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Author Topic: Is there anything you LIKE about dialysis?  (Read 9594 times)
Rerun
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Going through life tied to a chair!
« Reply #25 on: August 12, 2009, 07:54:35 PM »
Quote from: dwcrawford on August 12, 2009, 02:09:07 PM
Stacey, here is my problem.  Hope someone can offer a suggestion.  In the last hour of D, I get a tremendous  amount of gas.  When I sat next to crazy Roy, I'd just  go ahead and do it then I'd glare at him casting the blame on him.  Now I sit all alone in the corner.  What am I going to  do?

Bring a stuffed dog.
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Chris
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WWW
« Reply #26 on: August 12, 2009, 09:15:06 PM »
Quote from: dwcrawford on August 12, 2009, 02:09:07 PM
Stacey, here is my problem.  Hope someone can offer a suggestion.  In the last hour of D, I get a tremendous  amount of gas.  When I sat next to crazy Roy, I'd just  go ahead and do it then I'd glare at him casting the blame on him.  Now I sit all alone in the corner.  What am I going to  do?

Not light a match or spark  ???  :rofl;

What about GasX or other products like that?
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #27 on: August 12, 2009, 11:53:56 PM »
Quote from: dwcrawford on August 12, 2009, 02:09:07 PM
Stacey, here is my problem.  Hope someone can offer a suggestion.  In the last hour of D, I get a tremendous  amount of gas.  When I sat next to crazy Roy, I'd just  go ahead and do it then I'd glare at him casting the blame on him.  Now I sit all alone in the corner.  What am I going to  do?

It's a sad arse that never rejoices....
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
dwcrawford
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Getting the heck out of town.
« Reply #28 on: August 13, 2009, 05:14:17 AM »
that was m eant to be funny.  not serious.  sorry if i forgot the proper emotions.

 :yahoo; :waiting; :rofl;  oh, and:   :sir ken;
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
Jean
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« Reply #29 on: August 13, 2009, 05:23:41 AM »
One good thing aobut dialysis is getting to meet people like dw. and KitKatz
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One day at a time, thats all I can do.
dwcrawford
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Getting the heck out of town.
« Reply #30 on: August 13, 2009, 05:27:02 AM »
Back to the REAL  topic:  Not much these days.  Not much at all.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
Melissa
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« Reply #31 on: August 13, 2009, 06:50:04 PM »
Twirl - ha ha ha, that was going to be one of my answers.

I do actually like the feeling of the extra fluid being removed.  I am a small person, so I do not gain much between treatments but it is SO uncomfortable.  Such relief when it is gone.
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fluffy
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Fluff!
« Reply #32 on: August 13, 2009, 07:12:22 PM »
the whole keeping me from dying element of dialysis is pretty awesome. also there are some nurses that i really like. im not wild about the other patients tho most of them have thirty or so years on me, and i get alot of looks when i turn up in ripped jeans and death metal shirts ;D
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RichardMEL
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« Reply #33 on: August 13, 2009, 08:27:17 PM »
I like the fact that a few months ago a nurse said she thought I was 28 and just yesterday an older lady thought I was 25!!!!!  :rofl;

i wish!!!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
glitter
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« Reply #34 on: August 13, 2009, 08:42:53 PM »
like the fact that you people are still here..thanks to dialysis. I HATE what it puts you through, but I am glad you do it!!  :flower; :flower;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
dwcrawford
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Getting the heck out of town.
« Reply #35 on: August 13, 2009, 08:49:26 PM »
Quote from: fluffy on August 13, 2009, 07:12:22 PM
the whole keeping me from dying element of dialysis is pretty awesome. also there are some nurses that i really like. im not wild about the other patients tho most of them have thirty or so years on me, and i get alot of looks when i turn up in ripped jeans and death metal shirts ;D

I like some of the staff but I'm not wild about the other patients.  Especially those so  young that the show up in ripped jeans and death metal shirts...
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
sico
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wheres my bike gone?
« Reply #36 on: August 13, 2009, 10:17:57 PM »
Quote from: fluffy on August 13, 2009, 07:12:22 PM
the whole keeping me from dying element of dialysis is pretty awesome. also there are some nurses that i really like. im not wild about the other patients tho most of them have thirty or so years on me, and i get alot of looks when i turn up in ripped jeans and death metal shirts ;D
Likewise fluffy :2thumbsup;
I used to go in with my black 'metal' hoodies on and get similar looks. Perfect dialysis attire >:D
The ipod got a good workout while i was there too.
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Brad      "Got myself a one way ticket, going the wrong way" - Bon Scott

6/11/08 diagnosed with ESRF, dialysis that day

HD and PD

8th of April 2010 Live kidney transplant from my father.
dwcrawford
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Getting the heck out of town.
« Reply #37 on: August 14, 2009, 06:05:41 AM »
I wear pajama bottoms and houseshoes.  No problem with dress.  Was basicallly trying to point out the age slur without mentioning age.  We old people get sick too... well, most so thank goodness.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
Des
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« Reply #38 on: August 14, 2009, 06:27:10 AM »
Quote from: RichardMEL on August 13, 2009, 08:27:17 PM
I like the fact that a few months ago a nurse said she thought I was 28 and just yesterday an older lady thought I was 25!!!!!  :rofl;

i wish!!!!

(joking) are they blind................

You are not that bad...... (no don't get any ideas!)
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
RichardMEL
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« Reply #39 on: August 14, 2009, 06:29:15 AM »
Well I did think about saying to them "hold on I'm the blind one... and you guys do things with sharp needles?!?!?!!"  :rofl; but I just decided to be gracious and when I stopped laughing accepted the compliment :)
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #40 on: August 14, 2009, 03:50:16 PM »
I like that I can smooch around all day in my pj's if I feel like it, and no one says I shouldn't!
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
fluffy
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Fluff!
« Reply #41 on: August 14, 2009, 10:45:18 PM »
well dwcrawford, you would be making age slurs too if you went there and had a bunch of people staring at you. its not polite to stare. and sico is right grim metal type wear is perfect for dialysis.
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #42 on: August 15, 2009, 01:58:13 PM »
There is ONE thing I like about dialysis - IHD!!!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
RichardMEL
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« Reply #43 on: August 15, 2009, 05:27:45 PM »
Quote from: Hanify on August 14, 2009, 03:50:16 PM
I like that I can smooch around all day in my pj's if I feel like it, and no one says I shouldn't!

pj's? I prefered the girl who came in a few times wearing a silky set of pj's. Pity it wasn't a very un-hospital friendly bit of lingerie!!!  >:D

 :rofl;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Ang
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« Reply #44 on: August 15, 2009, 05:37:42 PM »
the  free  ice :bow; :rofl;
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live  life  to  the  full  and you won't  die  wondering
Zach
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"Still crazy after all these years."
« Reply #45 on: August 16, 2009, 04:20:45 AM »
Quote from: Ang on August 15, 2009, 05:37:42 PM
the  free  ice :bow; :rofl;

 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
sico
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wheres my bike gone?
« Reply #46 on: August 16, 2009, 07:11:09 PM »
When i was in center, the EPO was free.
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Brad      "Got myself a one way ticket, going the wrong way" - Bon Scott

6/11/08 diagnosed with ESRF, dialysis that day

HD and PD

8th of April 2010 Live kidney transplant from my father.
Wallyz
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« Reply #47 on: August 16, 2009, 08:38:15 PM »
dialysis is better than alternatives, but all the good things in my life are available without dialysis.
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bette1
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My dear daughter
« Reply #48 on: August 16, 2009, 08:54:57 PM »
Since I've been on dialysis people have been bringing me food.  I live in a really nice neighborhood and they brought me food for a month when I first got on diaysis.  Last month I got a knee replacement and they are still bringing me food.  It's really nice because my husband is sweet but not the best cook. ;D
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Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant  #2 5/24/10
Tallons5
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« Reply #49 on: August 16, 2009, 10:57:30 PM »
Well..I would like it if it were happning to someone else not me!
Not that I'm trying to be mean or anything so please don't take this wrong just difficult to accept at this time, and the day for my surgury (the 25 of August) loomes clooser in my sights.
Really I did mean for this to be funny!!
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