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Author Topic: Fistula surgery yesterday and already problems!!!  (Read 12580 times)
monrein
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« Reply #25 on: February 08, 2009, 01:12:34 PM »

The warmth over the area is quite usual as I recall, due to inflammation from the swelling.  The pain from coughing is also to be expected as when you cough the blood in your veins presses against the internal sore areas.  I mean, after all they did do some pretty severe things inside your arm Paddbear.  If you had a cut on the outside and you suddenly pushed on it (what coughing is doing on the inside) it would hurt too.  I don't know about the hard red area.  Perhaps you could call the clinic tomorrow and ask.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Chris
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« Reply #26 on: February 08, 2009, 01:15:59 PM »

Maybe neosporin on the area as a precaution?
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kitkatz
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« Reply #27 on: February 08, 2009, 01:23:17 PM »

Sweetie, take it easy until  the swelling goes down and quit poking at it, makes things worse for you.  Relax and let it all heal.  Place are going to feel funny for awhile on the arm.  I speak from experience. Two grafts, twelve redos on the bottom arm graft and two on the top arm graft.  Just let it all heal; then see what happens.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
paddbear0000
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« Reply #28 on: February 08, 2009, 05:18:25 PM »

Yes Mom!   :rofl;

Chris, I did put some neosporin on it and bandaged it back up again. I've also started taking Tylenol to help with the pain and hopefully reduce some of the inflammation.
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
pelagia
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« Reply #29 on: February 08, 2009, 05:30:24 PM »

PB - I hope that you will listen to Kit - It's million dollar advice!  :flower;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
kitkatz
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« Reply #30 on: February 08, 2009, 06:27:12 PM »

Yes dear, Now do as I say, not as I do!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kitkatz
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« Reply #31 on: February 08, 2009, 06:28:07 PM »

No lifting, no lifting, no lifting with that arm for several weeks, not even your purse!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kellyt
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« Reply #32 on: February 08, 2009, 06:29:40 PM »

I was told not to put anything on my fistula (cream, lotion, perfume, etc.).  I heeded this advice even after the scar healed.   It is different for a graft?
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Chris
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« Reply #33 on: February 08, 2009, 09:20:15 PM »

My doc said it was ok, but I had dissolvable stitches though.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paddbear0000
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« Reply #34 on: February 09, 2009, 02:08:04 AM »

My stitches aren't dissolvable. They're supposed to come out at my 3 week follow-up appointment. My paper says I can take the gauze and tegaderm off after 3 days, which would be today. That seems kind of soon. Is this normal? I sure wish I could take it off of my cath site too because the peice of tegaderm closest to my neck is driving me crazy!!!
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
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« Reply #35 on: February 09, 2009, 02:13:00 AM »

Have tape on stand by if the catheter one starts to come undone. You want o avoid infections and water. I used Nexcar Clear Cloth tape since it din't pull so hard on the skin when removing and less irritating to me than the other taoes. Your neck one will b changed at the dialysis clinic Tuesday, time to get use to new smells from the cleanser.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paddbear0000
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« Reply #36 on: February 09, 2009, 02:20:38 AM »

Yeah. My best friend is a drup rep who used to call on a dialysis clinic. She said the smell was horrible. The way I'm feeling lately, I have a feeling I will be throwing up soon after I walk in! When I'm nauseous, smells make me puke every time!
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
kellyt
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« Reply #37 on: February 09, 2009, 08:26:17 AM »

Good Luck tomorrow Padd.  You'll be in my thoughts.  You are going at 11 a.m., right?

I hope you can find something to take that will help pass the time quickly and keep your mind off what is happening, as well as the smells.

If you have a laptop join Netflix.  Then you can watch movies and such.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
paddbear0000
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« Reply #38 on: February 09, 2009, 08:29:12 AM »

Thank you! Yeah, I have a laptop, but it's really old and really slow. There's no way I can view movies on it.
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
BRANDY
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« Reply #39 on: February 09, 2009, 06:02:49 PM »

Im so sorry you are having problems, maybe when swelling goes down it will be ok.  I am going to get my fistula thursday  listening to you I seem to know what I might expectl I hope it is all normal tho.  You arnt saying anything about fever, that is a good thing .  a great big hug to you., :cuddle;
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Adapt and Overcome
 
Diabetic 1973
2000-clavical surgery
2000-rotor cuff surgery
2001- cervical surgery
2002 cervical surgery
2003 - cervical surgery
2004- lumbar surgery
2004 hysterectomy
2009-fistula placed
  Im diabetic with neuropathy, ckd ,bad back bad neck
pelagia
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« Reply #40 on: February 09, 2009, 06:26:09 PM »

Yeah. My best friend is a drup rep who used to call on a dialysis clinic. She said the smell was horrible. The way I'm feeling lately, I have a feeling I will be throwing up soon after I walk in! When I'm nauseous, smells make me puke every time!

I am very sensitive to bad odors and I never noticed anything smelly at my husband's clinic.  Do be careful about bleach on the chairs though.  He ruined some pants that way - getting into the chair too soon after it was disinfected from the person before him.  Do they do it that way at every clinic?

In any case, good luck tomorrow!  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
paddbear0000
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« Reply #41 on: February 09, 2009, 06:33:26 PM »

No, no fever thankfully. And the hard area I mentioned before turned out to be the tube! Oops! What can I say? I'm new to this! My hand became completely swollen with fluid today which was new. I've been keeping my arm elevated and have been using a heating pad and ice pack. I've been holding my arm up vertically for the last 2 hours and that seeme to have moved most of the fluid elsewhere. I can make out my knuckles again! And I got my wedding ring off for the first time in days! But, I think I'm starting to gain fluid weight all over because over rhe last 2-3 months I lost 11 pounds, but have gained it all back in less than a week. I've also noticed I'm not urinating as much either. I just noticed that I can't see the veins on my other hand as well as I used to either, so I don't know if the left hand swelling is surgery related or not (or it could just be making it worse?).
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
monrein
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« Reply #42 on: February 09, 2009, 06:35:34 PM »

I'll be with you in spirit tomorrow Paddbear.  As hard as it is to do, try your very best to stay calm and relaxed.  No needles so that's one less thing to stress about.  Big hugs Janet.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
okarol
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« Reply #43 on: February 09, 2009, 06:35:51 PM »

When did you last get labs done? Be very careful about the fluid - sounds like you may be retaining some.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paddbear0000
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« Reply #44 on: February 09, 2009, 08:49:00 PM »

I had labs done last Monday.
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
okarol
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« Reply #45 on: February 09, 2009, 09:52:57 PM »


Yeah - I wasn't thinking when I wrote that Janet, that you're starting hemo tomorrow. Hopefully they figure out a good dry weight and take off excess fluid without doing too much.
 :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kidney4traci
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« Reply #46 on: February 09, 2009, 10:11:27 PM »

Ouch!  Hope that dialysis can help.  Sounds like you are starting?  Sorry for the pain, I remember mine wasn't that fun either, but I had less complications than you are even.  HUGS!!!!  Keep us updated. 
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
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