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| | |-+  Arrgghhh!!! I may need a fistulagram
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Author Topic: Arrgghhh!!! I may need a fistulagram  (Read 2017 times)
paddbear0000
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« on: May 07, 2009, 01:48:07 PM »

 :rant; Well, it's been a nice run of a whopping 3 months with my graft...I've been having a problem for the last week with leaking at my needle sites, my sites spurting blood out from under the pressure of my fingers when holding and then yesterday, my venous pressure was extremely high. My nurse was concerned my graft is narrowing somewhere, so he had me do a transonic. The results were good; in fact better than last month, but he still isn't convinced. He called the nephrologist and the doctor said he will check it next week when he does rounds. So now it's just a wait and see game as to whether I'll be getting a fistulagram. I still have yet to figure out how it is done, but from the sounds of it here, it's not fun!

to top it all off, my psychiatrist switched my anti-depressent a month ago, and after increasing the dose several weeks ago, I feel more depressed than ever! I normally love this time of year because I can get outside and garden, refinish furniture and do home improvements, but I just have no desire to get off the couch. I'm even having trouble finding the desire to get on IHD or keep in contact with friends. I don't want to stop the meds until I can see the doctor, but I can't get in for 2 weeks!!    :rant;
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
monrein
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« Reply #1 on: May 07, 2009, 01:58:59 PM »

  :cuddle;  sending you some hugs and hopes that things get back to more normal ASAP.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kitkatz
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« Reply #2 on: May 07, 2009, 02:49:16 PM »

Sometimes it is an adjustment to the new meds.  Try keeping track of how you feel with them onboard each day. Then you will have a written record to take to the doctor.

I hope things get better soon.  :basket:
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Ang
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« Reply #3 on: May 07, 2009, 04:59:44 PM »

make  sure  you  ask  for  pain  relief  when  you  do  the  fistulagram
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live  life  to  the  full  and you won't  die  wondering
paris
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« Reply #4 on: May 07, 2009, 05:58:47 PM »

I'm sorry you are dealing with this   :grouphug;
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cherpep
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« Reply #5 on: May 07, 2009, 06:21:41 PM »

We're here for you, please keep checking in.  I hope everything turns out OK.  It's so frustrating hitting all the bumps in the road, but try to focus on the bigger road - not the bumps.  Hang in there.
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jbeany
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« Reply #6 on: May 07, 2009, 07:05:57 PM »

The fistulagrams aren't too bad - a boring pain in the arm, mostly!  I'm one of the "lucky" ones who has constant narrowing problems.  The longest I've ever gone between fistulagrams was 5-1/2 months.  Generally, I need one every 2-3 months. 

Hope they get the meds worked out for you soon.  Sit outside and soak up some sun if you don't have the energy to garden - at least you will be getting the fresh air.
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Tinah1968
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« Reply #7 on: May 07, 2009, 07:35:57 PM »

i had one done 3 weeks ago. It was not to bad, but G-ma or Grammylady told me to insist on anesthesia and i did. I did it on a Friday and was better on Sunday. Hope it is that way for you. i'll be praying for you.
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
Chris
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« Reply #8 on: May 08, 2009, 12:03:05 AM »

Did the doc say why they increased the dose? If no reason was given, I would ask for an explanation and tell them how you are feeling. Hopefully you won't need another fistula or a graft. After 3 months, that's when I started having trouble with mine too.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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