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| | |-+  Well...... i'm not getting a transplant as soon as i had hoped..
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Author Topic: Well...... i'm not getting a transplant as soon as i had hoped..  (Read 4693 times)
karen547
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« on: July 28, 2009, 02:34:47 PM »

 :( my sister backed out of the transplant. I am shocked, angry, and upset. I know it is her decision but that just makes it harder because she CHOSE to back out. I am just sitting here in disbelief, and hopefully i will have a better outlook tomorrow. i need some hugs.
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Savemeimdtba
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« Reply #1 on: July 28, 2009, 02:41:30 PM »

Oh man... I'm so sorry  :grouphug; - did she give a reason? 
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-Kristi-
12/2008 - Began Hemodialysis
03/2009 - Began P.D.

"You gotta swim, swim for your life, swim for the music that saves you when you're not so sure you'll survive"
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« Reply #2 on: July 28, 2009, 02:44:28 PM »


I am sorry Karen. It's very hard to receive that news, especially when you've gotten your hopes up.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
jbeany
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« Reply #3 on: July 28, 2009, 02:53:26 PM »

Oh, that's lousy!  Hope you get another chance soon.
 :cuddle;
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cariad
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« Reply #4 on: July 28, 2009, 02:57:34 PM »

Oh, Karen! I am so very sorry. Of course you're hurt and angry - I would be, too.

Take care.  :grouphug;
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willieandwinnie
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« Reply #5 on: July 28, 2009, 03:09:54 PM »

 :cuddle;  :grouphug;  :cuddle;
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KICKSTART
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« Reply #6 on: July 28, 2009, 03:17:14 PM »

Im so sorry to hear that after getting your hopes up , no wonder you are in shock.  :grouphug;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
kellyt
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« Reply #7 on: July 28, 2009, 03:48:03 PM »

Then that's not the kidney for you.  You have to believe that.  Unfortunatley, it won't make sense until you get "your" kidney.  After my first three donors were denied I was giving up fast.  Then I got MY kidney.

 :cuddle;   Hang in there.   And don't stop looking for YOUR kidney.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Romona
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« Reply #8 on: July 28, 2009, 03:49:57 PM »

 :grouphug; I don't know what to say!
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Deanne
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« Reply #9 on: July 28, 2009, 03:57:08 PM »

I'm sorry!  :grouphug;
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
David13
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« Reply #10 on: July 28, 2009, 04:05:23 PM »

 :grouphug; 
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My two beautifull granddaughters

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« Reply #11 on: July 28, 2009, 07:23:37 PM »

So sorry you had this bad news. It must be emotional for your sister, too. But it really sucks when your hopes are up and then they are dashed.

Hugs for you.

 :grouphug;
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Wife to Carl, who has PKD.
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Carl transplanted with cadaveric kidney, February 3, 2011. :)
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« Reply #12 on: July 28, 2009, 07:38:52 PM »

 :grouphug; :grouphug; :grouphug;
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kitkatz
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« Reply #13 on: July 28, 2009, 09:40:12 PM »

 :grouphug; :grouphug; <<<<<<<< all I can do for you!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

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« Reply #14 on: July 28, 2009, 09:46:55 PM »

So sorry to hear your news.  Maybe she just needs a bit more time?  Maybe she read something scary about it.  Try to forgive her - I would imagine it would be awful sayying no when you had your hopes up.  Maybe just ask her over a glass of wine?
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Jean
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« Reply #15 on: July 28, 2009, 11:30:43 PM »

Oh, that is so disappointing. I am so sorry.  :grouphug;
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One day at a time, thats all I can do.
RichardMEL
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« Reply #16 on: July 28, 2009, 11:59:37 PM »

Karen - *tight hugs*

That's a big shock to hear.. but you have to remember that it absolutely is her decision and she needs to feel 110% comfortable with making it - donation is a big deal.. it's not like giving $10 to go get a slurpee or something. (mmmm slurpee).

I know when my siblings were being tested I half expected them to back out rather than be rejected, but it happened the other way.

All I can say is that yeah maybe hers isn't the right kidney for you and I hope once you can accept this pain and hurt of her offering, then pulling back, that you can find it in yourself, at some point, to accept her decision and not give her too much grief for it. I know it totally screws your life around, but I'm sure while she's made a decision that on the surface seems selfish and callous(and I don't know her of course) - I'm sure it was hardly an easy decision to make.

Who knows, it could actually wind up being a blessing in disguise.

We all feel your pain and shock at this point though!!  :grouphug; :grouphug; :grouphug;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
rose1999
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« Reply #17 on: July 29, 2009, 12:17:54 AM »

 :cuddle;  :cuddle; Here are some hugs, you must be hugely disappointed.  Do try not to let if affect your relationship with your sister, given time she may come round to the idea after all. If not then at least she was willing to try even if sadly too scared to go ahead.  I am so sorry to hear this  :cuddle;
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pdpatty
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« Reply #18 on: July 29, 2009, 01:07:43 AM »

You are still on the list and that is a plus. I will try and hope just to get on the list and hope a match will be found someday. None of my family can donate because I have polycystic ,my children and my sister could develope it ,too.
I have no close friends that would do this. So I will just have to wait 'cause I can't go on Larry King Live  and tell my story. Only the famous can do that.
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Rerun
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« Reply #19 on: July 29, 2009, 05:20:19 AM »

Karen I'm so sorry.  I feel you are blessed that she even offered.  My siblings have not offered.  There are things your sister has to consider (I'm not sticking up for her).  Does she have children that may need her kidney someday.  Does she want more or any children of her own because pregnancy is hard on 2 kidneys. 

Again, I'm sorry for your disappointment.                     :grouphug;
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paul.karen
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« Reply #20 on: July 29, 2009, 05:36:15 AM »

I understand you being shocked upset and angry.
Who wouldn't be.  These are normal emotions for an above normal situation.  Maybe your sister just got a little scared.  maybe she will decide to go ahead after a little time has passed.  It is such a BIG decision for her.
Wishing you all the best Karen.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
kellyt
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« Reply #21 on: July 29, 2009, 02:41:05 PM »

I hope you're doing okay, Karen.  You're in my thoughts.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
twirl
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« Reply #22 on: July 29, 2009, 03:06:58 PM »

my twin sister would never consider giving me a kidney --
her answer -- NO
and Karen, I am sorry about this with your sister but -- you are so young -- your time will come


kellyt   what is written on your shirt
« Last Edit: July 29, 2009, 03:08:32 PM by twirl » Logged
kellyt
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« Reply #23 on: July 29, 2009, 04:10:47 PM »

It says "When good kidneys go bad"      And it shows one kidney flipping the bird to the other.   ;D
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
marti824
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« Reply #24 on: July 29, 2009, 06:13:53 PM »

I'm so sorry Karen, that does suck, and I know how you feel, my brother wouldn't give me his either.  at the time i thought, "selfish bastard"  but, I'm better off, i never would have heard the end of it from him.  Our kidneys are out there, have patience and have faith.
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