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Author Topic: Otto's feeling weird?  (Read 3783 times)
lola
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I can fly!!!
« on: January 25, 2009, 02:58:23 PM »
For the last 5 days after he eats(hour or so) Otto starts to get a weird feeling in his hands legs and feet, he is thirsty ALL the time and he feels clammy. I went and bought a glucose meter thinking maybe diabetes but his sugars are normal. I know if I call they will say get him in but he says over his dead body. Any Ideas??????
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thegrammalady
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« Reply #1 on: January 25, 2009, 03:47:01 PM »
this probably won't be of any help. but me (and remember i'm really not a very nice lady) i would tell him to just get in the car because it would do very little good to take his dead body to the doctor. sorry, i warned you it wouldn't be a very useful idea. try telling him all of ihd will worry terribly about him until he goes to the doctor and we find out what's going on. but we really do understand why he doesn't want to go. try reminding him "what you don't know, can and will kill you"  :grouphug; for you and the kids. hope you get this figured out.
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

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For You Are Crunchy And Taste Good With Ketchup
Chris
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« Reply #2 on: January 25, 2009, 04:21:21 PM »
I was hoping you found a better facility to take him to.

Is this with all foods? Or is it with certain foods?
Some things get me that way like certain juices, cranberry, grape, pineapple. But since this just started, it might be something else. Are there meds taken prior to eating or shortly after?

Nothing else is coming to mind right now. Hope you get some useful input and help lola.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Romona
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« Reply #3 on: January 25, 2009, 04:38:45 PM »
Try to get him to go. Hopefully it is nothing serious. He has been through so much lately.
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Sluff
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« Reply #4 on: January 25, 2009, 04:44:53 PM »
Tell him I'm on my way and when I get there, he"ll go!     ;)  I fully understand why he doesn't want to go but I would call anyway and get some medical advice. Tell them he refuses to come in and is there  anything else you can do to help him figure this out. Good Luck.
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G-Ma
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« Reply #5 on: January 25, 2009, 05:13:04 PM »
I also know how to take unwilling "captives" to a Dr...want me to come help?  let me know...love you guys...hope you find out what this is.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
kitkatz
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« Reply #6 on: January 25, 2009, 05:33:51 PM »
I get tingly in my hands when I eat spicy foods or really sweet foods. Weird. huh?    Take him to the car and take him in.  Good luck!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Chris
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« Reply #7 on: January 25, 2009, 05:36:44 PM »
Or do like you do with a dog, don't tell them they are going to the doc, just act like it's a normal drive to somewhere and wham, to late your there.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
lola
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I can fly!!!
« Reply #8 on: January 25, 2009, 06:24:54 PM »
OK so I started to become a CSI agent ;) and went thru his meds and noticed one of his BP meds was now at 50mg instead of 25mg and asked Otto WTF, his response OHHHHHHHHH I forgot to tell you they increased it. So when I goggled it his symptoms where all there :banghead; This is what happens when I don't hold his hand and go to every appt!!!! :banghead; I told him he needs to call 1st thing in the morning and talk to one of the nurses to let them know so they can figure something else to put him on as he gets kinda spacey also. Thanks guys once again :grouphug; :grouphug;
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G-Ma
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« Reply #9 on: January 25, 2009, 06:41:18 PM »
You go girl.....great CSI agent.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
thegrammalady
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« Reply #10 on: January 25, 2009, 06:50:45 PM »
good for you!
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
kitkatz
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« Reply #11 on: January 25, 2009, 08:09:23 PM »
Kickin' ass and takin' names! You go girl!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
2_DallasCowboys
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« Reply #12 on: January 26, 2009, 04:29:01 PM »
Good for you, Lola

My hubby was on a bp med
that also made him very spacey -

Dr took him off, it was too strong for
him

I wish ya luck getting that guy in to the Doc

Anne
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okarol
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« Reply #13 on: January 26, 2009, 04:42:26 PM »

Lola  :yahoo; You ROCK!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Wattle
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« Reply #14 on: January 27, 2009, 03:11:57 AM »
 :cuddle; :cuddle;  Hugs Lola! What would Otto do without you!

You do ROCK!!   :cheer: :cheer:
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
paddbear0000
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« Reply #15 on: January 27, 2009, 08:12:21 PM »
You go girl!! Proud of ya! What is it about the men that they never share what they learn at the doctor's with us?!
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Sluff
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« Reply #16 on: January 27, 2009, 09:11:54 PM »
WOW Look what happens when I threaten to go to her house. :rofl;
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Restorer
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« Reply #17 on: January 27, 2009, 11:59:40 PM »
Huh, what timing. Recently I've been feeling odd - kind of spacey, kind of like my limbs aren't working right. I first started feeling it occasionally a week or two after I switched BP meds, then it went away. Now I'm feeling it again, and more often, and guess what - I just recently doubled my BP meds. So maybe that's the cause.
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
pelagia
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« Reply #18 on: January 28, 2009, 06:51:38 AM »
gotta go with the flow on this one - Lola rocks  :thumbup;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
paul.karen
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« Reply #19 on: January 28, 2009, 07:01:59 AM »
Well Done Lola.

It is our caregivers like you who truly do the leg work.
karen even smiled when she saw this, and gave me the EYE :banghead;
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
vandie
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« Reply #20 on: January 29, 2009, 12:46:09 PM »
Miss Amy,
I am so proud of you.  You are an amazing caregiver and I am so proud we have you on this site.
Much love.   
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Life is the journey, not the destination.
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I received a kidney transplant on August 4, 2007.
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