I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
November 24, 2024, 09:28:56 PM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: General Discussion
| | |-+  could you be any ruder
0 Members and 1 Guest are viewing this topic. « previous next »
Pages: 1 [2] Go Down Print
Author Topic: could you be any ruder  (Read 8109 times)
keefbeer
Jr. Member
**
Offline Offline

Gender: Male
Posts: 55


« Reply #25 on: September 11, 2009, 05:27:28 AM »

As do the Brits Richard, the "chuck wagon" comes around a couple of times a shift offering hot and cold drinks, pastries and the "sandwich of last resort" you have to be really hungry to look forward to one of these bad boys!
Logged
KICKSTART
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2786


In da House.

« Reply #26 on: September 11, 2009, 11:34:29 AM »

You get hot and cold drinks and pastries a couple of times a shift?  We get tea (well i think it is!) and one of those last resort , soggy sandwiches , most of which are cheese and something, or something and tomato, how good is that !
Logged

OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Restorer
Sr. Member
****
Offline Offline

Gender: Male
Posts: 786


WWW
« Reply #27 on: September 11, 2009, 01:23:23 PM »

Man, reading all this makes Hemo look like torture. I'm on PD and trying hard to stay on PD, but even though I only go in for about an hour every two weeks or so, I've been given protein bars by my nurse to eat during some of the longer training sessions. But, of course, I'm not in the same room with anyone else dialysing, and I'm not hooked up to a machine.

And, on manuals, I was encourage to eat during an exchange, mostly because the feeling of being full can decrease appetite, so eating while empty during an exchange can mean better nutrition, I guess.

I've gotta step it up to stay on PD or get a transplant. I'm really scared of Hemo at this point.
Logged

- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
Bub
Full Member
***
Offline Offline

Gender: Male
Posts: 248


« Reply #28 on: September 11, 2009, 01:25:46 PM »

I get annoyed when the clinic staff runs around with a Pepsi which I love and cant have.
Logged
Ken Shelmerdine
Elite Member
*****
Offline Offline

Gender: Male
Posts: 1646


Life's a bitch and then you go on dialysis!

« Reply #29 on: September 11, 2009, 02:26:28 PM »

I'm as amazed as Kickstart. We get delicious sandwiches cakes and tea all for free. You can also bring your own food in fact you can eat any rubbish you wish as the techs say it will be dialysed out as long as you eat for example something like a packet of crisps (sorry potatoe chips) in the first hour of dialysis.
Logged

Ken
Ang
Elite Member
*****
Offline Offline

Gender: Male
Posts: 3314


« Reply #30 on: September 11, 2009, 08:59:20 PM »

we  get  a  sandwich,coffe,tea,ice,bikkies


then  you  can  bring  what  ever  you  like  to  eat,the  nurses  might  give  you  a  bit  of  a  sideways  glance, if  its  something  you  should'nt  be  eating,the  nurses  eat  in  their  meal  room,occassionally  you  can  smell  the  food  if  your  up  there  end  of  the  unit.


if  i  was  refused  permission  to  eat  drink,i'd  be  straight  on  to  the  media. :boxing;
Logged

live  life  to  the  full  and you won't  die  wondering
RichardMEL
Member for Life
******
Offline Offline

Gender: Male
Posts: 6154


« Reply #31 on: September 12, 2009, 07:50:54 AM »

I'm as amazed as Kickstart. We get delicious sandwiches cakes and tea all for free. You can also bring your own food in fact you can eat any rubbish you wish as the techs say it will be dialysed out as long as you eat for example something like a packet of crisps (sorry potatoe chips) in the first hour of dialysis.

Correct on that one. If someone has a birthday or something and there's a cake (guess who likes to bring chocolate cake???) or something they make sure we have it in the first hour so the K will be leached out and it's no real problem.

As for the "sandwich of last resort" yeah that's what we have. I think they must all be made in the same place and sent around the world!  :rofl;

Our particular brand come in lots of 6 triangles - so in reality like 1 and a half "full" sandwiches. Usually 2 egg, 1 or 2 "cheese"(aka plastic that somehiow after a few bites is oddly addictive) and 2 salad. Sometimes they might mix it up with tuna, or chicken. The chicken is my fave.

Damn I'm hungry now. Might make a turkey sandwich :)







EDITED:Fixed smiley tag error-kitkatz,Moderator
« Last Edit: September 12, 2009, 10:32:04 AM by kitkatz » Logged



3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
mikey07840
Elite Member
*****
Offline Offline

Gender: Male
Posts: 1225


Her royal highness Queen Ruth on her throne, RIP

« Reply #32 on: September 12, 2009, 08:51:15 PM »

Good news for me... At my new unit in Pennsylvania, starting 2 weeks from now, I may eat during dialysis. I was told that they have a water cooler in the reception, fill up before going to treatment. They have coffee or tea, bring any other drinks or food. I was warned that they don't stock food or have vending machines, so to make sure to bring what I like from home.
Logged

06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
aharris2
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1394


Volcan Pacaya, Guatemala

« Reply #33 on: September 13, 2009, 05:12:09 AM »

the doctor on rounds today told me that I need a donut  :cheer: :cheer: :cheer:
he was talking about the kind you sit on for a sore behind   :( :( :( :sir ken;

Twirl, The cream filled ones are best for this  :angel;

They serve cocktails at my brother's unit at the beginning of treatment and at the midpoint (oooh ahhh)
...benedryl and phenergan
 :beer1;
Logged

Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
YLGuy
Elite Member
*****
Offline Offline

Gender: Male
Posts: 4901

« Reply #34 on: September 16, 2009, 04:04:45 PM »

Well today they came through with snacks for the first time.  They said it was protein awareness.  They had made 2 different recipes from the Davita site.  They had Rice Crispy treats made with protein powder and crackers spread with a cream cheese with pineapple, bell pepper and a little garlic.  Both were very good.  They also gave us a little V8 Splash to wash it down with.  I took the recipes and might make them someday.

 :o
Logged
Wayne
Full Member
***
Offline Offline

Gender: Male
Posts: 141


Martin (the snorer) & Mack (cat w/renal failure)

« Reply #35 on: September 16, 2009, 07:58:18 PM »

I had commented on another post that we can eat at our unit.  I go on at 11 am so I almost always come in with food.  I have even brought Mountain Dews for a couple of the techs.  If I have extra candy or whatever I even share with the techs/nurses.  I don't know what I would do if I couldn't eat.
Logged

Happily Married for 11 Wonderful Years!!! :-)
3/01 diagnosed with fsgs
7/07 listed
4/08 fistula surgery
10/08 pd catheter placed
12/08 started pd
2/09 started hemo
Budluv
Jr. Member
**
Offline Offline

Gender: Male
Posts: 50


« Reply #36 on: September 18, 2009, 08:44:35 AM »

They have a similar rule here at my dialysis...  I bring food in every time I run...   What are they gonna do, take it away from you.  I feel sorry for anyone that would try.  I need my wheatthins.   
Logged
monrein
Member for Life
******
Offline Offline

Gender: Female
Posts: 8323


Might as well smile

« Reply #37 on: September 18, 2009, 12:37:31 PM »

Well today they came through with snacks for the first time.  They said it was protein awareness.  They had made 2 different recipes from the Davita site.  They had Rice Crispy treats made with protein powder and crackers spread with a cream cheese with pineapple, bell pepper and a little garlic.  Both were very good.  They also gave us a little V8 Splash to wash it down with.  I took the recipes and might make them someday.

 :o

This would be a very useful thing that the renal social worker and dietician could (read should, as in really ought to) collaborate on.  Making samples of food within renal guidelines, encouraging patients to share ideas (dietician could help sort out nutritional values).  Social worker could get to know patients as people primarily, ESRD sufferers secondarily.  Patients could learn more about their illness and management of diet which is complicated...and really start to understand the link between food and lab values.

I've said it before but here it is again.  Some people should not eat on the machine because it affects how they feel.  Others should be able to if there are no contraindications for them. 
Logged

Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
YLGuy
Elite Member
*****
Offline Offline

Gender: Male
Posts: 4901

« Reply #38 on: October 10, 2009, 08:20:00 AM »

I get annoyed when the clinic staff runs around with a Pepsi which I love and cant have.

When I picked up my son from school the other day he surprised me with a Pepsi natural.  He remembered me saying that I could have that.  It was actually really good.  As far as I know it is okay for renal patients.
Note: I am NOT diabetic and I do not have any idea if it is okay for diabetics.
Logged
Lillupie
Sr. Member
****
Offline Offline

Gender: Female
Posts: 665


wedding 12-10-11

WWW
« Reply #39 on: October 21, 2009, 11:57:22 AM »

yes, this is another reason as to why i am on PD. THe center i go to when i am on backup hemo does not allow food or drink and does NOT have ice chips either. THey say that the State of Michigan does not allow eating food on dialysis. Whatever. So am trying to interview patients on nocturnal dialysis and am going to their support meeting, and i find out that this center (also in MIchigan) orders pizza! And people bring in their dinners and eat them. I used to eat McDonalds before and after dialysis because i knew i could not eat in the chair. Not only could i not eat in the center, but we werent allowed to use the phone, plug in anything from the outside or have visitors except between 12:00-12:30 and 5:30-6:00! Noone wants to sit there every other day. THe least they could do is let it be a little enjoyable. I say it is because my neph is annal.

Lisa
Logged

Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
lizabee
Full Member
***
Offline Offline

Gender: Female
Posts: 231


« Reply #40 on: October 21, 2009, 02:23:40 PM »

My center is pretty good, we can bring a snack or meal if we will be there during breakfast/lunch time.  none of the workers eat on the floor, unless they have enough to share....they do bring cake for birthdays!  This is the only center I have been to, I couldn't imagine it being any other way.
Logged
galvo
Member for Life
******
Offline Offline

Gender: Male
Posts: 7252


« Reply #41 on: November 13, 2009, 04:26:02 PM »

This is interesting. So far, I'm on the arvo seesion, starting at 1430. Nothing in the way of food or drink is supplied. After 4+ hours, I am as dry as a dead dingo's donga!. One D started at 1400 and, lo and behold, the tea trolley rolled around, and I had a cuppa and a bikkie. So, I guess, some form of refreshment is provided, if I'm lucky enough to locate it. If I'm not - then go ahead and dehydrate, boy.

Another question, I shall put to the staff this arvo. And to the neph next Thurrsday.
Logged

Galvo
MissyKew
Jr. Member
**
Offline Offline

Gender: Female
Posts: 73

« Reply #42 on: November 13, 2009, 06:48:21 PM »

I guess I am pretty lucky at my center as we are allowed to bring what we want to eat and drink.  I bring a large glass of ice and sometimes candy and something to eat.  I weigh in with them so they are counted in the dialysis process.  makes for no harm, no foul.  :)  The guy one chair down from me comes in loaded up with all sorts of food and drinks.  When I first started coming to dialysis, he would have Mickey D's sausage sandwiches.  He called them renal sausage.  LOL!  He is a real piece of work.  LOL!
Logged
Pages: 1 [2] Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!