What to avoid ???

[angieskidney]

Here is a quick reply from the newbie.

On Starfruit...Starfruit contains a neurotoxin.  People with compromised kidney function/kidney failure are not able to rid/clear the blood of this toxin and it can cause anything from hiccups to cardiac arrest.  Reported deaths were of those people who drank the juice of this fruit (a high concentration).  A nibble may not hurt you, but it is not recommended.  I wouldn't want to put myself at risk.  It is often used as a garnish in salads and in drinks.  Looks like a star when you slice it.

Dried fruit like fruit juice of high and low potassium fruits is highly concentrated and will be high in potassium.  There are juices like apple or cranberry that are better choices, but portion size is the key.

~A

VERY true about Starfruit! And VERY good post! Thanks for that! 

[sandman]

Angie, didn't you post a good find on starfruit here before?

[angieskidney]

Angie, didn't you post a good find on starfruit here before?

Yes Jeff .. in this very thread lol

[sandman]

Angie, didn't you post a good find on starfruit here before?

Yes Jeff .. in this very thread lol

Yeah, that's the one.  Thanks Angie. 

[angieskidney]

more on star fruit:

I'm sure most of us have heard this report before, but good as a reminder to post here...

Dialysis patients need to be alerted to a possible danger from eating star fruit.

An article in Nephrol Dial Transplant (1998) suggested that star fruit contains "an excitator neurotoxin" and has been linked with death in some dialysis patients and in those with renal insufficiency. The elliptical-shaped tropical fruit is connected with a variety of toxic episodes.

a total of 32 uraemic patients who had ingested star fruit. Before the intoxication episodes, 20 patients were on regular haemodialysis, eight were on peritoneal dialysis and four were not yet undergoing dialysis. Two patients were analysed retrospectively from their charts, 17 were directly monitored by our clinic and 13 were referred by physicians from many areas throughout the country, allowing us to follow their outcome from a distance. Intoxicated patients were given different therapeutic approaches (haemodialysis, peritoneal dialysis and supportive treatment), and their outcomes were analysed.

Results. The most common symptoms were persistent and intractable hiccups in 30 patients (93.75%), vomiting in 22 (68.7%), variable degrees of disturbed consciousness (mental confusion, psychomotor agitation) in 21 (65.6%), decreased muscle power, limb numbness, paresis, insomnia and paresthesias in 13 (40.6%) and seizures in seven (21.8%). Patients who were promptly treated with haemodialysis, including those with severe intoxication, recovered without sequelae. Patients with severe intoxication who were not treated or treated with peritoneal dialysis did not survive.

Conclusions. Haemodialysis, especially on a daily basis, is the ideal treatment for star fruit intoxication. In severe cases, continuous methods of replacement therapy may provide a superior initial procedure, since rebound effects are a common event. Peritoneal dialysis is of no use as a treatment, especially when consciousness disorders ensue.

[kidney96]

OOps.  Did not mean to be repetitive.  I did not see this particular post and I thought I had read through all of them. 

~A

[glitter]

so why no diet cola?


Carbonated beverage, low calorie, cola or pepper-type, with aspartame, contains caffeine  (1)
New Search
Refuse: 0% 
Scientific Name: 
NDB No: 14416 (Nutrient values and weights are for edible portion)

Nutrient  Units  1.00 X 1 can 12 fl oz
-------
415g 
Proximates 
Water  g 413.09
Energy  kcal 8
Energy  kj 29
Protein  g 0.46
Total lipid (fat)  g 0.12
Ash  g 0.12
Carbohydrate, by difference  g 1.20
Fiber, total dietary  g 0.0
Sugars, total  g 0.00
Sucrose  g 0.00
Minerals 
Calcium, Ca  mg 12
Iron, Fe  mg 0.46
Magnesium, Mg  mg 4
Phosphorus, P  mg 37
Potassium, K  mg 33
Sodium, Na  mg 33
Zinc, Zn  mg 0.04
Copper, Cu  mg 0.008
Manganese, Mn  mg 0.444
Fluoride, F  mcg 248.2
Selenium, Se  mcg



is there another reason?

[okarol]

This is from Renal Dietary guidelines at http://www.tarcweb.org/tarcweb/diet.asp

Some food items listed below may not seem so high in phosphorus. For example, 12 ounces
of cola beverage contributes 50 mg of phosphorus. However this really can add to your total
daily phosphorus intake and not leave room for essential food items such as animal protein foods.
Compare cola to a similar food item such as 12 ounces of cream soda, which won't contribute any
phosphorus.

You know all this I am sure, but since Jenna never had high phosphorus, and I had never heard of binders until i came to IHD, I am posting it.
It's from http://www.healthopedia.com/diet-for-kidney-disease/

Phosphorus

The kidneys play an important role in balancing the phosphorus and calcium in the body. When a person has kidney disease, the phosphorus from food may build up in the blood. Too much phosphorus in the blood pulls calcium from the bones. Losing calcium makes the bones weak and more likely to break. Also, too much phosphorus may make the skin itch. The following foods are high in phosphorus and need to be restricted:
~ cola drinks
~ milk and cheese
~ nuts and peanut butter
~ peas

Most people on dialysis also need to take a phosphate binder to control the phosphorus in their blood between dialysis sessions. These medications act like sponges to soak up, or bind, phosphorus while it is in the stomach. Once it is bound, the phosphorus does not get into the blood. Instead, it is passed out of the body in the stool.

[goofynina]

Thank you so much for these posts  Glitter and Okarol, so many times i often wondered about it but never really wanted to ask, just tried to avoid them as much as possible.  I still dont think drinking a diet cola would be so bad, especially if you are strict with the other things you eat during the day, work it in with your daily consumption, just dont forget your binders, 

and i had no idea cream soda had no phosphorus, I LOVE CREAM SODA... time to go to the store   thanks again   

[Zach]

http://www.thecoca-colacompany.com/mail/goodanswer/soft_drink_nutrition.pdf

This has the nutritional values (which includes phosphorus) of Coca-Cola products, including their brands of root beer, creme, and other flavors.

[kitkatz]

Has anyone tried the new diet pepsi flavors?

[Sluff]

What flavor are you talking about?

[kitkatz]

Caramel, cream soda, and others

[YouDontKnowCecil]

I avoid diet sodas like the plague. Especially anything that contains the artificial sweeteners acesulfame potassium or sucralose (Splenda). I've noticed that whenever I take anything with one or two of those, I get a sweet taste in my mouth that does NOT go away until I dialyze. I'm assuming that it probably hangs out in my blood stream. I know for a fact that neither are metabolized by the body. So there's a good chance that within the No Pee Society, when we ingest these, they stay in our blood stream till we dialyze. I'm thinking that that can't be good.

I also know that 10% of the aspartame you ingest is metabolized into methanol in the body.

Overall I think artificial sweeteners are scary, I just avoid them.

[Bajanne]

I avoid diet sodas like the plague. Especially anything that contains the artificial sweeteners acesulfame potassium or sucralose (Splenda). I've noticed that whenever I take anything with one or two of those, I get a sweet taste in my mouth that does NOT go away until I dialyze. I'm assuming that it probably hangs out in my blood stream. I know for a fact that neither are metabolized by the body. So there's a good chance that within the No Pee Society, when we ingest these, they stay in our blood stream till we dialyze. I'm thinking that that can't be good.

I also know that 10% of the aspartame you ingest is metabolized into methanol in the body.

Overall I think artificial sweeteners are scary, I just avoid them.

This is some good advice!

[Wattle]

What about white chocolate? Can I eat this when I really need a chocolate fix?   ( with binders of course  )

[George Jung]

What about white chocolate? Can I eat this when I really need a chocolate fix? ( with binders of course )

I do!   It may not be condoned by nutritionest but they are not living as I am and it seems very easy for someone to say not to do something they don't necessarily have to do themselves.  Anyway, I don't eat chocolate everyday but when I do........mmmmm it makes me happy!

[Sluff]

Caramel, cream soda, and others

I'm not much on flavored cola but that carmel flavor has me wondering, I hope I can find it in Diet.

[carson]

Regarding Okarol's post on phosphorus, I'd like to add:

When the body leaches calcium from the bones, it is not always passed out in the stools. Often, the body doesn't know what to do with the extra calcium floating around in the blood so it deposits it in the arteries and heart, and we all know what can happen when the arteries and heart are congested...

Just another good reason to watch your phosphorus levels!!

[Zach]

Just another good reason to watch your phosphorus levels!!

And also a good reason to do resistance exercises -- because that type of exercise has been shown to help keep calcium in the bones.

[BigSky]

What about white chocolate? Can I eat this when I really need a chocolate fix?   ( with binders of course  )

White chocolate isn't actually chocolate,  Also it is roughly the same in PO₄ and K.   Might as well go for the chocolate since its roughly the same. 

White chocolate  1 ounce,   54mg PO₄,  96 mg  K
Reg. chocolate    1 ounce,   58mg PO₄,  105 mg K

[lamillinger913]

Just to add my 2 cents to the phosphorus talk ... the extra calcium can also create deposits in the breasts (ladies), which will cause concerns in a mammogram. That's why I had to have a breast biopsy last year. The calcifications show up on the mammogram and raise all kinds of red flags that it could be pre-cancerous.

[Wattle]

What about white chocolate? Can I eat this when I really need a chocolate fix?   ( with binders of course  )

White chocolate isn't actually chocolate,  Also it is roughly the same in PO₄ and K.   Might as well go for the chocolate since its roughly the same. 

White chocolate  1 ounce,   54mg PO₄,  96 mg  K
Reg. chocolate    1 ounce,   58mg PO₄,  105 mg K

Thanks Bigsky. Thats exactly what I was wondering, if the phosphate and K were similar. 

[carson]

Just to add my 2 cents to the phosphorus talk ... the extra calcium can also create deposits in the breasts (ladies), which will cause concerns in a mammogram. That's why I had to have a breast biopsy last year. The calcifications show up on the mammogram and raise all kinds of red flags that it could be pre-cancerous.

I have to have my first mammogram this year because my ob/gyn is concerned about a little bump she could feel. She doesn't seem too concerned but doesn't want to miss something important either. I have little calcium deposits in my skin, so do you think this little bump could also be calcium and how do I know what to tell the people if they call to tell me they found something? Now I'm really nervous...

[goofynina]

Hi Carson,  You have every right to be nervous, i get nervous even when i get the sniffles, sheeesh, My thoughts and prayers are with you that all goes well, but all you can really do is "Pray for the best, prepare for the worst"  Godspeed my friend...