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Author Topic: DECREASE IN SEXUAL DRIVE...  (Read 51849 times)
maritza0486
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"Pple cant do evrythin but every1 can do somethin"

« on: May 22, 2009, 10:20:44 AM »

IS THERE ANYTHING THAT CAN BE DONE WHEN ON DIALYSIS AND THE SEXUAL DRIVE IS DECREASING AS TIME GOES BY? I AM ONLY 23 YEARS OLD AND IM STILL SEXUALLY ACTIVE AND ALL BUT I CANT SEEM TO REACH MY PEAK EVER...IF YOU KNOW WHAT I MEAN. I WAS THINKING OF TALKING TO MY SOCIAL WORKER OR DOCTOR ABOUT THIS, BUT I WOULD HONESTLY FEEL TOO WEIRD. I WOULD RATHER ASK YOU GUYS OUT THERE WHO UNDERSTAND THE SITUATION MORE PHYSICALLY...
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~Diagnosed with End Stage Renal Disease at age 17 (a month before turning 18)
~Kidney Transplant from sister February 10, 2005
~Transplant failed December 2008
~Began Dialysis for my very first time May 6, 2009
~Put on Transplant List on June 5, 2009
~Miraculous phone call from Montefiore about potential kidney August 31, 2009
~2nd Kidney Transplant!!! September 1, 2009
~Sep. 6, 2009 Creatnine 1.1 ---- Sep. 11, 2009 Creatnine 1.5 --- Sep. 18, 2009 Creatnine 1.3
~May 14, 2010 -- Creatnine 1.0!!!! I am healthier than ever. 8 months since 2nd transplant!!
kimcanada
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« Reply #1 on: May 22, 2009, 10:22:35 AM »

I really can't answer you, but I think that its an excellent question to ask.

23 is to young to have problems without sharing them with someone.  Good Luck maritza ... I hope they can help you
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twirl
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« Reply #2 on: May 22, 2009, 11:34:41 AM »

I think you should ask your doctor and good luck.
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maritza0486
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"Pple cant do evrythin but every1 can do somethin"

« Reply #3 on: May 22, 2009, 11:49:16 AM »

Ok. Thanks for the advice and support. I guess I just wanted to hear some opinions and some experiences with anyone else. I will builld up courage to ask my doctor tomorrow and see what she says. I will keep you guys informed. Thanks again for your help.  :2thumbsup;
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~Diagnosed with End Stage Renal Disease at age 17 (a month before turning 18)
~Kidney Transplant from sister February 10, 2005
~Transplant failed December 2008
~Began Dialysis for my very first time May 6, 2009
~Put on Transplant List on June 5, 2009
~Miraculous phone call from Montefiore about potential kidney August 31, 2009
~2nd Kidney Transplant!!! September 1, 2009
~Sep. 6, 2009 Creatnine 1.1 ---- Sep. 11, 2009 Creatnine 1.5 --- Sep. 18, 2009 Creatnine 1.3
~May 14, 2010 -- Creatnine 1.0!!!! I am healthier than ever. 8 months since 2nd transplant!!
KICKSTART
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In da House.

« Reply #4 on: May 22, 2009, 11:56:02 AM »

Ooooooo see you can write without using capitols all the time !  :rofl; Difficult one that because your body kind of shuts down and only keeps going what it really needs to ! and im afraid 'sex' isnt top of its list !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
monrein
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« Reply #5 on: May 22, 2009, 02:55:47 PM »

Maritza, have you tried using a vibrator and lubrication to stimulate yourself while you fantasize about sexual activity?  Be sure to go slow and take your time and don't think about orgasm at all.  Just relax and enjoy the sensation and think about all the things that you find arousing.  It's probably best to do this while alone at first although you can incorporate this for sure into couple activity later on if your partner won't be too threatened.  If he/she is then a good chat is the necessary next step.  Dialysis is of course an issue but quite often, especially at your age, part of the trouble is also that your partner (especially male partners if you are heterosexual) reach orgasm on a way different timetable than we females so the trick is to slow them down without frustrating the living life out of them so that we can take our time to get where we want to go.
Sex toys are a great way to get to know what you like and how you like it so then you can train your partner in a very specific to you way.  Men often like to believe that they really know what they're doing in the area of sex but the truth is they don't have our equipment so they have little or no clue.  They tend to let us know very directly what they like and want but in general women seem to prefer to let guys take charge of the timing and the order of things and that usually only works best for the male equipment.

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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MIbarra
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Stopping to smell the bluebonnets

« Reply #6 on: May 22, 2009, 05:42:30 PM »

I too had a decrease in sex drive during dialysis and it was a definitely a problem so I understand how you feel. I wish I had spoken to my doctor about it.

I believe part of my problem was a high blood pressure pill I was taking during dialysis so there could be many reasons for this.

I definitely recommend talking to your doctor and exploring with other options (like Monrein so tactfully wrote).
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Cadaver transplant April 29, 2007
Jay72
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« Reply #7 on: May 22, 2009, 08:48:10 PM »

Sex???  What's that?  HA HA HA   Just kidding, but talk to your doc Iam sur ethey can help.  I can say that my drive has gone down from what it used to me and things don't seem to be working as good as they used to.  When I was on dialysis 13 years ago I still had the same problem and I was 23 then!!
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MandaMe1986
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« Reply #8 on: May 23, 2009, 10:35:51 AM »

I have the same problem. Nice to know I am not alone.  :rofl; But you are better then I. I never would have asked.   If you get a good anwser let me know.  I really don't think there is much that we can do though. 
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
twirl
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« Reply #9 on: May 23, 2009, 11:48:18 AM »

and now I can not drink to help get in the mood  :waiting; :stressed;
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dwcrawford
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Getting the heck out of town.

« Reply #10 on: May 23, 2009, 01:59:01 PM »

Occasionally I venture to places I should not.  This thread was one.  I'm embarassed.  Carry on Ladies!!!!
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
Wenchie58
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« Reply #11 on: May 23, 2009, 02:14:56 PM »

LOL!!  Dan, you crack me up...stick around, you might learn something.  It's in your brain folks....getting tired, low blood counts, bp meds..they all effect your body, therefore your brain.  It's difficult to get "in the mood" when you don't even have ambition to clean your house....or brush your teeth for that matter.
I had a ....ummm..."friend" we will call him, when I first got sick....he couldn't or wouldn't understand.....so I removed him from the situation...and relieved myself of much frustration! (No, it doesn't involve a gun, a shovel or the woods behind the house.)
We all do what we need to do to get ourselves through. To some sexuality is a sidebar in life, in others it IS life.  Just gotta find your spot on the grid.
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
twirl
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« Reply #12 on: May 23, 2009, 02:29:37 PM »

Occasionally I venture to places I should not.  This thread was one.  I'm embarassed.  Carry on Ladies!!!!

Oh big freakin' deal - we are all adults here -
no harm done -
and was it deleted ?
and you make me laugh and I like that in a person    :cuddle;
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MandaMe1986
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« Reply #13 on: May 23, 2009, 03:21:49 PM »

Come on Dan you don't want to feel us in on weither guys have the same problem?
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
twirl
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« Reply #14 on: May 24, 2009, 06:17:05 AM »

guys may have it worse - they can't fake it - I mean I don't think they could - :o
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napala turki
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« Reply #15 on: August 09, 2009, 12:28:29 PM »

Dont know weather its thru, but I can feel the moody of sexual has decrease... I'm 51 just on dailysis 3 yrs old. My sexual is still perform but has no interest, why? can someone share this problem... aiya......
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iketchum
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« Reply #16 on: August 09, 2009, 12:36:12 PM »

Diabetes, high blood pressure, and pirones, and now dialysis. No sex for 3 years or so. Definitely see your Dr.
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napala turki
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Have to plan for living

« Reply #17 on: August 09, 2009, 01:27:13 PM »

Diabetes, high blood pressure, and pirones, and now dialysis. No sex for 3 years or so. Definitely see your Dr.


My kidney failure is not due to BP or diabetes... but overdose of pain killer or drug...
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #18 on: August 09, 2009, 05:04:57 PM »

It is normal to have a decrease in desire for all the above reasons.  There have been lots of studies dones, and not only is the decrease common, but it's also common that we find it a hard conversation to have with our doctors.  I ended up discussing it with what we call a district nurse - I don't know if you have the equivalent over there.  She had to discuss anything she wanted me to try with my oncologist anyway, so it was a bit of a waste of time.  But I felt way more comfortable talking to her than to my onc or neph.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
dwcrawford
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Getting the heck out of town.

« Reply #19 on: August 09, 2009, 05:14:45 PM »

You people are forgetting one major contributiong factor.  Old Age!  And a cardiologist who won't let you take viagra.  (What's the commercial:  See a doctor if "it" last more than four hours... Hell, I'd see the Ripley reporters.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
RichardMEL
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« Reply #20 on: August 09, 2009, 10:24:59 PM »

I love Monrein's advice! No seriously - I think it is considered(and probably comes of experience) and it makes sense. I have to admit at the times I have been with someone and have not always been able to er.. function.. fully.... I've suggested and/or participated in exactly what she's suggested.

(dan turn away now!)

Sometimes I've found that pleasuring my partner in terms of masturbating them and other related activities has been a good way to help them experience pleasure(and hopefully orgasm) when I'm unable to fully satisfy them(for whatever reason).

I think having a partner that is very comfortable with their body and their sexuality helps - they won't feel weird about using a vibrator with you or helping out in the ways I've outlined.

Oh and for those that asked do men suffer in the same way? I would say in my experience it is a different sort of problem. I have no problem being aroused and wanting to, but it's the energy to keep going that can strike.. and usually at the worst possible moment(very embarassing!) - and unlike a woman who can fake a few things or it's hard to tell sometimes(for me, anyway!) it's very obvious when a man has this kind of issue and obviously in the heat of passion it really can kill things. That's when you need the understanding partner and a sense of humour. As I say when that sort of thing happens and I'm with the right person I make every effort I can to pleasure them in other ways so hopefully they can enjoy themselves....

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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
kitkatz
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« Reply #21 on: August 10, 2009, 06:32:37 PM »

I think some creativity and a good sense of humor helps in any situation!
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Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

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dwcrawford
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Getting the heck out of town.

« Reply #22 on: August 10, 2009, 07:10:20 PM »

True... and Richard is funny...
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
RichardMEL
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« Reply #23 on: August 11, 2009, 05:01:20 AM »

Dan!!! I told you to turn away!!!!!  :rofl;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
maritza0486
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"Pple cant do evrythin but every1 can do somethin"

« Reply #24 on: August 11, 2009, 10:45:27 AM »

I am glad that you are all being very open minded on this matter. I still have not had the chance to speak with my neph but now I am thinking I will not feel uncomfortable in doing so. Why? Because she is a woman! That makes it all the more comfortable for me because I guess in a way she would understand. My boyfriend knows and sees that I can never reach my peak and I told him that it is because of the kidney failure and the dialysis, not necessarily because of him. Not to go informational on you guys, but he really does try his VERY BEST to get me where I need to be and unfortunately it just does not work. It is frustrating at times but hey, what can I do. At least it is overall enjoyable. Thanks to all the men who posted here. It should not be an embarassing topic for we are all humans and sex is a natural thing. I just wanted to see if anyone else went through the same thing as I. Thanks again for posting!  :cheer:
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~Diagnosed with End Stage Renal Disease at age 17 (a month before turning 18)
~Kidney Transplant from sister February 10, 2005
~Transplant failed December 2008
~Began Dialysis for my very first time May 6, 2009
~Put on Transplant List on June 5, 2009
~Miraculous phone call from Montefiore about potential kidney August 31, 2009
~2nd Kidney Transplant!!! September 1, 2009
~Sep. 6, 2009 Creatnine 1.1 ---- Sep. 11, 2009 Creatnine 1.5 --- Sep. 18, 2009 Creatnine 1.3
~May 14, 2010 -- Creatnine 1.0!!!! I am healthier than ever. 8 months since 2nd transplant!!
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