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| | |-+  ===Unveiling a BRAND NEW DESIGN for our Online Store!!===
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Author Topic: ===Unveiling a BRAND NEW DESIGN for our Online Store!!===  (Read 20370 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: August 24, 2009, 12:19:10 PM »

Brand new! Dying for a Kidney - new design for the Online Store!
This artwork was designed custom for IHD by a New York tattoo artist named Brian Wren. He has donated his time and all he asks in return is to see photos of people wearing his design!

Some people may say that dialysis patients are not dying - and this is true. And others will wait and wait, and some may die, without having a transplant. The design will no doubt stimulate conversations about organ awareness.

Here's the link to this product at our store http://www.cafepress.com/ihatedialysis/6863056
« Last Edit: August 24, 2009, 01:11:56 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #1 on: August 24, 2009, 01:37:29 PM »

Love it!  Would make a great tattoo.  Please let Brian know we appreciate his time and his talent.   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kimcanada
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« Reply #2 on: August 24, 2009, 02:06:02 PM »

I love it, what would you do with it, could it be put on a hoodie?
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tyefly
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This will be me...... Next spring.... I earned it.

« Reply #3 on: August 24, 2009, 03:08:46 PM »

   I am looking for more bags to fill at the grocery store..   you know the re-useable ones......   That design would be great..... on tee shirts, hats, just about anything......     great idea.....
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #4 on: August 24, 2009, 03:38:06 PM »

I love it, what would you do with it, could it be put on a hoodie?

I think there is one on that page - but it's not the zipper type -let me know what you'd like and I will add it.

   I am looking for more bags to fill at the grocery store..   you know the re-useable ones......   That design would be great..... on tee shirts, hats, just about anything......     great idea.....

I have added a tote bag - thanks!
« Last Edit: August 24, 2009, 05:56:53 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #5 on: August 24, 2009, 10:14:52 PM »


Two hoodies  :yahoo;

http://www.cafepress.com/ihatedialysis/6863056



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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
epowife
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« Reply #6 on: August 25, 2009, 08:02:35 PM »

 :bandance;

Please tell Brian that it is frickin sweet!! I really do appreciate him donating his talents to IHD...that is really awesome.
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If you would like to donate to help keep IHD on line click here: http://www.ihatedialysis.com/donate.htm
Rerun
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Going through life tied to a chair!

« Reply #7 on: August 25, 2009, 11:21:50 PM »

Great idea and beautiful design. But, since I'm not on the transplant list, I will not die waiting.  That shall be on my tombstone "she did not die waiting".  I wait for nothing.  I will die waiting to win the stupid Mega Million which I did not win again tonight.  I got one number!  That will not buy a kidney.

                                                                 :waving;
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kitkatz
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« Reply #8 on: August 27, 2009, 08:26:57 PM »

Rerun join the club.  Not waiting to die, too busy living!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Rerun
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Going through life tied to a chair!

« Reply #9 on: August 27, 2009, 09:07:56 PM »

Rerun join the club.  Not waiting to die, too busy living!

I like that! 
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YLGuy
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« Reply #10 on: August 27, 2009, 09:53:23 PM »

VERY nice design!  I love it! Okay, who is going to actually get that design inked on them?!That would be sweet.  The advice I got before I got my first tattoo: Don't EVER get a tattoo...but if you do, get many! (I only have 2: a sacred heart and my kids names (God and family))

Rerun: Nobody won.   The jackpot is now $325 million nad the drawing is Friday.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #11 on: September 07, 2009, 11:37:17 PM »

New items available here http://www.cafepress.com/ihatedialysis/6863056

Here's Jenna!


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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
draven
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« Reply #12 on: September 08, 2009, 01:14:06 PM »

Love the tattoo design.

Awesome i want a t-shirt. can i have it delivered to south africa.

If not I will have to ask my sister in connecticutt to order it and she can post it to me.
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thegrammalady
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« Reply #13 on: September 08, 2009, 03:13:37 PM »

i'm not on the transplant list either, however i think wearing it would give me opportunity to talk a lot about organ donation. i think it's great.
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

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For You Are Crunchy And Taste Good With Ketchup
YLGuy
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« Reply #14 on: September 10, 2009, 11:51:45 AM »

If not I will have to ask my sister in connecticutt to order it and she can post it to me.

Where in Connecticut does she live?
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draven
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« Reply #15 on: September 10, 2009, 12:37:03 PM »

in New Fairfield. i havent been there. the last time i was in u.s.a was 10 years ago. she lived in Walnut Creek, Near San Francisco back then.
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okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #16 on: September 26, 2009, 06:10:42 PM »

Re: Dying for a Kidney

 :2thumbsup; We have sold 12 shirts and a tote bag!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #17 on: September 26, 2009, 06:21:12 PM »

Love the tattoo design.

Awesome i want a t-shirt. can i have it delivered to south africa.

If not I will have to ask my sister in connecticutt to order it and she can post it to me.

I ordered a sweatshirt and it was delivered to NZ no problem.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
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« Reply #18 on: September 27, 2009, 06:40:44 AM »

Awesome. :thumbup;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #19 on: March 22, 2010, 07:10:57 PM »

I recently heard from a member who said this design upset her, that it is very negative. She felt that it does not accurately describe the dialysis patients because they can live long, healthy lives on dialysis and this is just scaring people.

I told her how the design came to be and since I've now written it up, and she said she wished I had posted the story at the time, here it is:

Re: "Dying for a kidney" design. Thought you might be interested in the story behind it. A dialysis patient wrote to IHD (Epoman did original designs when asked, I got her message in our admin email.) She requested the design for herself. She has had 8 vascular accesses over the last 17 years and is out of options. Fluids from the chest catheter now leak into her head and neck causing painful swelling. She is afraid of the future as there is nothing more the vascular docs can do for her. She also cannot do PD due to peritoneal infections. So you see, it is not always out of negativity that these things are born, but out of reality. I hope she finds a kidney soon.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile

« Reply #20 on: March 23, 2010, 07:39:03 AM »

I think it's important always to remember that words have multiple meanings that can be open to interpretation and I see this clearly in the case of this design.  Some people do indeed literally die while waiting for a kidney but we also commonly use the expression "dying for" to express a very strong desire for something.  Every afternoon, when I was working, several of us reached a point where we were dying for a coffee!  None of us literally died without it but we still used the phrase. 
Same goes for the expression "I hate dialysis".  Most people talk about "hating" some things...my husband for example "hates" coffee as much as I find myself "dying" for a cup sometimes. 

The world would be tedious indeed if we only ever spoke in totally literal, perfectly accurate ways.  I like the slogan but if someone doesn't then there are others that might be better suited to them.

Thanks for the story behind the design.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paul.karen
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« Reply #21 on: March 23, 2010, 07:47:55 AM »

Does the story behind the shirt have a happy ending?
Cause it is a sad and scary story to say the least.  I couldnt imagine how she must have felt or be feeling.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #22 on: March 23, 2010, 08:29:25 AM »

Paul, I haven't heard back from the woman. She is not an IHD member but we exchanged emails last year.

Monrein - you're right. I am dying for coffee right now!

And if someone says "I HATE the dentist" everybody gets it. No one says "Oh you're being negative." It's a shared experience. We do what is necessary in many parts of life, but it doesn't mean we love it.

 :thx;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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