I really hate dialysis

[BeachLover]

I haven't started yet but I know it's going to be really tough. I cant even stand going to the neph as much as I have to, for all the blood work, etc.
I am on a bi weekly schedule for Aranesp. It seems I am always in that office. The doctor needs to see me at least once a month and he always has some test he wants me to do. It seems there is no relief and I would LOVE to be left alone for a few days.
If this bothers and depresses me, how on earth will I ever be able to stand dialysis, maybe for 5 hours at a time?
I have thought about it and figured I could just try and remove myself emotionally and go through it without thinking. I don't know how that will work. LOL
I am beginning to have nasua most days and have to force myself to eat. I wonder how much longer i have to go.
I am in awe of all of you!

[dwcrawford]

Beachlover, It is bad.  But not as bad as we imagine it to be.  There are ups and downs.  The blood is disgusting but you can train your self not to  look.  Make friends with the really nice people and try getting rid of the nasty ones. (joke)

[tyefly]

    Kickstart       are you going to get a fistula placed......   

[KICKSTART]

    Kickstart       are you going to get a fistula placed......   

Not if i can help it ! No seriously in time i will have one done and my pd cath taken out.

[Brightsky69]

Kickstart I feel for you. I too would be feeling the same way if I had to go to hemo. Right now I am on PD and it's way way better than hemo in my book. Jail is a good way to describe hemo. I would have to give up so much if I had to do hemo.
I wish you could get a transplant.

[KICKSTART]

Thanks Brightsky , i would go back to PD like a shot if i had a chance. I really do hate hemo. A transplant isnt an option to be honest because i dont have the support of my family , they think i can go in one day , have a transplant , home next day ..sorted/cured . This is what im up against !

[BeachLover]

I'm wondering whether dialysis will make me feel sick while I am doing it? I'm nauseas now and it will probably only get worse. I am sort of forcing myself to eat but I am losing weight.
It would seem to me that dislysis is a big thing for the body to get used to. How do you feel when you are on the machine? I am worried.

[nursewratchet]

Twirl, you're joking, right?

Twirl is NOT joking.  Her FA is a control freak.  I tried to intervene.

[dwcrawford]

Beachlover, I'm sure you'll get as many different responses  as their are responders.  I doubt it is the same for your experience, whici will be unique.  I do in center hemo and I was not sick at all when on the machine.  Sometimes now I have a little nasuea but I  take it with me from home (I've never liked eating breakfast and it kind of makes me sick).  A little malox that they will give me straightens it out.  I was sleepy for a long time (after sessions) ... not tired.  Just sleepy.  I did lose a good deal of weight right before dialysis but that was mostly all  fluid.  Did it with just lasix...  and I don't really like food for the most part although  I am not on the renal diet as of yet because of the labs.  I think you will actually feel  better once you start.  I chose the hemo in center for some very personal and specific reasons.  I had to  do an analysis of ME to make that decision.  It is right for me and wrong for m any others.  They messed up my fistula a couple of time but I fixed it by yelling, screaming and cursing. 

[KICKSTART]

Beachlover .. dont worry everyone is different , i dont want to worry you. I think its worse for me because i was doing PD for years before this , which although is everyday is a lot kinder to the system and i think my body got so used to it ,its now in shock at how quickly hemo does things to it ! Maybe its better for people who go straight to hemo? I never wanted to do hemo though, if its possible to like dialysis then i was happy on PD , i plodded along steadily on it with none of these side effects or headaches.