I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
November 25, 2024, 07:37:51 AM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: General Discussion
| | |-+  High phosphorus ..what do you take ?		 0 Members and 2 Guests are viewing this topic. « previous next »
Pages: [1] 2 Go Down Print
Author Topic: High phosphorus ..what do you take ?  (Read 9516 times)
KICKSTART
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2786


In da House.
« on: April 24, 2009, 01:17:11 PM »
Just wondered what you guys take for it ? We seem to be very limited over here to either calci chew or something similar. They all need chewing and all are very chalky ! Im having big trouble finding something i can take as the chalky stuff just makes me gag , then im usually sick ..which kinda defeats the object ! Why cant they make a medicine? The best option i was given was a soluble tablet but that takes up half my fluid allowance ..so no way !!
Logged
OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
jbeany
Member for Life
******
Offline Offline

Gender: Female
Posts: 7536


Cattitude
« Reply #1 on: April 24, 2009, 01:22:37 PM »
I'm on the chalky tablet, and I actually prefer it.  I was on Phoslo, which is pills, and I hated "wasting" all the water it took to swallow them.  The Fosrenol, which is the giant white chalk tablet is easier for me, plus I can bite it into smaller amounts to match the amount of phos in my meal.  If you put candy in the bottle with the tablets, they take on the flavor of the candy.  (Dried fruit works for this as well.)  Have you tried that?  Or break it into small pieces and alternate it with bites of your meal.
Logged
"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Dan.Larrabee
Full Member
***
Offline Offline

Gender: Male
Posts: 150


Dialysis Dan
« Reply #2 on: April 24, 2009, 01:27:43 PM »
I just take Tums. I do not chew however, I just swallow it. It still digest in the stomach, you just need the calcium to bind to the phosphorus.
Logged
AKA Dialysis Dan
Feeling the best I can because of Home Hemo
Doing it the best way I can by making it Nocturnal
Sharing it to help everyone feel they best they can
www.youtube.com/dialysisdan
KICKSTART
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2786


In da House.
« Reply #3 on: April 24, 2009, 02:01:49 PM »
Quote from: Dan.Larrabee on April 24, 2009, 01:27:43 PM
I just take Tums. I do not chew however, I just swallow it. It still digest in the stomach, you just need the calcium to bind to the phosphorus.

When you say 'tums' what do you mean ? im in the UK ! Do you mean 'Settlers Tums' which are sold over here for indigestion ?
Logged
OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
MandaMe1986
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2464
« Reply #4 on: April 24, 2009, 02:02:22 PM »
Dan dose that work?  I was told high phosphorus is why I itch. It just wasn't high enough to take anything for it.  Thanks I am going to try that.
Logged
Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
jbeany
Member for Life
******
Offline Offline

Gender: Female
Posts: 7536


Cattitude
« Reply #5 on: April 24, 2009, 02:05:25 PM »
http://www.tums.com/

It's an antacid med sold over the counter. It's made of calcium carbonate, which settles the tummy and also binds phosphorus.  Don't just start chewing them at random, though.  Eating too many can raise your blood levels of calcium.  If your level is already high, that's a bad thing.  High calcium can cause seizures and stop your heart!
Logged
"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Bajanne
Member for Life
******
Offline Offline

Gender: Female
Posts: 5337


Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #6 on: April 24, 2009, 02:12:58 PM »
I have been taking Tums (when I am compliant) because the prescribed Phoslo is too expensive here.
Logged
"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
KICKSTART
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2786


In da House.
« Reply #7 on: April 24, 2009, 02:13:32 PM »
Yup its the same tums we have over here! I wonder why no one has mentioned them ..not only are they small but they are fruity as well !!! Just out of interest how many do you take , because i dont expect the nursing staff over here will know ! Those are fine , i used to take those way back for indigestion!!
Logged
OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
MandaMe1986
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2464
« Reply #8 on: April 24, 2009, 02:18:18 PM »
Quote from: KICKSTART on April 24, 2009, 02:13:32 PM
Yup its the same tums we have over here! I wonder why no one has mentioned them ..not only are they small but they are fruity as well !!!

Haha Fruity is always good!  Tums were my best friend when I was pregnant.
Logged
Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Dan.Larrabee
Full Member
***
Offline Offline

Gender: Male
Posts: 150


Dialysis Dan
« Reply #9 on: April 24, 2009, 02:19:48 PM »
I take one with each meal. This is all under my doc's orders. I have never taken any other binders and my levels are perfect. I have been doing this for a year now. Please check with your doc...
Logged
AKA Dialysis Dan
Feeling the best I can because of Home Hemo
Doing it the best way I can by making it Nocturnal
Sharing it to help everyone feel they best they can
www.youtube.com/dialysisdan
KICKSTART
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2786


In da House.
« Reply #10 on: April 24, 2009, 02:26:14 PM »
Thanks Dan .. im going to suggest it next visit .. just wondering why they dont mention them over here .. mind you half the stuff we know they havent a clue about !  :rofl;
Logged
OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Zach
Elite Member
*****
Offline Offline

Gender: Male
Posts: 4820


"Still crazy after all these years."
« Reply #11 on: April 24, 2009, 04:03:29 PM »
Quote from: KICKSTART on April 24, 2009, 02:26:14 PM
Thanks Dan .. im going to suggest it next visit .. just wondering why they dont mention them over here .. mind you half the stuff we know they havent a clue about !  :rofl;

Here is a list of commonly prescribed drugs by the National Kidney Federation (UK):
http://www.kidney.org.uk/Medical-Info/drugs/index.html

Go down the list to phosphate binders.
 ... Alucaps
 ... Calcichew
 ... Phosex
 ... Renagel
 ... Titralac
 

And from the Renal Association (UK):
http://www.renal.org/pages/pages/guidelines/current/haemodialysis.php#Full_S6

Guideline 6.5- HD: Laboratory and clinical indices of dialysis adequacy other than dialysis dose
Pre-dialysis serum phosphate should be between 1.1 and 1.8mmol/l. (Good practice)

8)
« Last Edit: April 24, 2009, 04:10:28 PM by Zach » Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
kellyt
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3840
« Reply #12 on: April 24, 2009, 04:38:42 PM »
I took Tums, as well.  But after a while my Calcium got way too high and my doctor had me stop.
Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
MandaMe1986
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2464
« Reply #13 on: April 24, 2009, 04:41:54 PM »
Well thanks guys I see my doc on the 5th and will make sure I ask him about it.
Logged
Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
kellyt
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3840
« Reply #14 on: April 24, 2009, 05:42:01 PM »
The Tums act as a "binder" and bind up the phosphorus and eliminate it through solid waste instead of through your kidneys/urine.
That might have been said by somone above, sorry if I'm repeating.  :)
Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
TeenHatesDialysis
Full Member
***
Offline Offline

Gender: Female
Posts: 191


WWW
« Reply #15 on: April 24, 2009, 10:37:08 PM »
My teenage daughter must take 9 Ultra 1000 tums per day.  She has to carry them wherever she goes and if she eats, she takes TUMS.  Everyone in the Childrens Hospital dialysis center must take TUMS.  All of the kids hate the dietician, because of the TUMS issue. I am just my daughter's caregiver, but I personally like the creme tums in the cocoa and creme flavored tums. :flower;
Logged
Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
Savemeimdtba
Full Member
***
Offline Offline

Gender: Female
Posts: 178


WWW
« Reply #16 on: April 26, 2009, 10:41:13 AM »
I take renagel and it's been great... phosphorus keeps steadily going down.  At the last labs it was 3.5.
Logged
-Kristi-
12/2008 - Began Hemodialysis
03/2009 - Began P.D.

"You gotta swim, swim for your life, swim for the music that saves you when you're not so sure you'll survive"
kitkatz
Member for Life
******
Offline Offline

Gender: Female
Posts: 17042
« Reply #17 on: April 26, 2009, 05:03:22 PM »
The tums are better than other meds. Phoslo gave me the runs. 
Logged


lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
TiffanyJean
Jr. Member
**
Offline Offline

Gender: Female
Posts: 83


We live in paradise - if only we could enjoy it!

WWW
« Reply #18 on: April 27, 2009, 02:13:56 AM »
Before Richie had his parathyroidectomy (Feb. 5 ,2009) Richie was taking renagel then it was switched to renvela, plus a few Tums. Since the parathyroidectomy he has been off the phos binders, because his calcium levels had dropped along with his phos, and pth (which was in the 3,000 range before) He's hoping that at our next appointment with the neph that she doesn't put him back on them. He thoroughly enjoyed the last month and a half because of the surgery he was actually able to drink milk; his calcium levels have stabilized so back on restrictions. the Tums do help, and are a bit easier than pills, if you can get past the chalky bit.

tiffany jean
Logged
"Just think people have no problem having only one kidney, so we have to ask, why
did God give us two kidneys?  Perhaps it is so you would have an extra one to
donate and save a life!"
                        - Dr. Stuart Greenstein, Kidney Transplant Surgeon,
                        Professor of Surgery, Montefiore Medical Center, Bronx, NY   
                        Source of quote:   www.ourjerusalem.com
pdpatty
Full Member
***
Offline Offline

Gender: Female
Posts: 237
« Reply #19 on: April 27, 2009, 08:26:25 AM »
Fosrenol 1000mg with each meal. Really is the best,for me anyway.

Have partD plan through Wellcare insurance. Makes me sick when I see they pay $479 and I pay $39 copay for 93 tablets. Gap is fast approaching and I can't afford $518 for this.

My calcium at last labs was 10.6. Hard to avoid calcium when it is added to almost everything.
Logged
Krisna
Full Member
***
Offline Offline

Gender: Female
Posts: 328

WWW
« Reply #20 on: April 30, 2009, 05:04:09 PM »
I don't like Tums so I just get regular Calcium Carbonate vitamins that you swallow whole that you can get at any drug or vitamin store.  I have to take a bunch of those for the Calcium and some with meals to bind Phosphorus.

I'm in the US though.
Logged
Nov. 1979 - Diagnosed with glomerulonephritis of unknown origin by Dr. Robert
                  Hickman
Dec. 1979 - Diagnosed with Viral Pneumonia
Late Dec. 1979 - Emergency surgery to place a Scribner Shunt in left arm for dialysis
Jan. 1980 - Start hemodialysis until recovered from viral pneumonia
Feb. 27, 1980 - Receive 5 antigen living related transplant from father
Mar. 3, 1987 - PTH removed and part of one placed in left arm.  Fistula also placed in right arm.
Sept. 1988 - Start hemodialysis
Feb. 4, 1989 - Receive 6 antigen perfect match cadaveric transplant
Jan. 1994 - Return to hemodialysis
Oct. 18, 1996 - Receive 6 antigen perfect match cadaveric transplant
Nov. 22, 1996 - Emergency surgery to repair aneurysm to artery in kidney
Dec. 20, 1996 - Emergency surgery to repair aneurysm.  Kidney removed due to infection which has spread down right leg to abt mid thigh.
Apr. 1997 - Arterial bypass surgery to restore arterial blood flow to right leg
July 29, 1998 - Receive 6 antigen perfect match cadaveric transplant
Sept. 6, 2002 - Return to hemodialysis
Dec. 7, 2002 Sm. intestine ruptures while home alone. Still conscious upon arrival at hospital.
Dec. 8. 2002 - Surgery to repair ruptured bowel.  The prognosis is not good.  Surgeon tells family to prepare for the worse.  Spend a week in a coma and 3 months in hospital.  Takes abt a year and a half to completely recover.
KICKSTART
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2786


In da House.
« Reply #21 on: May 02, 2009, 02:18:26 AM »
Cant take tums , because of the calcium. So im back to square one ! Most of the ones you just swallow upset my stomach and the others just make me  :puke;
Logged
OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
lola
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2167


I can fly!!!
« Reply #22 on: May 02, 2009, 05:27:59 AM »
Otto is on phoslo and he still is running 5-7.2 I know it's high. I'm gonna ask about adding tums and see if that might help.
Logged
www.caringbridge.org/visit/ottomachado
monrein
Member for Life
******
Offline Offline

Gender: Female
Posts: 8323


Might as well smile
« Reply #23 on: May 02, 2009, 05:53:28 AM »
I used to take simple (and cheap) calcium carbonate tablets but then my calcium level got too high so I was switched to expensive (but effective) Renagel.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Wattle
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2306
« Reply #24 on: May 02, 2009, 06:12:50 AM »

I am on a mix of Caltrate and Renagel.
I use to take only Caltrate but due to my rising calcium levels I have now been switched to Renagel as well.
Logged
PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Pages: [1] 2 Go Up Print 
« previous next »
 
Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!