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Author Topic: Hi I'm new here and I'm Shelly  (Read 2902 times)
shelly
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Sitting in the Captains Chair Caribeann Princess
« on: March 12, 2009, 07:15:35 PM »
Just started my 6th week of dialysis and it has been quite overwhelming to say the least!  Found out my kidneys were failing in November 2007 and was shocked because I felt fine I thought.  Since then it has been quite a roller coaster with all the info coming at me from all directions.  The 1st thing I did was to qualify for the transplant list which I successfully completed in January of 2008.  Had my 1st fistula surgery in July 2008 which developed a stricture and had to have another fistula surgery done in October 2008.  Thankfully this one works and only had to endure 3 angioplasties to get it up and running.  All the while I continued to work until this January 2009 when my body told me it was time to start dialysis.  I was so tired all the time but thank goodness I didn't get sick as some of the other patients did before they had to begin.  Here I am and I have to say that since starting I'm starting to feel my energy level coming back.  It's tedious to say the least to have to go 3x a week but I always consider what the alternative would be if I had not found out before my kidney completely checked out.  I'm glad I found this website because it gives me a chance to talk to other people who are going through the same things I am.  Thanks for making this site possible. I do in center dialysis and they started the button hole procedure on me.  Any advice?
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Wenchie58
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Always carrying the big silly grin!
« Reply #1 on: March 12, 2009, 07:32:07 PM »
 :welcomesign; Shelly...I'm sure you will find tons of help and advice here!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
kellyt
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« Reply #2 on: March 12, 2009, 07:42:42 PM »
Welcome Shelly.  It does sound like it has been a roller coaster for you.   But apparently you're on the right track now.  I was diagnosed in 1994 and didn't need a fistula until late 2007.   That's also when I started my testing to get on "the list".   I can't imagine what it's like to find out your kidney's are failing and immediately getting thrown into the water with getting on "the list", getting your fistula and then starting dialysis.  At times I'm sure it was hard to breathe.   :cuddle;

Glad you found us!   :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Romona
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« Reply #3 on: March 12, 2009, 07:44:26 PM »
 :welcomesign;
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RichardMEL
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« Reply #4 on: March 12, 2009, 08:07:05 PM »
Welcome aboard Shelly (noting the Captain's chair thing :) ) - you have come to the right place and I am sure you will find plenty of helpful advice and support for dealing with the dreaded D!!!! Hang in there and hang with us!! :)  :grouphug;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
cookie2008
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« Reply #5 on: March 12, 2009, 08:45:48 PM »
 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
Zach
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"Still crazy after all these years."
« Reply #6 on: March 12, 2009, 09:20:11 PM »
Good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
shelly
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Sitting in the Captains Chair Caribeann Princess
« Reply #7 on: March 12, 2009, 10:10:37 PM »
Thank you all so much for the warm welcome  :clap; I've come to the right place! and grateful I found you.....
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Joe Paul
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« Reply #8 on: March 12, 2009, 10:53:23 PM »
Welcome Shelly, good to have you aboard. As you know, its a rough ride - keep your chin up & fight the good fight, no matter what happens. That was the advice a good friend of mine gave me. He has since passed away, but those words will stay with me to the end. I share them with you as you asked for advice. Again, welcome aboard  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
peleroja
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I have 16 hats, all the same style!
« Reply #9 on: March 13, 2009, 07:56:46 AM »
Wow, what a ride you've been through.  Welcome to the group.  Can't give you any adviceon the buttonhole  as I have a temporary permacath for hemo and am hoping to get back to PD.  Hang in there and know that you have lots of unmet friends here.
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monrein
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Might as well smile
« Reply #10 on: March 13, 2009, 11:24:58 AM »
 :welcomesign;  Shelly
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Tinah1968
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ME
« Reply #11 on: March 13, 2009, 11:29:34 AM »
 :welcomesign;
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
willieandwinnie
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« Reply #12 on: March 13, 2009, 12:19:44 PM »
 :welcomesign; Shelly. You have found the perfect place. Hope you post often.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
paris
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« Reply #13 on: March 13, 2009, 01:27:00 PM »
 :welcomesign;  Shelly.  We are so glad you found us.  It is a great site and we hope it becomes your second home.  There is great support here and so much information.  You have been through so much and I am sure you will have lots to share with us.  Glad you are here!





paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
TeenHatesDialysis
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WWW
« Reply #14 on: March 13, 2009, 05:46:00 PM »
 :welcomesign; Shelly!

Great info and support here! :grouphug;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
Sluff
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« Reply #15 on: March 13, 2009, 06:30:14 PM »
Here are a few articles that may or may not answer your questions. There are more articles if you type Button holes in the search engine.


http://ihatedialysis.com/forum/index.php?topic=11774.0

http://ihatedialysis.com/forum/index.php?topic=2636.0

http://ihatedialysis.com/forum/index.php?topic=10520.0

Welcome to IHD Shelly.

Sluff/Admin
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G-Ma
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« Reply #16 on: March 13, 2009, 10:59:33 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
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