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Author Topic: Dont understand test results  (Read 4305 times)
BRANDY
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« on: November 24, 2008, 02:59:24 PM »

I am trying to get help on my test results    please someone  help  I cant find any   my nurse cant explain  she is reading what info she has which  hasnt  helped  and neph didnt cover these results.   my microalbumin is 1263.4   and  my creatine --- alb/ creat ratio is 1831  what does this mean   my gfr has went back up to 24%  from 21%  which that is better  what do the other results mean.?
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Adapt and Overcome
 
Diabetic 1973
2000-clavical surgery
2000-rotor cuff surgery
2001- cervical surgery
2002 cervical surgery
2003 - cervical surgery
2004- lumbar surgery
2004 hysterectomy
2009-fistula placed
  Im diabetic with neuropathy, ckd ,bad back bad neck
monrein
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« Reply #1 on: November 24, 2008, 03:43:20 PM »

http://www.stacommunications.com/journals/pdfs/cme/cmepdfoct03/drklassenmicroalbuminuria.pdf

Is this of any help? 



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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
BRANDY
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« Reply #2 on: November 24, 2008, 04:40:11 PM »

MONREIN---- that was a good website   thank you    but I still dont know what Im lloking at.  it says something about  nephropathy  what exactly is this  not trying to sound stupid   maybe I am  but dont understand    and wont if i dont ask questions   I know I should ask doc but wont see him for another month   by then I will forget to ask    that website says  30 - 300 mg a day    BUT MINE is 1263.4  that is alot higher  what does this mean? does anyone know    Im all beside myself on this
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Adapt and Overcome
 
Diabetic 1973
2000-clavical surgery
2000-rotor cuff surgery
2001- cervical surgery
2002 cervical surgery
2003 - cervical surgery
2004- lumbar surgery
2004 hysterectomy
2009-fistula placed
  Im diabetic with neuropathy, ckd ,bad back bad neck
monrein
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« Reply #3 on: November 24, 2008, 05:32:45 PM »

Brandy, nephropathy just means diseases of the kidney.  Diabetic nephropathy would be kidney disease caused by diabetes.  Your nephrologist is your kidney specialist.  Nephrons are the things in the kidney that do the filtering of water and wastes.

Don't get beside yourself because things will be harder to understand.

Remember that many of your blood work results are completely abnormal because your kidneys aren't working very well.  Your gfr at 24% tells you that.   It means they're only working about 24% of normal so of course lots of things will be out of whack.  Your microalbumin (which means "little Protein") is way high because you have a lot more than a little protein in your blood.  Are you diabetic by the way? 

Try not to stress yourself out with blind worry OK. 

Don't worry about sounding stupid.  Keep on asking and things will get clearer bit by bit.  I'm happy to try and answer whatever I can and I know that others here will too.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
pelagia
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« Reply #4 on: November 24, 2008, 07:50:38 PM »

The Mayo Clinic also talks about microalbumin on one of it's websites:
http://www.mayoclinic.com/health/microalbumin/MY00143

Are you seeing your doctor again soon?  You should ask him to explain the results and the implications for your longer-term health.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
BRANDY
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« Reply #5 on: November 25, 2008, 10:15:07 AM »

Thank you I can understand better by what you said Monrein and yes I am diabetic for 34 yrs.  Im on pump now  and it has hjelped  but now Im ckd  what else is going to go on    I know  diabetic are sucsessful for everything. Also  I will seee my neph in a month.  He didnt cover  all my test results, thats why I am concerned .   But Monrein you have eased my mind alot    thank you  :thx;
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Adapt and Overcome
 
Diabetic 1973
2000-clavical surgery
2000-rotor cuff surgery
2001- cervical surgery
2002 cervical surgery
2003 - cervical surgery
2004- lumbar surgery
2004 hysterectomy
2009-fistula placed
  Im diabetic with neuropathy, ckd ,bad back bad neck
monrein
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« Reply #6 on: November 25, 2008, 03:07:37 PM »

You're welcome Brandy, that's why we're here, to help one another and I'm glad you feel a bit better.   :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
nursewratchet
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« Reply #7 on: November 28, 2008, 09:23:56 PM »

Brandy,  if your Nurse is not helpful, your next best go to person is the Dietician.  They are excellent in enterpreting labs for you.  Does your Dr. only come 1x/month?  Ours comes once a week. 
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Chris
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« Reply #8 on: November 28, 2008, 09:44:11 PM »

Brandy,  if your Nurse is not helpful, your next best go to person is the Dietician.  They are excellent in enterpreting labs for you.  Does your Dr. only come 1x/month?  Ours comes once a week. 

Hopefully your dietician at your center doesn't use those darn smiley faces on their reports. Those just don't mean a thing and just down grade us as if we were little kids. If she doesn't give you the proper information, ask for a print out from the center or ask the doctor for a print out. The more you know the better you will be when it comes to monitoring what foods effect you and your fluid intake.

Hope you have your eyes checked by an opthalmologist and aretinal specialist. Loosing vision to diabetes just plain sucks, but can be dealt with.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
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No two day's are the same, are they?
kitkatz
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« Reply #9 on: November 29, 2008, 01:00:51 PM »

I get smiley faces on the computerized report. I told her I hated them.  She just said oh well the computer does it.  The other night she walked by with the lab report and went over it with me.  Then said your phosphorous is good. You qualify for another prize. Oh wow! I have a bottle of soap and a plastic poinsettia plant in the house from her prizes. I may just save them all wrap them up for next years Secret Santa.... Nah...too cheap!
« Last Edit: November 29, 2008, 05:55:17 PM by kitkatz » Logged



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« Reply #10 on: November 29, 2008, 05:45:08 PM »

I get smiley faces on the computerized report. I told her I hated them.  She just said oh well the computer does it.  The other night she walked by with the lab report and went over it with me.  Then said your phosphorous is good. You qualify for another prize. Oh wow! I have a bottle of soap and a plastic poinsettia plant in the house from her prizes. I may just save them all wrap them up for next years Secret Santa.... Nah...too cheap!

What a B.S. answer, "the computer does it"  Yeah, well if everyone you follow is walking off a cliff.......

Real numbers tell you what is going on, not those da#@ smiley face crap.

Did I mention that I hate those smiley faces on my report?








EDITED:Corrected spelling error in my quote-kitkatz,Moderator
« Last Edit: November 29, 2008, 10:59:43 PM by Chris » Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Restorer
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« Reply #11 on: November 29, 2008, 10:38:13 PM »

I'm grateful that I get a print-out of all my lab numbers every month, and my nurse goes over the numbers with me. It might be better for me because I'm a PD patient, and I'm expected to be able to take control of my own care. Though I don't consult with the nutritionist much, because she's only in on Mondays, and she never seems to have any more information for me than I could come up with on my own.
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- Matt - wasabiflux.org
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3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
BRANDY
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« Reply #12 on: December 02, 2008, 02:44:14 PM »

To answer several questions--- I see my neph every 3 months, When I go to Doc. I talk to neph about test results, but usually he doesnt cover all on tests  I guess I will have to have him cover all test resullts with me   then I wouldnt have to worrry or ask to many questions.   I will get the hang of the Docs yet Im just not agressive enough  guess I will have to tho.Thank you for your time.
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Adapt and Overcome
 
Diabetic 1973
2000-clavical surgery
2000-rotor cuff surgery
2001- cervical surgery
2002 cervical surgery
2003 - cervical surgery
2004- lumbar surgery
2004 hysterectomy
2009-fistula placed
  Im diabetic with neuropathy, ckd ,bad back bad neck
nursewratchet
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« Reply #13 on: December 02, 2008, 02:53:02 PM »

Medicare has requirements for the Doc to see you, and depending on the state, they have certain requirements on the  number of visits\month.  My clinic has the Dr. every week, for every patient.  I have 2 fulltime Social Workers, and 2 Dieticians, all here every day.  Check to see what the regs are in your stae, and if you aren't seeing them at that rate, you need to raise hell, then call the state to complain...
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Vicki
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« Reply #14 on: December 02, 2008, 03:56:08 PM »

2 full time social workers?????????? wow...we have 1 part time..very part time.   ???
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
pelagia
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« Reply #15 on: December 02, 2008, 07:09:28 PM »

Medicare has requirements for the Doc to see you, and depending on the state, they have certain requirements on the  number of visits\month.  My clinic has the Dr. every week, for every patient.  I have 2 fulltime Social Workers, and 2 Dieticians, all here every day.  Check to see what the regs are in your stae, and if you aren't seeing them at that rate, you need to raise hell, then call the state to complain...

Isn't this for the dialysis clinic?  I didn't think Brandy was doing dialysis.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
nursewratchet
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« Reply #16 on: December 03, 2008, 04:02:12 AM »

OOPS, Brandy!  Sorry, I thought you were in clinic already.  Microalbumin, is just a protein spilling of the kidneys, which is a measure of kidney function.  You already knew that, it's just another test that verifies it.  Helps determine GFR. 
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BRANDY
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« Reply #17 on: December 05, 2008, 05:14:29 PM »

No Im not on dialysis, just trying to get the hang of these darn test results.  I really need to talk more with my neph  I do realize that   but it seems I understand you people  that live with  this condition  better than my neph  and  I really treasure you   thanks alot  :thx;
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Adapt and Overcome
 
Diabetic 1973
2000-clavical surgery
2000-rotor cuff surgery
2001- cervical surgery
2002 cervical surgery
2003 - cervical surgery
2004- lumbar surgery
2004 hysterectomy
2009-fistula placed
  Im diabetic with neuropathy, ckd ,bad back bad neck
monrein
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« Reply #18 on: December 05, 2008, 05:17:48 PM »

http://www.kidneyschool.org/splash/toc.shtml

Here is a great site Brandy.  Go to module 7 for good, clear info about lab teasts.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
BRANDY
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« Reply #19 on: December 09, 2008, 05:55:02 AM »

 :thx;--Morein  for website
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Adapt and Overcome
 
Diabetic 1973
2000-clavical surgery
2000-rotor cuff surgery
2001- cervical surgery
2002 cervical surgery
2003 - cervical surgery
2004- lumbar surgery
2004 hysterectomy
2009-fistula placed
  Im diabetic with neuropathy, ckd ,bad back bad neck
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