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Author Topic: Uremic frost, a gift from God!!!!!!  (Read 35262 times)
Relentless
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« Reply #75 on: July 01, 2012, 07:02:26 AM »

Hi billybill. I'm intrested but I have one question. If this was the case then why are no othe doctors or anyone from medical science world promoting this whn they could be saving so much money through medical care and makeing so many peoples life more better. You could say tht doctors or dialysis company would like to make money tht is the reason why this has not come out but don't u think tht someone who is rich and on dialysis would have researched it and release the greatness of it? Please reply. Thank u
« Last Edit: July 01, 2012, 08:23:34 AM by Relentless » Logged
SteveK87
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« Reply #76 on: July 01, 2012, 07:15:42 AM »

It's been over 4 years since I started my journey on using sauna to avoid dialysis. Doctors said I would be on dialysis over 2 years ago. I can currently report no symptoms of kidney disease. I'm  living as normal life by dialysing myself thru my sweat glands. I also found a probiotic that helps http://www.kibowbiotech.com/probiotics-and-kidney-health.html. Check out uremic frost http://medical-dictionary.thefreedictionary.com/Uremic+Frost

As much as I'd like to jump on this I still have to be skeptical.  Renadyl, the probiotic you speak of, isn't FDA regulated.  It could be a sugar pill for all we know.  The sauna treatment makes sense, but I don't know if it would change those who already got to the point of dialysis.  Plus, how would one cover expenses to go to a sauna everyday for as long as you have?  I know one can be built in the comfort of the home, but I couldn't afford that.  If it's truly working for you then by all means keep doing what your doing I'm not trying to bad mouth your process just trying to understand a little more.  Do you keep yourself on a strict renal diet?  Do you take phosphorus binders or any kind of medications?
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cariad
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« Reply #77 on: July 01, 2012, 10:38:26 AM »

It's been over 4 years since I started my journey on using sauna to avoid dialysis. Doctors said I would be on dialysis over 2 years ago. I can currently report no symptoms of kidney disease. I'm  living as normal life by dialysing myself thru my sweat glands. I also found a probiotic that helps http://www.kibowbiotech.com/probiotics-and-kidney-health.html. Check out uremic frost http://medical-dictionary.thefreedictionary.com/Uremic+Frost

Why, with 40% function 3 years ago when you were posting all of this on IHD initially, would your nephrologist say that you would need dialysis within a year? What is the cause of your CKD? Staying off dialysis for four years with 40% kidney function is not the least bit remarkable.
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« Reply #78 on: July 01, 2012, 11:41:34 AM »

It's been over 4 years since I started my journey on using sauna to avoid dialysis. Doctors said I would be on dialysis over 2 years ago. I can currently report no symptoms of kidney disease. I'm  living as normal life by dialysing myself thru my sweat glands. I also found a probiotic that helps [link dead] Check out uremic frost http://medical-dictionary.thefreedictionary.com/Uremic+Frost

Edited: This is looking like an advertisement for a specific website. Your link did not work and it has been removed.
okarol/admin
« Last Edit: July 03, 2012, 11:32:55 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
mogee
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« Reply #79 on: July 03, 2012, 06:26:34 PM »

This is why sweating can not clear your blood of waste products.  The concentration of nitrogenous waste in your sweat will never exceed the concentration of nitrogenous waste in your blood.  If your sweat has significantly less waste than your bloodstream you are actually concentrating your BUN and getting more uremic.  Kidneys have evolved to selectively separate the chemical components of blood and discard whatever is excessive.  The kidney is a master of concentrating waste.  Sweat glands evolved to keep the body cool by secreting fluid.  Performing dialysis by sweating is like baking a cake with a jackhammer.
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PKD and IgA Glomerularnephritis
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bleija
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« Reply #80 on: July 03, 2012, 08:47:10 PM »

beautifully said mogee :2thumbsup;
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jbeany
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« Reply #81 on: July 04, 2012, 09:26:29 PM »

  Performing dialysis by sweating is like baking a cake with a jackhammer.

 :rofl;  Mogee gets the gold star for best metaphor of the week!

Seriously, sweating can help with fluid gains - I certainly used that technique, even if I didn't have access to a sauna.  I know toxins will leach out with the sweat - the nasty smell in my clothes that wouldn't wash out got worse the lower my kidney function.  But it's not a replacement kidney, or the cure for kidney disease would be "Move South."
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Whamo
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« Reply #82 on: July 05, 2012, 09:23:57 AM »

 :rofl; :rofl; :rofl; :rofl; :rofl; :rofl; :rofl; :rofl; :rofl;  That metaphor was hilarious. 
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MomoMcSleepy
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« Reply #83 on: July 05, 2012, 11:01:26 AM »

ok, now I haven't read all of the comments, but here is a portion of what Dr. Weil (who, incidentally, is reputed by some to be a quack, but whatever) says to potential sauna users:

 "If you have high blood pressure or a heart problem, be sure to check with your physician before going to a sauna or steam room. The heat can cause circulatory changes, including an increased heart rate. Overall, however, the only real risk to a sauna or steam room is spending too much time sweating. You can faint from overheating and from dehydration. Be sure to drink lots of water before, during and after your sweat. And, while pregnant women should avoid soaking in hot tubs, there's no reason why they can't take saunas (as long as they're healthy)."

I feel super sick when I sweat a lot.  I get dehydrated and messed up. It's hard to imagine that the sauna would help me.  Also, he says you lose water weight WHICH YOU REPLENISH BY DRINKING WATER.   You potential sauna users with little to no renal function, according to Dr. Weil, are supposed to drink plenty before, during and after.  So, I think he is telling people with some minor to moderate liver and kidney problems that this is good, but I thinking patients who are watching their fluid and electrolytes carefully should be cautioned against going without a physician's permission. 

Were you doing anything else that might ha e powered your creatinine a month after starting the sauna?  Were you sick bandit was elevated?  Dehydrated?

Perhaps it is something we could do that lowers blood pressure and ride the body of some toxins, but if God meant us to sweat it out only, he wouldn't have made kid yes in the first place, don't you think?

and don't you think that back in the day before Dialysis they might have tried this stuff?  I suspect they did, but since it DIDN'T WORK VERY WELL AND PEOPLE DIED, they came up with the artificial kidney (actually, I think they did PEon dogs first, but I'd have to look that up).
 
 :'( I am scared you are killing yourself, but also suspicious that you're not as sick as you say, like that stop the madness lady who was pregnant and not fat,  Just sayin...
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35 years old, first dx w/  chronic renal insufficiency at  28, pre-dialysis

born with persistent cloaca--have you heard of it?  Probably not, that's ok.

lots of surgeries, solitary left kidney (congenital)

chronic uti's/pyelonephritis

AV fistula May 2012
Kidney Transplant from my husband Jan. 16, 2013
Howard the Duck
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« Reply #84 on: July 19, 2012, 06:37:52 PM »

I'm no medical professional and I really just follow what Western Medicine says because that has been beat into my head  and its easiest to defend but we really must ask ourselves some serious questions:

If medicine makes money for doctors, whose best interest will they always act upon.
Is the suggestion of something holistic really ludicrous or is it just ludicrous because Western Medicine has told us it is?
If pills are not cures, what are they--maskers of symptoms?
Do we really just rely on mainstream medical publications for information while we know they are heavily influenced by funders?
Isn't the efficacy and safety of all medical treatments backed-up by medical literature, until many people are harmed?

Here, we know some things for sure:  More dialysis is better.  Slower dialysis is better.  However, how successful has the vast majority of patients been in getting a doctor to prescribe this.

I say all that to say:  You are your biggest helper.  Be willing to try something different or--gasp--unconventional.

K
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okarol
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« Reply #85 on: July 19, 2012, 08:29:04 PM »


Here, we know some things for sure:  More dialysis is better.  Slower dialysis is better.  However, how successful has the vast majority of patients been in getting a doctor to prescribe this.


The problem is not so much about getting the prescription from a doctor, but more likely getting insurance to pay for it if they don't want to.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
amanda100wilson
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« Reply #86 on: July 19, 2012, 09:34:11 PM »

From what I can see,  insurance will. Pay for slower is better (Medicare pays for it).  It is the doctors that won't authorize, probably because it allows them to pocket less from the bundle.  I am on SDHD, my friend is on nocturnal.  My doctor (who happens to be the medical director of my clinic) won't allow me to switch to nocturnal.  We compared Medicate codes, both were the same, hence the dialysis units are getting paid the same amount of money.
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
Desert Dancer
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« Reply #87 on: July 19, 2012, 10:41:12 PM »

My doctor (who happens to be the medical director of my clinic) won't allow me to switch to nocturnal.

EXCUSE ME?
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
okarol
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« Reply #88 on: July 19, 2012, 11:04:31 PM »

From what I can see,  insurance will. Pay for slower is better (Medicare pays for it).  It is the doctors that won't authorize, probably because it allows them to pocket less from the bundle.  I am on SDHD, my friend is on nocturnal.  My doctor (who happens to be the medical director of my clinic) won't allow me to switch to nocturnal.  We compared Medicate codes, both were the same, hence the dialysis units are getting paid the same amount of money.

It's always a conflict of interest when the doctor who owns the clinic is the prescribing physician. That's why we have Jenna seeing an independent nephrologist once a month, even on top of the visit from the in-center neph.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
slipkid
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« Reply #89 on: July 23, 2012, 02:13:39 AM »

Show us some before and after chem panels if you wish to be taken seriously.
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amanda100wilson
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« Reply #90 on: July 23, 2012, 06:32:41 AM »

Desert Dancer, I am not going to be with this neph. A lot longer.  I have only stuck with him for so long because he kept stringing me along for months saying that they were thinking about it, and each month coming up with yet another excuse.  I have zero respect for the money-grabbing bas**** and am currently in discussion with another neph. Who freely admits that although he wants to get a home program going which includes nocturnal, doesn't know. Much and will p rob ably be asking me for advice.  People that I know who go to him say that he's a great nephrologist so I am looking forward to working with him.
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
AnnieB
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« Reply #91 on: August 04, 2012, 07:06:06 PM »

Uremic frost is a sign of renal failure, no gift from God. It can preceed coma and death - google NEMJ (New England Journal of Medicine) for some case studies. Or just google uremic frost.

Also, dehydration can cause acute kidney failure. I would be very careful about suggesting that anyone with CKD spend any extended period of time in a sauna. Even one that looks as appealing as Zach's.

Anne
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