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Author Topic: My dad passed away  (Read 8104 times)
Danally
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« on: December 12, 2008, 05:13:15 PM »
My dad passed away at the beginning of the week. His heart became to weak from all of the fluid over load. The dialysis center he went to told us that he was not complaint. I begged him to follow the dialysis diet and to limit his fluids. He told me I am doing fine. I knew he was not doing fine. I am so angry that he did not listen to his doctors. I guess he lived the way he wanted to live. The doctors said if he followed the diet and limited his fluids he could live a good life. I tried talking to him and yelling at him but nothing worked. My mom is now blaming herself. I wanted to wish all of you good luck and please follow the doctors directions, so you can live a long life.
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okarol
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« Reply #1 on: December 12, 2008, 05:37:41 PM »
So sorry for your loss Danally.  :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
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Wattle
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« Reply #2 on: December 12, 2008, 05:39:58 PM »


Sending hugs Danally.   :grouphug; :grouphug;  I know how hard it is loosing your Dad. xoxox
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
thegrammalady
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« Reply #3 on: December 12, 2008, 05:41:26 PM »
i am sorry for your loss  :grouphug;  anger is a natural reaction, and one we all here understand. hopefully your mother won't continue to blame herself, she had no control over how your father reacted to his kidney disease.  :grouphug; :grouphug;
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

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Ang
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« Reply #4 on: December 12, 2008, 05:43:13 PM »
sorry  for  your  loss
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live  life  to  the  full  and you won't  die  wondering
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« Reply #5 on: December 12, 2008, 06:35:53 PM »
Hugs  :grouphug; :grouphug; and prayers for you and your family.
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lifenotonthelist.com

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Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

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monrein
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Might as well smile
« Reply #6 on: December 12, 2008, 06:40:30 PM »
So sorry to hear of your loss.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Budluv
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« Reply #7 on: December 12, 2008, 07:00:13 PM »

   So sorry for your loss.  :grouphug;

                   
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paris
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« Reply #8 on: December 12, 2008, 07:08:06 PM »
I am sorry about your Dad.  Please tell your Mom not to blame herself.  It is not her fault.  Sending love and sympathy to you and your family   :grouphug;
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« Reply #9 on: December 12, 2008, 08:26:49 PM »
I'm sorry for your loss.  I'm just curious, what did he gain between runs.  Over 3 kilos?
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paddbear0000
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« Reply #10 on: December 12, 2008, 08:31:48 PM »
I'm very sorry for your loss.   :cuddle;
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
G-Ma
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« Reply #11 on: December 12, 2008, 08:38:34 PM »
 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
kidney4traci
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« Reply #12 on: December 12, 2008, 08:53:41 PM »
Sorry for your loss. I too know what its like to lose your dad to dialysis. Take care of yourself. 
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
Roxanne610
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« Reply #13 on: December 12, 2008, 09:51:01 PM »
I am so so so so very sorry....I feel the pain you feel as too I know because my dad is very very sick. The difference is that he is following direction only to just get worse and worse everyday. Im sorry you lost your dad!!!!!!!!!!!!!!!!  I think you can follow all the direction you want but we have no control over what the next day brings sometimes its beyond our control.  Its a normal reaction to have guilt my mom has guilt too and its not there fault they can only do what our dads will let happen..

We have a double edge sword, my dad had a liver transplant 12 years ago and now the meds from that has given him kidney failure now and if thats not enough the Hepatitis C that caused the liver transplant is active and damaging the liver.  Its such a hard thing to go through when it is your dad I think often right now what I will do if I lose him because we sure can and I would be devastated it would literrally kill me. 

Take each day as it comes that is the only thing we can do nothing is going to make you feel better but time and only time brings less tears everyday, because when you loose someone you love it is the biggest hurt that someone can go through and there is nothing anyone can say or do to take it away.  My prayers are with you and your family and may god be with you at a time when you need him the most....
 :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug;
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My DAD:
Cirrohsis at 32 from Hepatitis C,,,,50 Liver Failure from Hep C, 52 Liver Transplant, 2000 Lymphoma from Anti Rejection Meds treated and has been fine. 
Present:  Kidney failure from Meds for the liver transplant
Hepatitis C is very very active which is damaging the liver they are worried that he may need a liver transplant to, but until he is strong enough to get the liver biopsy.  And now he is hit with blood infection that he caught in the hospital ( i feel from nurses being not gentle enough with him)....
Started Dialysis Nov 08...Just waiting to see what the miserable Hep C disease is doing to our liver before we can even think about a kidney transplant!!!! :(

Roxanne  :(
My prayers and thoughts are with everyone!!!
Joe Paul
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« Reply #14 on: December 12, 2008, 10:34:03 PM »
My condolences to you and your family  :grouphug;
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"The history of discovery is completed by those who don't follow rules"
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Mimi
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« Reply #15 on: December 12, 2008, 11:03:16 PM »
You have my sympathy.  I lost my Dad 43 years ago and I still miss him.  You and your family will be in my prayers.

Love, Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
rose1999
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« Reply #16 on: December 12, 2008, 11:27:00 PM »
I am so sorry for your loss.  Try not to blame anyone, your Dad lived his life as he wished and no one was to blame for that, sometimes choice is all we have left.  Like Roxanne, my Dad too lives 'by the rules' but he is slowly getting worse, maybe it is better to live the (shorter) life you enjoy than this. But I know that won't make the pain you feel go away, you and your Mum will be in my thoughts.  :grouphug;
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charee
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« Reply #17 on: December 13, 2008, 01:04:56 AM »
 :grouphug;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
wrandym
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Whatever, dude!
« Reply #18 on: December 13, 2008, 01:29:01 AM »
I am so sorry to hear that, Danally.  My prayers are with you and your family.  Take care of yourself and hug your mother.
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1982 Diagnosed with Type 1 Diabetes-started on pork insulin
1999 Started showing protein in urine
2000 Retinal issues began-ended with losing sight in both eyes due to retinal detachment-sight returned by surgery
2003 Started on Insulin Pump
2008 November started hemodialysis
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« Reply #19 on: December 13, 2008, 01:31:42 PM »
My deepest condolences on the loss of your Father.  :(
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David13
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« Reply #20 on: December 13, 2008, 01:33:30 PM »
 :grouphug;
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Romona
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« Reply #21 on: December 13, 2008, 02:46:00 PM »
 :grouphug;
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willieandwinnie
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« Reply #22 on: December 13, 2008, 02:55:43 PM »
 :grouphug; I'm so sorry.  :cuddle;
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« Reply #23 on: December 13, 2008, 03:06:13 PM »
Oh dear  :cuddle;
My sincere condolences to you and your family :grouphug;
Your Dad lived his life as he wanted and your Mum and you shouldn't blame yourselves.
It is hard loving and caring for a loved one who makes decisions that you may not agree with - but we need to respect their decisions
Just remember all the great times and memories

Lots of love at this very sad time
Take care mate
 :flower; :flower; :flower;
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cris
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« Reply #24 on: December 13, 2008, 11:02:41 PM »
Danally,
when someone you love died, it is also like dying a little. It is hard.
Godspeed for your Dad, and prayers for your Mom and family on this very difficult time. :grouphug; :grouphug; :grouphug;
love,
cris
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there is no greater love than this: "that a man lays down his life for his friend"
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