a condition that justifies renting a scooter.  Thank you kindly.

My gf and I live in Florida so we go to Disney quite a bit. Every time we go I get a special pass form them and it allows you to skip ALL the lines. I didn't use a wheelchair but I wouldn't have been able to make it through the park all day without one I don't think without that pass to skip the lines.
Here is what to do to get the pass: When you get to the park go to customer service are its at the front of the park where you get your tickets just ask an attendant at the ticket booth. Tell them your situation, and they will give you the pass. Don't be ashamed to use the wheelchair or motorized scooter, don't worry about what someone else is thinking. You can laugh at them anyway as you go wheeling by them while they wait in a line for 2 hours! By the way, even a healthy person would have a hard time walking those parks for 5 days, especially in this Florida heat. Let us know how your trip goes. And have LOTS OF FUN!... :2thumbsup;
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bette1
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My dear daughter

« Reply #30 on: October 20, 2009, 08:13:53 PM »

I used a wheelchair when I went to Brookfield Zoo this past weekend with my Daughter.  I can't walk the and when I have the chair we have a great time and we don't worry about what other people think.   
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Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant  #2 5/24/10
CybeR
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DODGERS!

« Reply #31 on: October 21, 2009, 08:26:57 PM »

Oops wrong topic lol
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hurlock1
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« Reply #32 on: October 27, 2009, 03:12:40 PM »

Kana,
For years I pretended to be just fine. I was more worried about the way things looked than the way things were. I just didn't get to go anywhere.  I didn't want to appear disabled. I'm 60 and am on dialysis. I don't care anymore if I am attractive to other people. I got a scooter off of Craigslist for $600.00. I had people coming out from "The Scooter Store" and The Rascal corporation. Insurance and medicare would pay for a scooter if I wanted one for in the house, but I don't need one other than getting from the car to 50 paces (or so) away from the car. Disney land is one of the most disability friendly places in the world. If you want to go, you might as well just break down and rent a mobility scooter. (If you're going to fly) If you are driving and you have room, Get one. as long as you are with people you love, that love you, it doesn't make any difference. If you are worried about being "attractive" to other people, disneyland isn't the place to go for that anyway. People are there for the same thing as you are.
jmz
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