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Author Topic: Horrible shaking!  (Read 2992 times)
paddbear0000
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« on: January 14, 2009, 08:21:50 AM »

Over the last 2-3 days, I have been shaking gradually more and more. Today, I'm shaking horribly and having muscle spasms like crazy. Plus, I feel the desperate need to sleep, but can't. Any ideas?    ???

Oh yeah, and my mouth is so dry, I can't even swallow. Drinking is not helping.
« Last Edit: January 14, 2009, 08:25:56 AM by paddbear0000 » Logged

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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
skyedogrocks
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Rob showing off his pot of gold!

« Reply #1 on: January 14, 2009, 08:39:23 AM »

Right before Rob started dialysis, his hand would shake and he wouldn't be able to stop them.  It was bad!  More and more it looks like you will need to start dialysis.  That sucks, but hopefully you will feel a lot better once you do.  :cuddle;
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Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.

11/17/09 After 4 years on dialysis, Rob received a kidney from our George.  Kidney is working great!  YEAH!!!!
paul.karen
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« Reply #2 on: January 14, 2009, 08:42:18 AM »

It sounds like your time is very near.
I wish you the best in this new chapter.....

I am sure/hope  being here has made you as ready as you can be to take the next step..
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
paddbear0000
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« Reply #3 on: January 14, 2009, 09:29:59 AM »

Definitely. Every doctor and nurse that I see keeps telling me I sure know a lot about ckd, dialysis, transplants, etc. All thanks to IHD!    :grouphug;
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Sunny
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Sunny

« Reply #4 on: January 14, 2009, 11:56:58 AM »

Any new meds recently started that might be causing this?
If not, then tell your nephrologist about it to see if there is anything to be done about it. I have had hand tremors and feet cramps too along with tingling in my feet and calves.
Neph told me to try vicodin when this happens (usually at night when I'm trying to sleep) and it does seem to help. Hope the doctors can help.
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Sunny, 49 year old female
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pelagia
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« Reply #5 on: January 14, 2009, 01:41:27 PM »

my husband had the cramps and the shaking before he started dialysis.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Lucinda
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Life is great!

« Reply #6 on: January 14, 2009, 01:51:29 PM »

I still find it amazing that some of us have hardly any symptoms when it is time to start but some people like poor paddbear have so many symptoms when her levels are still reasonably low.  I am sorry you are getting so many symptoms paddbear, doesn't seem fair to me when my levels are so much higher and I have no symptoms much at all.  When is your next appointment with you neph?  I am thinking maybe you should bring it forward if it isn't for a while.  xx
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kidney4traci
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« Reply #7 on: January 16, 2009, 03:26:30 PM »

Oh dear, I missed this.  I hope you are feeling better today??  Praying for you.  What do the neph's say?  I too had really bad cramps when I finally went to the dr.  That was when they gave me the news...  so I must say that at least you fell better once the toxins have a way out.  Bless you - update please...
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
paddbear0000
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« Reply #8 on: January 16, 2009, 10:20:47 PM »

I still have the tremors, some days are bad, some barely noticeable. I don't have cramps, but rather spasms. Muscles in my feet, legs, hands or arms will twitch suddenly and I may involuntary kick or drop something. Those too can vary from minimal to bad, depending on the day. All of my kidney failure symptoms come and go like that.
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
G-Ma
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« Reply #9 on: January 16, 2009, 11:01:58 PM »

I am sorry you are having all these symptoms.  It's really unusual how this crazy disease affects us all.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
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« Reply #10 on: January 17, 2009, 04:27:22 AM »

Paddbear, just keep track of sugar more closely when you travel just incase some symptoms are hard to disyinguish between hypoand hyper glycemiic attacks.

Sorry to hear more symptoms are occuring and wish you the best.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paddbear0000
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« Reply #11 on: January 17, 2009, 03:38:41 PM »

Oh, I do. I have a test kit in my purse tat goes everywhere with me. But best of all, I will be getting one of those Continuous Glucose Monitoring insulin pumps from MiniMed this week. I'm so excited!   :bandance; :bandance; :bandance;  I'll probably start pissing people off around me though, because it's going to keep alarming every time I start going high or low. My husband's gonna love it when he's trying to sleep!
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Chris
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« Reply #12 on: January 17, 2009, 03:45:29 PM »

If I remember right, the sound can be lowered, I'm not sure if they put on the vibrate mode yet. I haven't been to the last 2 diabetes fairs due to being sick. Hopefully get to go this year to get updated again.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #13 on: January 17, 2009, 05:57:49 PM »

Why? You're not diabetic anymore! They'll have more, and with even more advanced stuff!
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Chris
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« Reply #14 on: January 17, 2009, 07:32:47 PM »

Because when my pancreas fails, I want to know my options ahead of time. I want to be better informed than I was when I was 7 years old. So I like to keep up to date on whats out there.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paddbear0000
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Gender: Female
Posts: 2384


Dogs & IHDer's are always glad to see you!

WWW
« Reply #15 on: January 17, 2009, 08:31:16 PM »

Ah. I've never been to one. They never come around where I've lived.
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
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