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Author Topic: Kidney Patients Come Together  (Read 7156 times)
Zach
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"Still crazy after all these years."
« on: August 20, 2006, 07:13:56 PM »
Here are two upcoming events where kidney patients come together:

AAKP's  33rd Annual Convention

Renaissance Orlando Resort
at Sea World
August 31 - September 3, 2006
Orlando, Florida

I guess registration might be closed ... since it starts this Thursday.


October 5-7: Renal Support Network (RSN) 3rd Annual National Patient Meeting, "Health, Happiness & Hope." Philadelphia Marriott, Philadelphia, PA. Patients from across the nation are encouraged to join us and interact with each other, healthcare professionals, and providers to share goals, support, and unity in a setting of "equals." For more information, contact the RSN at (818) 244-9041. E-mail: info@RSNhope.org. Website: www.RSNhope.org/programs/national_patient_meeting.php.
« Last Edit: August 29, 2006, 09:37:06 PM by Zach » Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
kitkatz
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« Reply #1 on: August 20, 2006, 07:18:42 PM »
I just attended an RSN meeting today.  Very informative one day meeting.  The only problem I see with RSN is all of their speakers so far have been transplant patients.  When is a real dialysis patient going to show up and speak?  I have nothing against transplants (so do NOT start that war with me!)  but I just wish a dialysis patient would be represented in their speakers. It helps to see a real dialysis patient being successful.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Zach
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"Still crazy after all these years."
« Reply #2 on: August 20, 2006, 07:20:54 PM »
Quote from: kitkatz on August 20, 2006, 07:18:42 PM
I just attended an RSN meeting today.  Very informative one day meeting.  The only problem I see with RSN is all of their speakers so far have been transplant patients.  When is a real dialysis patient going to show up and speak?  I have nothing against transplants (so do NOT start that war with me!)  but I just wish a dialysis patient would be represented in their speakers. It helps to see a real dialysis patient being successful.

Then maybe the AAKP convention is for you.  I've attended them in the past ... a good cross-section of speakers.     :)
Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Mom3
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« Reply #3 on: August 21, 2006, 03:52:01 PM »
A few  years back my spouse and I attended an AAKP convention. Going was expensive but worth it! Learned a lot and met some inspirational people. If I could afford it and get off school I'd go to every one, but unfortunately that may have been my first and the last for a long time. Lot's of lot's of dialysis pts. made arrangements for dialysis there. This one was in Memphis...

Could not persuade my son to go even though HE was the one on dialysis!! :-\

Mom 3
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Sara
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« Reply #4 on: August 21, 2006, 05:08:42 PM »
Oh wow, that's like, 2 or 3 hours away from me.  I'll have to check that out.

Is anyone from here going?
« Last Edit: August 21, 2006, 05:12:30 PM by Sara » Logged
Sara, wife to Joe (he's the one on dialysis)

Hemodialysis in-center since Jan '06
Transplant list since Sept '06
Joe died July 18, 2007
Rerun
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« Reply #5 on: August 21, 2006, 05:59:40 PM »
If ANYONE goes to some of these, please take some of our ihatedialysis official fliers.  It wouldn't hurt to put them with the rest of the brochures people take.

http://ihatedialysis.com/forum/index.php?topic=438.msg2720#msg2720
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Hawkeye
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« Reply #6 on: August 21, 2006, 06:08:46 PM »
Quote from: Rerun on August 21, 2006, 05:59:40 PM
If ANYONE goes to some of these, please take some of our ihatedialysis official fliers.  It wouldn't hurt to put them with the rest of the brochures people take.

Good idea as long as it is allowed.
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Zach
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"Still crazy after all these years."
« Reply #7 on: August 27, 2006, 09:38:24 PM »
I hope to attend the AAKP Convention in a couple of weeks ... but my work might prevent it.
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
angieskidney
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« Reply #8 on: August 28, 2006, 12:49:30 AM »
I wish I could go to the Renal Support Network (RSN) 3rd Annual National Patient Meeting, since it is in Philadelphia, PA. where my boyfriend lives .. but I can't plan a trip that soon in advance since I just got back to work. I think they would be like, "You had a whole year off! WTF!?!?!?" Also it is Thursday, Friday, Sat. I couldn't come because I would have to do Friday's dialysis in the States and I don't have coverage :(

Also that one is good because doesn't Lori Hartwell usually speak at that one? She has gone through so much! The first time she had to go on hemo she was only 2 years old!
« Last Edit: August 28, 2006, 01:00:58 AM by angieskidney » Logged
FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
sandman
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« Reply #9 on: August 28, 2006, 12:51:23 AM »
Quote from: Sara on August 21, 2006, 05:08:42 PM
Oh wow, that's like, 2 or 3 hours away from me.  I'll have to check that out.

Is anyone from here going?

I should be able to go considering that it is being held in my city only 10 minutes away but I would feel a little out of sorts going alone.  I really wish I could get Angie to go with me as I know she would enjoy it more then I.  Maybe someone from here would be willing to join me there?
« Last Edit: August 28, 2006, 01:03:12 AM by sandmansa » Logged
Sara
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« Reply #10 on: August 28, 2006, 09:08:48 AM »
Sorry I meant the Orlando one.  ;)   I'll have to ask Joe about the Philly one in October.
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Sara, wife to Joe (he's the one on dialysis)

Hemodialysis in-center since Jan '06
Transplant list since Sept '06
Joe died July 18, 2007
sandman
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« Reply #11 on: August 28, 2006, 06:08:42 PM »
Quote from: Sara on August 28, 2006, 09:08:48 AM
Sorry I meant the Orlando one.  ;)   I'll have to ask Joe about the Philly one in October.

I didn't see any mention of one coming to Florida.  I must have completely missed that.  I was about to ask last night, how you was only 2 or 3 hours away.  :o  quite the fast driver you are coming from Florida.  ;D  But it is really only a 2 and a half hour flight.
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angieskidney
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« Reply #12 on: August 29, 2006, 01:36:59 AM »
Quote from: sandmansa on August 28, 2006, 06:08:42 PM
Quote from: Sara on August 28, 2006, 09:08:48 AM
Sorry I meant the Orlando one.  ;)   I'll have to ask Joe about the Philly one in October.

I didn't see any mention of one coming to Florida.  I must have completely missed that. 

Quote from: Zach on August 20, 2006, 07:13:56 PM
Here are two upcoming events where kidney patients come together:

AAKP's  33rd Annual Convention

Renaissance Orlando Resort
at Sea World
August 31 - September 3, 2006
Orlando, Florida

From their site:
http://www.aakp.org/AAKP/convention.htm


October 5-7: Renal Support Network (RSN) 3rd Annual National Patient Meeting,
"Health, Happiness & Hope." Philadelphia Marriott,
Philadelphia, PA.

Website: www.RSNhope.org/programs/national_patient_meeting.php.

Ya you did miss it :P It is right there (first post)
« Last Edit: August 29, 2006, 01:39:07 AM by angieskidney » Logged
FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
sandman
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« Reply #13 on: August 29, 2006, 05:26:52 PM »
Sorry again but that information was not clearly defind in the first post at the time of my initial posting.  So it's very much so possable that I could have over looked it.

@ Zach.  Can you please check the link you posted for the one in Florida?  It appears to have moved.
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Sara
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« Reply #14 on: August 29, 2006, 06:28:36 PM »
Well, turns out we can't go to the Orlando one this year.  I have to work that weekend, so maybe next year.
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Sara, wife to Joe (he's the one on dialysis)

Hemodialysis in-center since Jan '06
Transplant list since Sept '06
Joe died July 18, 2007
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