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Author Topic: My new kidney is awesome!!  (Read 8587 times)
2_DallasCowboys
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« Reply #25 on: February 05, 2009, 06:13:37 AM »
Wonderful news!!

I hope each day gets better and better for ya,
so happy everything is and everyone is doing so well  :clap;

Anne
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paul.karen
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« Reply #26 on: February 05, 2009, 06:23:10 AM »
 :thumbup;
 :thumbup;

This is excellent news.  I am so happy for you.
Adn Ryan way to go.  A gift unlike any other.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
RichardMEL
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« Reply #27 on: February 05, 2009, 04:13:27 PM »
such awesome news!!!

Your next task, should you choose to accept it is to get yourself a "pee picture" to rival tamara's.. sounds like you could even outdo hers!! LMAO...

We should setup a gallery of IHD transplantees with their pee (yes that sounds gross, but you all know what I mean! :) )
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #28 on: February 05, 2009, 10:53:53 PM »
Well damn. Richard just said exactly everything I was going to say about the bag of pee photo!

Anyway, congrats Traci!! You keep on peein' girl!!   :cheer: :cheer: :cheer:
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #29 on: February 07, 2009, 03:39:36 PM »
Absolutely great news, Traci!!! :yahoo; :yahoo; :yahoo;  Please know that your happiness is our happiness.  We are in this right there with you.  So you just keep peeing.  (Do an extra one for those IHDers who can't remember what is it like to pee!)  Really very pleased with your report.  Keep us updated, please.  :cuddle;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
kidney4traci
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« Reply #30 on: February 07, 2009, 03:56:39 PM »
Well, what a week it has been!  It feels great to be home, but I am very tired.  I had surgery Tuesday morning.  They got me up (well they never let you sleep in a hospital really...) and we went about 8.  I ran to see Ryan before she went down.  I had to run, I knew I would miss her.  I was out of breathe but caught her just as they wheeled her in.  I told them who I was, and I don't think they would have believed me except for my hospital gown!  I RAN they - wasn't I the patient who needed a kidney?  Ha ha.  Anyway, they put the iv in and in a few minutes wheeled me into the room.  I saw the big surgery lights, nut he must have started the meds in my iv because I don't remember anything else.  The surgery lasted two hours and we have some great pictures.  Even of the kidney as it was being cleaned.  I will post later.  When I woke up I was back in my room and had some pain going on.  I did use the pain button that afternoon until about 5 pm when I realized I really didn't need it and tried to see how far I could go without it.  I didn't use it again until the next morning when they get you out of bed.  That was painful and I didn't go far the first time, just around my bed.  Later that afternoon I did walk the hallway.  It kept getting easier.  My back is killing me, the bed was always propped up, never flat.  I felt like I was 6 months pregnant - now only 5.  Lots of fluid was being pumped into me, AND I was drinking water like crazy.  The first and second day I peed 7 liters. That is alot!  They stopped pumping fluid and I started to feel better.  I am happy to see the whites of my eyes cleared up and my skin has a red blush.  I do feel better, at least on the way.  My body feels like I have been run over by a truck.  My husband has been adjusting me often thankfully.  And my daughters gave me a back rub today.  I will post pictures soon, give me a few days.  We have great video too. Thank you also to those that emailed the hospital.  When they brought in the messages, they said they have never seen someone have so many!  You all are the BEST!!
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
willieandwinnie
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« Reply #31 on: February 07, 2009, 04:06:19 PM »
 :yahoo; Traci. You just take is easy and get some much needed rest. We will continue our thoughts and prayers for you and Ryan. We look forward to seeing your pictures and video. Now, drink, drink, drink and rest. Hope you get some good sleep in your own bed.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
pelagia
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« Reply #32 on: February 07, 2009, 04:13:40 PM »
Wow!  You must be superwoman.  Out in only 4 days!?  They wouldn't let Stephen out of bed for 3 days after his surgery.  It's so great to hear that it all went well.  Hugs to you and Ryan.  :cheer: :bandance; :yahoo; :2thumbsup; :clap; :thumbup; :flower; :guitar: :beer1; :wine; :rudolph;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
paris
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« Reply #33 on: February 07, 2009, 04:41:27 PM »
So glad you got the emails---thanks to our sweet Kelly!   Of course you got tons, we all love you!   Your post sounded great.  Keep resting and drinking and post when you can.  I am so very excited for you and grateful to Ryan.   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #34 on: February 07, 2009, 04:53:20 PM »

Oh boy - can't wait for the photos! :pics;

You sound great and I hope each day is better than the last!

 :cheer: Congrats!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Jill D.
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« Reply #35 on: February 07, 2009, 05:42:50 PM »
Thanks for the update Traci - you sound great!!! I remember my legs felt like two sausages because they kept me pumped up with 10 extra pounds of fluid for 2 days - and it did feel good when they stopped. Happy you are home - the best thing you can do is to not overdo...but you will know when you do! Take a break, have your kids and Kelly do anything that involves lifting. I enjoyed the fact that I was not an "invalid" but remember that this is the time to take care of yourself - and have a little vacation from having to take care of others! Love and hugs to you and Ryan!!! :cuddle; :cuddle; :cuddle;
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
jessup
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Gemma - the tucker monster
« Reply #36 on: February 07, 2009, 05:51:15 PM »
Great news mate
 :cheer: :cheer: :yahoo; :cheer: :cheer:
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monrein
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Might as well smile
« Reply #37 on: February 07, 2009, 05:57:50 PM »
Yes yes yes Traci.  Good job all around and how wonderful that you're home.  Soon you won't feel like a truck ran over you, you'll just feel like new again I hope. 
 :flower; :flower; :flower; :bandance; :bandance; :bandance; :flower; :flower; :flower;
 :grouphug; :grouphug; :grouphug; :cuddle; :cuddle; :cuddle; :cuddle; :grouphug; :grouphug; :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Chris
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« Reply #38 on: February 08, 2009, 01:06:52 PM »
Glad your home Traci and got the emails. Sorry I couldn't come up with anything funny on the two I sent, I tried.  ;D But didn't want you to bust a stitch out for laughing either and then ohhh the pain from laughing.

Hope you feel 100% better soon.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kellyt
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« Reply #39 on: February 08, 2009, 02:26:19 PM »
I'm glad to hear you're home and doing well.  I sure wish I could have been out on day four!  When I think back, I was darn ready to leave on day four, five, and six!   ;D

Did you get my card?  I mailed it to the hospital on the 3rd.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Ang
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« Reply #40 on: February 08, 2009, 02:39:54 PM »
congrats  traci :yahoo;
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live  life  to  the  full  and you won't  die  wondering
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #41 on: February 08, 2009, 04:34:06 PM »
His Majesty King Leon proclaims royal congratulations!
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
MIbarra
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Stopping to smell the bluebonnets
« Reply #42 on: February 08, 2009, 05:22:30 PM »
 :bandance;  Yeah! So glad the transplant was a success!!!  :cheer:
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Cadaver transplant April 29, 2007
pelagia
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« Reply #43 on: February 08, 2009, 05:24:58 PM »
can't wait for the  :pics;

Hope Traci and Ryan are both having good days!  :flower;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
kidney4traci
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« Reply #44 on: February 09, 2009, 11:33:55 AM »
Feeling stronger today.  Weather here is good so I have walked outside and just down the street and back.  Hard to sleep last night, didn't sleep until almost 3 pm.  Damn meds...  Anyway I have a photo of the actual kidney I just got from one of the doctors.  Sorry if it is too big... bot sure how to guage that yet.  Help is appreciated.  Ryan still has problem with BM, hasn't gone by herself yet.  That has been her biggest complaint.  I feel only 3 months pregnant now.  Still have one JP drain line and that is the biggest PITA (pain in the a**).  Should get that out Wed.  My first labs are tomorrow and seeing the nephs. 




Edited: Resized photo - okarol/admin
« Last Edit: February 09, 2009, 12:04:56 PM by okarol » Logged
Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
paul.karen
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« Reply #45 on: February 09, 2009, 12:00:33 PM »
:-)  :thumbup;

Sorry Ryan is having a dilema. :-(
But glad your up and about and feeling better.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Chris
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« Reply #46 on: February 09, 2009, 12:16:59 PM »
Sorry to hear about Ryan, hope she feels better soon.
Good Luck tomorrow, I'm sure the labs will be great. Yes the drains are a PITA, just glad they came out so easy on me. Just made me squeamish a little when they pulled on the tubing (to many Sci Fi movies maybe?).
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #47 on: February 09, 2009, 12:28:37 PM »
Sorry to hear about Ryan, but I'm sure things will start happening soon! I'm glad you're doing so well. That is an absolutely beautiful photo too!!
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
del
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del and willowtreewren meet
« Reply #48 on: February 09, 2009, 01:54:41 PM »
 :flower; :flower; :clap; :clap; So happy for you!!
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Don't take your organs to heaven.  Heaven knows we need them here.
pelagia
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« Reply #49 on: February 09, 2009, 04:51:04 PM »
That is a truly gorgeous kidney!   :flower;

P.S. hope things start moving along for Ryan very soon!
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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