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Author Topic: Uremic frost, a gift from God!!!!!!  (Read 35263 times)
Rerun
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Going through life tied to a chair!

« Reply #50 on: July 12, 2009, 04:58:04 AM »

Rerun ..i am a bit concerned that you say , you sit in your hot car for 5 mins till sweat runs down your face , then drink a 6 oz glass of water for free.  How can it be for free? Ok so sweating isnt bad , but the fact is you cant measure it can you? What might seem a lot of sweat running down you might not even be an ounce to be honest.

Don't worry, I weigh myself and can tell how much I lost.  What is amazing is just how much fluid you do lose from just a little sweat.
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RichardMEL
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« Reply #51 on: July 12, 2009, 05:38:40 AM »

Wow! What a thread! This is what I get for missing IHD for a few days!!

Bill - you raise an interesting concept for sure. However your facts are just general statements - eg: that you sweat in a sauna. That sweating is a way for the body to release toxins. ergo releasing toxins by means of sweating in a sauna is a good thing. You've suggested you can lose 2litres in an hour of a sauna session(I noted the breaks for cold showers??). Well I have two responses to that. I used a sauna once a week for a year or so for an hour or so at a go (no breaks) on my dialysis "weekend" as a way to remove extra fluid. I would manage to sweat our around 600ml in an hour. No where NEAR 2lL. Of course I wouldn't have actually put 2L on of fluid, so that may just be related to being on dialysis... However I have heard from the dialysis nurses that they do not like to take more than 1l (1000ml) of fluid out/hour during a dialysis session because the stress on the body is too great and removing so much fluid is dangerous - so I would question the health aspects of sweating 2L in an hour. (Yes I know athletes would sweat out that and more, but that is a totally different situation IMHO).

The thing is that you comment about these 'facts" but do not back it up with specific tests or results. For example, it might mean more if you had measurements of weight pre- and post- sauna, backed up with lab test results again pre- and post- to back up the claim that for example, you lost Xl of excess fluid, and your Potassium levels went down by Y%.

If you were actually serious about your discovery you would present it in a scientific manner rather than just stating some general trusisms as facts to back your claim which could be dangerous in practice.

I am not disputing your idea in principle, but I for one would actually like to see more concrete facts backed up with some actual methodical tests and results. If you are so serious about this idea you should also get reputable medical researchers to take it up.

Zach: Looks like a 70's sauna to me!!!

I'd love to be in an IHD Sauna... specially with the women of IHD!!!  :rofl; >:D :rofl;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Stoday
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« Reply #52 on: July 12, 2009, 06:51:56 AM »

I haven't had a PM from Billybill.  :waiting;

Maybe it's because I live in the UK and I'm thus too poor to afford a sauna...

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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
dwcrawford
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« Reply #53 on: July 12, 2009, 07:49:28 AM »

Wow Rich, You're so sharp.  Why that's exactly what I would have said if I were smart enough...
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #54 on: July 12, 2009, 02:57:31 PM »

... or could be bothered being that polite ha ha (me, I mean)
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
dwcrawford
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Getting the heck out of town.

« Reply #55 on: July 12, 2009, 03:00:06 PM »

billyboy, please go away.  this whole subject is starting to annoy me.  so did god give me kidney failure?  if so, he can have it back.
« Last Edit: July 12, 2009, 03:03:52 PM by dwcrawford » Logged

Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
billybill1
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« Reply #56 on: July 15, 2009, 12:50:56 PM »

Hello All:
      Here's a great article that shows how the skin eliminates wastes products from the blood.

http://www.lknmedicalspa.com/blog/?p=94
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KICKSTART
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« Reply #57 on: July 15, 2009, 02:23:40 PM »

billybill... dont you think its time you gave up posting articles on this? At first i was prepared to give you the benefit of the doubt , but now i think you are just posting to get certain members backs up and i think they have enough to contend with , without you rattling on to people about the benefit of saunas , which in their lifetimes is NEVER going to be a replacement for dialysis for them or an option to prevent dialysis. Hopefully the Moderators of this forum will just close your posts in the hope you will move on.
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
okarol
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« Reply #58 on: July 15, 2009, 03:00:28 PM »

Kickstart: We don't delete or censor posts. And unless they violate the rules, it's actually better to have an open discussion from members like you expressing their opinions about the content in a thread.

In this case, the info given is for Lyme disease, which is not related to dialysis, and I would not give it much credence.

There are members who are interested in sauna's. I agree, no one should consider that sauna's should be used instead of dialysis.

Billybill1: It might be wise to confine your posts to exploring ways to extend your time pre-dialysis. There's no proof that it will, but sharing your personal experience is what I would recommend if you want to be taken seriously by some members. The studies I have read only covered using the sauna in addition to dialysis.

A new thread does not need to be started.


Topic Merged - okarol/admin
« Last Edit: July 15, 2009, 03:02:36 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
BigSky
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« Reply #59 on: July 15, 2009, 04:27:03 PM »

With every sauna purchased you will get 1, thats right folks,  1 case of Kinoki detox foot pads.  Pretty soon dialysis will be a thing of the past.

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RichardMEL
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« Reply #60 on: July 16, 2009, 05:29:01 AM »

I note that Billy has not responded to my post nor provided anything more concrete to back up his claims than "you sweat out toxins in a sauna"... still waiting for something more substantial.....
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
dwcrawford
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Getting the heck out of town.

« Reply #61 on: July 16, 2009, 06:39:21 AM »

Oh Richard, forget the sauna.  Just take your ladies to a hot tub.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
Bill Peckham
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« Reply #62 on: July 16, 2009, 03:16:46 PM »

This is like asking is sweat the same as urine? The answer is no.

Sweating and healthy kidneys making urine do not serve the same function in the body.

The kidneys convert nitrogen waste into urea and they control other balances in the blood. Most of the urine is nitrogen waste but the debilitating effects of CKD are due to hypertension and a poor calcium/phosphorus balance.

Sweating serves a different function. Whilst some toxic waste can be lost through sweating, this is minor compared with that lost by urination. And the skin does not control the calcium/phosphorus balance. Sweating could help hypertension and thereby extend kidney function but only to the extent that it is counteracting poor sodium control.

I think the healthful effects of sauna are not analogous to kidney function. CKD should be taken seriously and treated. Regular blood tests should be used to monitor how treatment is going. If salt or fluid control isn't your goal then I don't think the sauna can help with the CKD.
« Last Edit: July 16, 2009, 03:17:52 PM by Bill Peckham » Logged

http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
RichardMEL
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« Reply #63 on: July 16, 2009, 09:32:26 PM »

Oh Richard, forget the sauna.  Just take your ladies to a hot tub.

yes please! Still waiting for even one of the IHD ladies to put her hand up though!!  :rofl;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
rose1999
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« Reply #64 on: July 17, 2009, 12:18:24 AM »

 :thumbup; - there isn't a hand up icon, will this do?.  A hot tub in Aus sounds right up my street, it may be winter there but our summer here in the UK is rain, rain and more rain!!
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RichardMEL
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« Reply #65 on: July 19, 2009, 06:36:31 AM »

Sure Rose you'd be welcome in my hot tub :) Now can you make it rain at Lords for the next two days? that would be great !!!  :rofl;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
rose1999
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« Reply #66 on: July 19, 2009, 08:27:57 AM »

 :rofl; :rofl;
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #67 on: July 19, 2009, 02:59:15 PM »

Sure Rose you'd be welcome in my hot tub :) Now can you make it rain at Lords for the next two days? that would be great !!!  :rofl;

There is no chance anyone will know what you're talking about Richard!  Did you enjoy the rugby Saturday night heh heh heh
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
dwcrawford
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Getting the heck out of town.

« Reply #68 on: July 19, 2009, 03:17:48 PM »

That is so true.  And yet I  rarely know what Richard is talking about.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
RichardMEL
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« Reply #69 on: July 19, 2009, 10:22:01 PM »

Sure Rose you'd be welcome in my hot tub :) Now can you make it rain at Lords for the next two days? that would be great !!!  :rofl;

There is no chance anyone will know what you're talking about Richard!  Did you enjoy the rugby Saturday night heh heh heh

lol! Rose knew, but she's an English Rose (oooh just the sort I like ;) )....  >:D

Umm Rugby? Not a sport I understand or get into. Not a fan of men sniffing other men's backsides and all that... so no have no idea what went on on Saturday night or if I should care????

Dan (and others) for your information I was referring to the age old sport of Cricket - not something that one would play in a Sauna incidently  :rofl; Lord's is the cricket ground in London where England and Australia are currently playing a "test match" in a traditional series known as "the ashes" (in reference to the small urn that is the symbolic "prize" of the series). More info: http://en.wikipedia.org/wiki/The_Ashes

Anyway England set Australia a target of 522 runs to win with 2 days - a feat never before reached by any side in the world. The closest I think was 418. Anyway after 1 day, we've lost half our batsment(5) with the score on 5-313. So we need 209 to win in 1 day, and England need to get 5 more wickets(batsmen out). If we can pull it off it would almost top sitting in a spa with rose!!!  :yahoo;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Jean
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« Reply #70 on: July 19, 2009, 11:13:23 PM »

 :rofl;
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One day at a time, thats all I can do.
rose1999
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« Reply #71 on: July 19, 2009, 11:16:14 PM »

Just thought you'd like to know that it's a bright sunny morning here (7 a.m.), just right for cricket  :rofl; looks like the ashes may be coming our way!

Not the sort of day you'd want to be in a sauna, but a nice hot tub in the garden would go down a treat!!
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RichardMEL
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« Reply #72 on: July 20, 2009, 12:06:02 AM »

Just thought you'd like to know that it's a bright sunny morning here (7 a.m.), just right for cricket  :rofl; looks like the ashes may be coming our way!

Not the sort of day you'd want to be in a sauna, but a nice hot tub in the garden would go down a treat!!

One match does not the series make. We will see.

oh and you owe me Rose. As soon as I am transplanted I am headed your way!! WATCH OUT!!!!  :rofl;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
rose1999
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« Reply #73 on: July 20, 2009, 07:26:22 AM »


One match does not the series make.


Well maybe not but it was a big win for us today  :yahoo;



oh and you owe me Rose. As soon as I am transplanted I am headed your way!! WATCH OUT!!!!  :rofl;

Nothing would give me greater pleasure than to know you'd got your transplant, let me know and I'll book us both into the nearest sauna/spa/jacuzzi  :rofl;

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billybill1
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« Reply #74 on: June 30, 2012, 09:48:39 PM »

It's been over 4 years since I started my journey on using sauna to avoid dialysis. Doctors said I would be on dialysis over 2 years ago. I can currently report no symptoms of kidney disease. I'm  living as normal life by dialysing myself thru my sweat glands. I also found a probiotic that helps http://www.kibowbiotech.com/probiotics-and-kidney-health.html. Check out uremic frost http://medical-dictionary.thefreedictionary.com/Uremic+Frost
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