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Jessmomto3
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Logan's mom!
« on: January 24, 2009, 09:09:43 PM »
Hi all!  I'm Jessica, mommy to Cristian, Jaden, and Logan--ages 8 (in a week), 3 1/2, and 11 months.  I am here because my 11 month old is on peritoneal dialysis and I am hoping to learn more about what he is going through and feeling.  He can't tell me how he feels and he is an exceptionally sweet baby.  But, it never hurts to learn more and sometimes I feel very inadequate with his care.  Dialysis wise--he has done fairly well.  He's been on dialysis for 6 months now.  Anyway, it is nice to meet all of you and i hope to get to know you guys better.  Just from lurking for the past few days I have learned something new which is that people on dialysis typically have restless leg syndrome.  So now I know why he kicks the covers off every night while he's going to sleep.   :)
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Jessica--mommy to Cristian (8), Jaden (4), and our miracle boy Logan (2/23/08)

Logan had PD cath, g-tube, and mediport placement at 4 1/2 months-- 7/2008
started PD at 5 1/2 months--8/2008
Listed--12/2008--inactive
Activated--8/2009

Cadaveric Kidney Transplant 9/4/2009 (18 months old)!!!!!
G-Ma
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« Reply #1 on: January 24, 2009, 09:22:01 PM »
 :welcomesign;  to a great site.  Bless you for taking care of your child.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
swramsay
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My son, Scotland, is my heartbeat.

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« Reply #2 on: January 24, 2009, 10:06:01 PM »
Wow. Your story just made me stop. I am moved by your young son and your situation.
I'm fairly new to dialysis still - only 5 months. The restless legs drive me crazy!! God bless your little son. I can't even find words to describe the feeling but it's terrible. When I get them, I can't sleep at all. Until I can find something else, I have found oxycodone to work. I don't like taking it and I don't like the side effects but it sure beats the feeling of restless legs and zero sleep.

I will look forward to reading more posts from you about Logan.
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JUST KEEP GOING.
March 2009: NxStage Pureflow Home Dialysis 5-6 x's week
Sept 2008: In center dialysis
Sept 2008: Left kidney removed (bladder cancer)
April 2006: Right kidney removed (bladder cancer). Chemo for lymph node mets.
April 2004: Bladder removed plus hysterectomy & neobladder made (bladder cancer)
Feb 1994: Original bladder cancer diagnosis & beginning of this journey

www.marykay.com/wramsay
Joe Paul
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« Reply #3 on: January 24, 2009, 11:02:18 PM »
Jessmomto3, Good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willieandwinnie
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« Reply #4 on: January 25, 2009, 05:01:12 AM »
 :welcomesign; Jessica. Bless that sweet little boy. I believe you have the youngest dialysis patient on IHD and we are so happy you found us. There is loads of information here and when you need a shoulder, we are here for that too. Hope we hear more from you and give your children a big  :grouphug; from us.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile
« Reply #5 on: January 25, 2009, 08:01:40 AM »
 :welcomesign;  Jessica.  I am truly saddened and sorry that your sweet little Logan has to go through what he does.  I am however very happy that you found this site and us because we really do "get it" and we are a wealth of information and support.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
peleroja
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I have 16 hats, all the same style!
« Reply #6 on: January 25, 2009, 10:14:17 AM »
Welcome, Jessica.  I did PD for 5 years and am hoping to get back to it in a couple of months.  Feel free to email me on IHD if you have questions.  I've never heard of anyone as young as Logan being on PD.  Amazing what they can do nowadays.
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boxman55
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« Reply #7 on: January 25, 2009, 10:36:55 AM »
Welcome Jessica, and give Logan a big hug. It broke my heart knowing that an 11 month has to go through this. Please post often with your questions. We will line up to help you

Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
joyfulmother
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Becky

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« Reply #8 on: January 25, 2009, 11:46:01 AM »
Welcome Jessica!  I'm a new member also (well, I joined last year but just posted yesterday).  I am new to PD - 2 weeks now but I am 42.  It's a new and different world but I can't imagine what it would be like if I was caring for a child doing PD.  God bless you!
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Becky
44 years old, Christian, homeschooling mom to my boys, ages 7 & 9.
- PD Patient beginning 12/31/08
- Listed on September, 2009
- Transplant on March 28, 2010
ODAT
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Nala - Mom's Cat
« Reply #9 on: January 27, 2009, 06:32:08 AM »
Hi Jessica, I pray for you and your family. You have got your hands full. Like Monrein and all of us say, this site is a blessing. The support is amazing and so is the information. The members truly care about one another.

I am here for my mom who is pre-dialysis. We've been through a lot and I don't know what I'd do if I wasn't a member here.

 :cuddle;
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As is your sort of mind, so is your sort of search: you will find what you desire.
paul.karen
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« Reply #10 on: January 27, 2009, 06:41:21 AM »
:-(

Poor little Logan.  But i am glad he is doing pd and not having to use needles.  If that is even a possability.
I pray he will get a New kidney SOON so he can live a normal life and be like all the other children.  But until then he is in Great hands with his mom at his side.  Talk about having a full load three little ones must be a task.
Glad you found us here.  And hope to see you post often about dialysis and just in general.

Oh sorry  :waving; Jess and kids  :clap;

P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Razman
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« Reply #11 on: January 27, 2009, 09:24:38 AM »
WOW ,  I sometimes think that I've got it hard and then I read about your little one.    I hope that we can help in some way so please stay in touch.    :grouphug;
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MandaMe1986
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« Reply #12 on: January 27, 2009, 09:47:30 AM »
Welcome, sorry to hear about your little one.  I am a mother of 3 year old twins. I feel for you.   But his is a wonerful site, I am sure you will get what your looking for. Ask anything and anwsers will come flying at ya. 
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Jessmomto3
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Logan's mom!
« Reply #13 on: January 27, 2009, 09:18:22 PM »
Quote from: G-Ma on January 24, 2009, 09:22:01 PM
:welcomesign;  to a great site.  Bless you for taking care of your child.

Thank you very much!  I am already learning so much.  He's a sweet little guy.  I updated his picture since the one I had there was from this summer.
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Jessica--mommy to Cristian (8), Jaden (4), and our miracle boy Logan (2/23/08)

Logan had PD cath, g-tube, and mediport placement at 4 1/2 months-- 7/2008
started PD at 5 1/2 months--8/2008
Listed--12/2008--inactive
Activated--8/2009

Cadaveric Kidney Transplant 9/4/2009 (18 months old)!!!!!
Jessmomto3
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Logan's mom!
« Reply #14 on: January 27, 2009, 09:19:55 PM »
Quote from: swramsay on January 24, 2009, 10:06:01 PM
Wow. Your story just made me stop. I am moved by your young son and your situation.
I'm fairly new to dialysis still - only 5 months. The restless legs drive me crazy!! God bless your little son. I can't even find words to describe the feeling but it's terrible. When I get them, I can't sleep at all. Until I can find something else, I have found oxycodone to work. I don't like taking it and I don't like the side effects but it sure beats the feeling of restless legs and zero sleep.

I will look forward to reading more posts from you about Logan.


I can imagine it must be!  His legs kick like crazy until he falls asleep.  I'm stopped even trying to cover him up until he's out.  The worst part for us is his nausea.  Sometimes he gets so nauseated that he will gag if he even sees someone eating.  Thank God for his feeding tube!
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Jessica--mommy to Cristian (8), Jaden (4), and our miracle boy Logan (2/23/08)

Logan had PD cath, g-tube, and mediport placement at 4 1/2 months-- 7/2008
started PD at 5 1/2 months--8/2008
Listed--12/2008--inactive
Activated--8/2009

Cadaveric Kidney Transplant 9/4/2009 (18 months old)!!!!!
Jessmomto3
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Logan's mom!
« Reply #15 on: January 27, 2009, 09:21:11 PM »
Quote from: willieandwinnie on January 25, 2009, 05:01:12 AM
:welcomesign; Jessica. Bless that sweet little boy. I believe you have the youngest dialysis patient on IHD and we are so happy you found us. There is loads of information here and when you need a shoulder, we are here for that too. Hope we hear more from you and give your children a big  :grouphug; from us.  :cuddle;


I'm happy to be here too.  From what I understand it's pretty rare to have an infant on PD.  He is one of 2 in all of South Texas.  and it's a BIG state. 
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Jessica--mommy to Cristian (8), Jaden (4), and our miracle boy Logan (2/23/08)

Logan had PD cath, g-tube, and mediport placement at 4 1/2 months-- 7/2008
started PD at 5 1/2 months--8/2008
Listed--12/2008--inactive
Activated--8/2009

Cadaveric Kidney Transplant 9/4/2009 (18 months old)!!!!!
Jessmomto3
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Logan's mom!
« Reply #16 on: January 27, 2009, 09:23:36 PM »
Quote from: peleroja on January 25, 2009, 10:14:17 AM
Welcome, Jessica.  I did PD for 5 years and am hoping to get back to it in a couple of months.  Feel free to email me on IHD if you have questions.  I've never heard of anyone as young as Logan being on PD.  Amazing what they can do nowadays.


Hi!  And thanks for the welcome!  I just may take you up on that if I have any questions.  Since having my little one I've even found a few online who started PD a few days or so after birth.  We prolonged it as long as we could safely but I could tell he was starting to feel worse and worse.  He has his good days and bad days.  And he has the happiest disposition.  I guess he really doesn't know anything else. 
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Jessica--mommy to Cristian (8), Jaden (4), and our miracle boy Logan (2/23/08)

Logan had PD cath, g-tube, and mediport placement at 4 1/2 months-- 7/2008
started PD at 5 1/2 months--8/2008
Listed--12/2008--inactive
Activated--8/2009

Cadaveric Kidney Transplant 9/4/2009 (18 months old)!!!!!
Jessmomto3
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Logan's mom!
« Reply #17 on: January 27, 2009, 09:25:25 PM »
Quote from: boxman55 on January 25, 2009, 10:36:55 AM
Welcome Jessica, and give Logan a big hug. It broke my heart knowing that an 11 month has to go through this. Please post often with your questions. We will line up to help you

Boxman,Moderator

Thank you!  Big hugs back to all of you guys.  My little guy has a one up in a sense since he has no clue what it's like to be "normal,"  this is his normal.  He sleeps through most of his PD.  And he hates me taking his temp as much as he does his EPO and growth hormone shots. 
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Jessica--mommy to Cristian (8), Jaden (4), and our miracle boy Logan (2/23/08)

Logan had PD cath, g-tube, and mediport placement at 4 1/2 months-- 7/2008
started PD at 5 1/2 months--8/2008
Listed--12/2008--inactive
Activated--8/2009

Cadaveric Kidney Transplant 9/4/2009 (18 months old)!!!!!
Jessmomto3
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Logan's mom!
« Reply #18 on: January 27, 2009, 09:27:03 PM »
Quote from: joyfulmother on January 25, 2009, 11:46:01 AM
Welcome Jessica!  I'm a new member also (well, I joined last year but just posted yesterday).  I am new to PD - 2 weeks now but I am 42.  It's a new and different world but I can't imagine what it would be like if I was caring for a child doing PD.  God bless you!


Hi mama!  How is PD going for you?  I saw in your siggy you are homeschooling 2.  I am homeschooling my almost 8 year old and soon to be with my 3 1/2 year old.
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Jessica--mommy to Cristian (8), Jaden (4), and our miracle boy Logan (2/23/08)

Logan had PD cath, g-tube, and mediport placement at 4 1/2 months-- 7/2008
started PD at 5 1/2 months--8/2008
Listed--12/2008--inactive
Activated--8/2009

Cadaveric Kidney Transplant 9/4/2009 (18 months old)!!!!!
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #19 on: February 06, 2009, 01:47:21 PM »

Hi Jessica,
Welcome - I was reminded of another Jessica when I read your story.  Her son Gavin has a similar story and it might be helpful for you to read their journal.
Here's the link to their caringbridge site. http://www.caringbridge.org/mn/gavindahms/
Best of luck to you and your family!

okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
jessup
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« Reply #20 on: February 06, 2009, 01:55:43 PM »
G'day and  :welcomesign; mate
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aharris2
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Volcan Pacaya, Guatemala
« Reply #21 on: February 07, 2009, 04:38:50 PM »
PD, feeding tube, epo and growth hormone shots...

...and he's a sweetie. Jess, I hope your little man's life gets nothing but better. Welcome, we're here for you.

Alene and Rolando
 :grouphug;
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
paris
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« Reply #22 on: February 07, 2009, 06:52:44 PM »
Your little mans story is exactly why I can't complain.  Such a sweetie and dealing with so much.  We are so glad you found this site.  There is lots of information, but we are really good at support too.  This is a safe place to rant, cry or just let yourself go.  We also have some good laughs together.  We are now all in love with Logan, so please keep us updated.  I hope you find some good friends here.   :cuddle;




paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Tinah1968
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ME
« Reply #23 on: February 08, 2009, 06:51:06 PM »
Welcome and I agree with Paris I am getting close to dialysys but, I have nothing to complain about. Glad your here
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
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